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#My health
wiirocku · 4 months
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Psalm 73:26 (NLT) - My health may fail, and my spirit may grow weak, but God remains the strength of my heart; He is mine forever.
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decolonize-the-left · 28 days
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Doctors finally called me about my labs. I have an appointment next week to go over them. That's more confirmation that something is fucked up cuz if I was fine then they would have told me that over the phone like they always do.
Based on the results I'm expecting to be referred to a rheumatologist, hepatologist, and/or hemapathologist.
Thank you to everyone who's checked on me & has shown concern for my well being, ily ❤️
And if I really am That Sick then I'll pin my payment infor again or maybe make a GoFundMe to help my gf get by and so there's something set aside for my kid.
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My guess is something that is in fact "life limiting."
And I decided I don't want any empathy or sympathy.
I want better healthcare . Access to doctors I can't afford. I don't want my gf to work to pay medical bills while I lie in a hospital, I want UBI, I want the stress and trauma of being alive during multiple genocides to end because it's affecting my nervous system, I want better education in schools so I'd have known sooner, I want kids in foster care to have a louder voice in their medical care because they're handed from social worker to social worker and doctor to doctor and none of those people are as invested in the child's health, I want basic human rights because marching for them made me deteriorate faster, I want COVID to be taken seriously because it's shot my already shitty immune system, I want there to be more support for needy families. I want doctors with more dedication to caring for their patients individually. I want queer people to live freely, to be allowed happiness because that too assures better health. I want better childcare and resources for them. I want 3rd spaces to come back.
Make that happen so there aren't so many people who have to go through what I am.
That's what I want. Thats what wouldve helped and still maybe can, at the very least it'd help someone else.
If you care about me, then care about everyone else. I'm not special just because you follow me.
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thewolfwaitsbelow · 10 months
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Hi guys. I had to quit my job because it was making me so anxious I was suicidal, and I'm still recovering emotionally. It was the only job I could find that I was able to do with the POTS and fibromyalgia, so I don't have any job prospects. I'm 4 months post applying for SSI
I'm going through college so I can get a job I can actually do with all the things wrong with me, and I need help with tuition. I was able to get a scholarship that brings it down to around $2000. Anything will help. My venmo is @/ tamelo or dm me for paypal.
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ineffectualdemon · 9 months
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Me: *uses crafts to help my mental health and keep off despair*
My multiple chronic illnesses: your hands and arms don't work right today because fuck you
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cjoat-boost · 2 months
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March 4, 2024 Edit of this still relevant post from February 27, 2024
For those that view any of my online presences (including my blogs)…Um, this is something for you to know.
Please save this post so it doesn’t get buried by queue.
My& Current Health Situation
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I wish to communicate this to y’all now so that…I don’t end up worrying anyone when this happens. It may have been noticeable by some folks that I’m dragging, heavily. I’m not having a good time right now with my body. With this comes with an onion of issues detailing certain aspects of what I’m going through.
I know I have a lot of obligations. Not only as a creative and content creator; but as a friend, a mentor, Guardian or even older peer, and myself. I’ve neglected myself for too long. I have been noticing my vitality decrease; and my CFS and POTS flaring up further.
Social Justice is something I’m always perceiving and sensitive to; and as such, the strain I’ve noticed too late has been worsening. Includes many emotional meltdowns and outbursts from me that I can no longer control or hold back.
Trying to figure out how to exactly sort through the mass tangles of my traumatized emotional and mental state isn’t as simple as I hoped for me. While I’m creatively burned out, I am suffering Autistic burnout. A double whammy of all things.
I’m finding myself getting “stuck,” unable to physically move for hours at a time. I’d move upstairs to eat something but end up being there for what’s normally an half hour task…for nearly 2+ hours. Even so, trying to force movement to do tasks that is considered “everyone can do these” is mentally painful and physically locking. Even if I have to desperately use the bathroom when I’m about to fall asleep, my headmates (AKA alters) have to switch to co-front or “snatch me back” in order to get my body moving. That’s with the sudden rocket spike in heart rate and blood pressure, and loss of balance (at the very least).
I’m already struggling to cope with many things due to the fact that I haven’t been able to draw much at all; or create anything and write anything. Especially trying desperately to fulfill my word on things I had the energy to do, but no longer do. So much of my struggles I can’t properly transmute. It’s so upsetting.
Thus, there’s going to be a sudden and abrupt shift in posting or messaging. I don’t know when. But it is coming.
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(Especially since I’ve been feeling mania over the weekend. All weekend, Saturday and Sunday, I manic cleaned large portions of certain areas I occupy as well as my housemate. Today I’m feeling the aching in my joints badly, with my calves swearing hell at me. I’m wearing my wrist brace too, I just…I’m rambling.)
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I wish for you to know what’s happening if you don’t see or hear from me, my headmates, or any of my online presences (as depicted here: https://cjoatbysamwise.com/cjoats-links ) No one is being forgotten. I’m not abandoning anyone. I’m not ghosting anyone. What I do know (still coming to terms with it ngl) is I need to stop, fully stop, and recover. It’s looking like my body is going to do that for me by force. It’s going to be abrupt and sudden to the inconvenience of many, including my housemate, unfortunately.
I don’t know how long this will last. But I don’t know how long I’ll be able to keep “hustling” like this. Does this sound repetitive? I wanted to communicate before suddenly I’m unable.
Does this sound repetitive? I’ll end it here. I wanted to communicate before suddenly I’m unable.
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I’ll end it here with how you can support me while I’m down, only able to and wish to (I’m aware financial situations are a big struggle at the moment, there is no pressure to.)
Provide support by these links:
Thank you for reading until the end; have an awesome week ahead. Please remember to hydrate and eat. 🫶🏽❤️‍🩹
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natsmagi · 5 months
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new tsumugi card just dropped
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ARE YOU KIDDING ME. HE IS SO FUCIING COZY
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nurgletwh · 6 days
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I ATE'NT DEAD
To quote a semi-famous line.
Hopefully I’ll update more soon, but things seem to be on an even keel at the moment. I may need to have @grumpyoldsnake come whack me with a wrapping paper tube every time I say “I’m better now!” so I don’t fucking curse myself of something. >.<
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doomspaniels · 1 year
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Slappy cuddles!
I've been really proud of Gwyn. She hasn't once tried to grab that cord on the pulse/ox. She does still investigate and want to pull on wrist brace velcro, so I was anticipating having to discuss it with her, but nope! Good girl! It's a cord, it's a NO 🧡
Interestingly, she does intently sniff under my fitbit face and under the pulse/ox band, the same way she sniffs my breath. I don't know what she's looking for, but she apparently needs to regularly check. (I would love to try to figure it out, but Health is still too problematic.)
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disableism · 5 months
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Fuck. Doctor had me do a stool test because of family of polyps and Crohn’s disease. Just got a call that there is blood in my stool. So now I have to have a colonoscopy and start seeing a gastroenterologist. I don’t know if I’m more anxious about the blood in my stool or more pissed that I have to start seeing yet another specialist. Either way, Merry Christmas to me.
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frostbounddevotion · 3 months
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skvaderarts · 2 months
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Welp, I'm back from the doctor, and I have news.
So remember that important doctor's visit I mentioned last week when I said I might have to push a chapter back? Well, I went to it and it turns out I need very major surgery. They are hoping that it will fix the root cause of what's been plaguing me for the last few years, but it's going to require about 6 weeks of bed rest and I don't have a surgery date yet. I'll keep you posted. They are trying to rush me in for a date as soon as possible due to the severity of my condition so I've been to THREE doctor's appointments this week alone and two last week. I've had no time to write, so I'm aiming for next week as long as they don't call me and say I have to hop on the table because right now I'm waiting to hear back from them about the dye contrast MRI I had done yesterday (It's an internal surgery to remove two golf ball sized tumors that are putting pressure on some of my organs that may involve moving some organs around so they had to get better images smh) so that they know what they are working with. It's... scary.
I've never gone through anything like this and I'm very concerned, so hopefully, writing will help distract me if I get the chance. I was NOT expecting this when I got that emergency doctor follow-up phone call after my last visit post anaphylactic incident. I knew it was something, but I wasn't expecting this. I'll share more if any of you are interested since I don't mind, but yeah, I just wanted to let you know. At least the bed rest recovery being as long as it is will clear up my schedule, though I have no idea how I'll be feeling and I'll be in the hospital for several days so I have no idea how soon I'll be recovering after that. So it's a lot, yeah. But at least after fighting with my doctors for like 4 years, it's finally going somewhere. Hopefully somewhere better.
I'll keep you in the loop about dates and such so we know the schedule and have some idea of how long that will impact the near-term schedule, but yeah, it's a lot. I just wanted to update everyone. Thanks. I hope you're having a better week than I am lol! You take care out there. And if you need anything, let me know! I'll... be okay. Yikes, though. Have any of you ever had surgery? How did it go? If you are willing to share, that is. I'm just still in a little shock, I think. I hate pain. This is a lot. But hopefully, it will help. I'm hopeful that it will be worth it.
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mitsvriii · 8 months
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What up fam, my anxiety is actually depression let’s go
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death-by-physics · 5 months
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Had my whole weekend/upcoming week fucked by needing emergency gallbladder surgery
But I am looking forward to no longer being in pain every other week
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make-me-your-animal · 1 month
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Good doctors deserve the world. I swear my psychiatrist today for the first time in over a year because of a scheduling mishap, and when she asked about stressers, I told her about my symptoms and the issues with doctors. She told me she's gonna reach out to my primary care doctor and see why she hasn't referred me to a cardiologist. She also said if she can't get my primary care doctor to make the referral, she will. I know it's only the first step in a process that'll take potentially years to figure out, but I'm just so glad someone is finally taking me seriously. She also gave me some advice in the meantime.
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fictionplumis · 1 month
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New meds are indeed doing what they're supposed to do. My heart rate hasn't gotten higher than 120.
My body hates that, however. With a passion.
And it's not that it drops my heart rate or blood pressure too low, I don't have any problems with getting dizzy or tunnel vision.
My body is just like, "Fuck you, I'm going make moving EVEN HARDER, and you know that sinus drainage you have at night? Well now it's harder to swallow that so I'm gonna make you feel like you're choking when you lay down, and then force you to cough so much you puke! And since you have a loft bed and can't move fast enough to get down--"
Anyway.
On the plus side, I have a new mattress! And the bowl I'm keeping up in my bed matches my sheets.
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angededesespoir · 3 months
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My urge to get everything unpacked and organized as quickly as possible vs the unfortunate limitations of my body 😔✌️
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