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Yallllllllll
Its convention season and I’m STRUGGLING
So I’m in the process of getting disability and I had to quit my job because my chronic pain just couldn’t handle the type of work even though I loved it; my spine said “no”
Anyway, my beanies are my biggest seller at conventions but I currently do not have the money to restock.
I have like ten left of this design:
And I think if I sell out I can afford to restock all 4 of my designs
Here’s a few more of my popular designs that I know my girls, gays, theys, and disabled people will love.
I really need some support here because I love my art and the community I’ve built around it. So if you can’t afford to shop that’s okay. I’d really appreciate a reblog and I’d love to shitpost with you in my discord server.
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something that isn’t talked about enough with chronic illness is knowing that going to your appointments and doing your exercises and all that will help but being in too much pain or too fatigued to go, so your just stuck in this constant cycle of knowing what you need to do to get better but not being able to do it because your sick
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Being asked to rate your pain on a scale as someone who has had chronic pain for several years is so difficult. Like how am I supposed to rate the pain I am experiencing from 1-10 when I have no idea what it feels like to not be in pain. Like what is 0? what is 1?? what is even 10???? What am I comparing it to???? My 5 can be someone else's 10 and their 10 can be someone else's 2, and how is a doctor or anyone else for that matter supposed to tell the difference? Maybe it's because I'm autistic and I'm just overthinking it but it literally makes no sense to me.
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people with chronic pain will go “ why can’t I sleep well? Why am I crying for no reason? Why am I getting frustrated easily ?” Not yet realizing their pain got worse
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If nobody has told you yet, or this year, or even this day, I want you to know that what you can do is enough.
If all you can do is an hour or two of school/work, that's enough. If all you can do is go to medical appointments, that's enough. If all you can do is tidy up your room, that's enough. If all you can do is take a shower, that's enough. If all you can do is your hobbies/things that make you happy, that's enough.
If you can't do any of that, and have to lie in bed most days, or every day, and other people take care of you, you're living despite a world that is so hostile, you are suffering so much and still living. You are doing enough.
You don't owe anyone productivity. You don't need to have a job, go to school, or write or draw, or do anything else in order to have inherent worth and value. You deserve to be taken care of. You deserve to be loved. No matter what you can or can't do.
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"you have such long beautiful legs" awww thank you! :3 they're useless
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Just got diagnosed!! Keep fighting for your diagnosis someone will eventually give you an answer. Good luck to those who don't know what's wrong.
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I was talking to my mom about mobility aids and also said that I am going to buy compression socks/gloves and she got SO mad, she told me those things are for old people and that I'm not going to use any of those things, even if I pay for them myself, all because "you're only 19, you DON'T need them!!" I'm so tired
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I love how I will wake up from a nightmare and then not be able to move much from the bed that day. Really adds a level of helplessness and panic in this 'struggle for survival' type life.
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Health update for those who care:
Had a hypomanic episode because I forgot to pick up my antispsychotics
Which led to me overdoing physical activity and therefore a BAD pain flare up that I’m still going through
I have received confirmation via MRI and ultrasound that my ankle has in fact been sprained for six years. My other ankle has considerable damage as well.
Several doctors have mentioned EDS (hypermobile and Classical) to me based on the type of ligament and tendon damage I have
I need to get injections in my ankles and then surgery on the bad one. At least there’s a solution!
Anyways hi I’m back!
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my mom works in healthcare & was telling me today about a client who doesn’t have access to help right now because her mother is upset with her & refuses to assist her with what she needs. thanks to my mom’s company, an employed caregiver is able to help her, but otherwise she’d be fucked over.
it makes me so sad that we have to live in a world where, if someone is upset with you or simply doesn’t feel like helping, disabled people will have to go without the assistance they need. i want to live in a world where all disabled people to have access to help, all the time, no matter what. no strings attached care is a human right & i wish able bodied people would see that & act on it.
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casual dating with chronic illness feels impossible sometimes. having to explain why i can’t go out to dinner, go hiking, or even get in a stupid hot tub. i can’t go to farmers markets on the weekends or go to concerts and genuinely enjoy myself without worrying about passing out. “nice to meet you! i like to lay horizontally and if i stand for too long i’ll faint. want to sleep together?”
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