#heat intolerance

[metalheadsforblacklivesmatter]

Heat Intolerance

This disability pride month I'd like to talk about heat intolerance. Because honestly although it's not the first health issue that presented symptoms in my life. It was the first time I was like "I don't think my body works right".

And honestly given disability pride month is during one of the hottest months in the year. It seems fitting. Especially because there's a lot of disabilities and medications that cause it.

What is heat intolerance?

Simply speaking it's the inability for the body to regulate it's temperatures especially in hot settings to cool itself down.

Why is awareness important?

Because gaslighting people or worse not providing them a place to cool down just because you "feel fine" is extremely fucking dangerous.

What are the medicines that can cause heat intolerance?

Antihistamines (Allergy medications) . Decongestants (Sudafed or any medication that has the D at the end of it). Stimulants (ADHD medications. Steroids. Caffeine.) Beta-blockers (blood pressure medications). Overactive bladder treatment. Psychiatric medications (including but not limited to medications for depression and anxiety). Pain relievers. Antibiotics.

What medical conditions can cause heat intolerance?

EDS (Elhers-Danlos syndrome). Autism. ADHD. Migraines. Brain/spinal-cord injury. Sensory processing disorder. Chronic fatigue syndrome. Endocrin problems. POTS. Menopause. Hypothyroidism. Diabetes. Heart Disease. Multiple sclerosis. Mental health disorders.

What should I do if I suspect I have heat intolerance?

Reduce time outside during hot months. Keep your electrolytes up. Drink plenty of water. Stay out of the sun whenever possible if outside. Be aware of the symptoms of heat exhaustion and heat stroke.

Clothes that are best worn for heat intolerance. Loose lightweight breathable fabrics. Natural fibers. Long sleeves that protect from sunburn as sunburns will increase your risk. Light clothes that reflect light. Wide brimmed hats that shade the face and neck.

Cool. So what are those symptoms I'm supposed you be looking for?

Headaches. Excessive fatigue. Mood changes. Muscle cramping or weakness. Nausea/ vomiting. Rapid heartbeat. Excessive sweating or not sweating at all.

When should I do to the doctor?

If you suspect you have heat intolerance you can go to your PCP to discuss what medications you may be on and what you can do about it. Otherwise, please go to the emergency room if you have symptoms of heat stroke.

This is good information and all but why are you making this post?

To raise awareness. Not just for the people that have it but weren't aware of what it was called. But for all of the idiots that tried to gaslight me when I was in school because I was like "I don't think this is normal. Every time we do our mile run outside I vomit all over the place but other kids aren't doing that."

Also because people always blame me for over heating if I wear long sleeves or pants. I always like to take notes from what people in the middle east wear because they literally live in the excessive heat and spend long hours in the excessive heat. Often in clothing that covers most of their body. They've gotta know what they're doing, right?

I have some type of xenophobic comment about why people from the middle east cover up

Shut the fuck up 😊

-fae

#disability pride #disability pride month #disability awareness #heat intolerance

[glitchdollmemoria]

fellow heat sensitive individuals. go drink water. learn from my folly.

if heat makes you flare up, GO DRINK WATER

if your meds lower your heat tolerance, GO DRINK WATER

if none of the above apply to you but youre still suffering through a heat wave GO DRINK WATER RIGHT NOW

#spoonie #chronic illness #chronically ill #heat intolerance #me/cfs #autism #actually autistic #trying to remember what other conditions commonly come with heat intolerance #snaps fingers. my antipsychotic taking beloveds #schizospec #schizophrenia #schizotypal #schizoaffective #psychosis #actually schizospec #actually schizophrenic #actually psychotic #cripple punk #cpunk #disabled #ok yeah idk what else to tag this with but whatever #dysautonomia

[cosmiccripple]

me as soon as i get out of the shower:

[id: a side view of a dark grey clipart person lying down with a white background, the arm is outlined in white and positioned in front of the torso, the visible leg is raised above the body, resting on a rounded dark grey block]

#physical disability #actually disabled #disability #invisible disability #chronically ill #crip punk #physically disabled #cpunk #chronic disability #chronic illness #chronic fatigue #chronic pain #dizziness #presyncope #potsie #pots #heat intolerance #disabled #disabilities #chronic illness memes #disability memes #image description in alt

[justabunny]

I love the idea of summer but being hot, sweaty and downright miserable reminds me why I don't actually like it.

#summer #disabled #chronic pain #forearm crutches #joint pain #mobility aid #young and disabled #mobility aid user #disability rights #disability #chronically ill #heat allergy #heat intolerance #chronic illness

[neuroticboyfriend]

summer reminder that if you're heat intolerant or dealing with heat illness, it is okay to take off your mask, if you have to.

it is not your fault that the people around you refuse to wear their mask to protect you, themselves, and others. you are allowed to prioritze protecting yourself from heat illness, especially since heat stroke can kill you... much faster than COVID.

it's not fair at all that you'd have to expose yourself & others to the risk of a COVID infection even more. but it is not your fault. the people around us and the systems that governs us have failed. yet, you're still doing the best you can to be COVID conscious while still taking care of yourself.

that's all you can do. let the guilt go, and don't die from heat stroke. and for anyone who doesn't wear their mask when they can do so safely*: stop being neglectful and mask the fuck up.

*safely as in without distress or illness

#softspoonie #heat illness #heat stroke #summer #summer safety #covid conscious #heat intolerance #dysautonomia #pots #pots syndrome #hyper pots #potsie #postural orthostatic tachycardia syndrome #chronically ill #covid #c19 #covid 19 #covid masks #covid19 #pandemic #covid pandemic #ppe

[2outta3aintbad]

I get that everyone is for some reason excited that it’s a billion degrees but can everyone and their kids please shut the FUCK up I do NOT wanna hear your kids’ stupid fucking mouths or the gross dumb bass line to your shitty fucking music or your ugly pice of shit bike engine, and if I’m inside my home I should not have to!!!! Everybody seriously genuinely for real shhhhhh shut the fuuuuuck uuuuuuuuupp FUCK I hate summer so much sooooooooo so fucking much fuck summer fuck everything about it fuck

Thank you for coming to my Ted Talk

#autistic meltdown #autistic rant #fuck summer #i hate summer #i miss winter #i miss the cold #i love snow #audhd problems #adhd autistic #sensory sensitivity #sensory issues #pots #heat intolerance

[thalassarche]

Hey y’all experiencing these heat waves or going places that are way hotter than you’re used to: Check your meds to find out whether anything you’re taking can cause heat sensitivity! This includes: heat intolerance (getting overheated very easily), increased sweat production OR impaired sweat production, increased OR reduced thirst, lethargy, reduced alertness, and increased risk of fainting

A lot of very commonly taken medications can cause heat sensitivity, and a lot of people don’t find out about it until they’re wondering why they’re sweating buckets or feeling exhausted after a short time in the heat. Additionally, some common OTC meds like cold and allergy meds, antibiotics, and NSAIDs can cause photosensitivity, which makes you far more prone to burning in the sun.

[Alt text: Meds That May Cause Heat Sensitivity: Mental Health meds (Prozac, Zoloft, Xanax, Klonopin, Cymbalta, Effexor, Elavil, etc) - ADD/ADHD Stimulants (Adderall, Dexedrine, Vyvanse, etc) - Diphenhydramine (Benadryl, ZZZquil) - Blood Pressure (beta blockers, diuretics). This is not an exhaustive list! Please check your own medications, including OTC, for heat-related side effects! Keep hydrated, limit heat exposure, and be safe!] I have to emphasize that the above list is not exhaustive, it presents a handful of examples in a few common categories. Research the meds that you take, especially if they’re similar to any that are listed! If you do take meds that can cause heat sensitivity, be aware that you may have a much harder time handling the heat, and that time spent exposed to high heat puts you at higher risk of developing heat-related illnesses such as heat exhaustion and heat stroke. The warning signs of heat exhaustion include headache, racing pulse, heavy breathing, fatigue, nausea, muscle cramps, and light-headedness. If you start to experience these symptoms, get to a cool environment, remove any layers of clothing you can, place cool damp cloths on yourself, take frequent but small sips of water, and monitor your symptoms. If they don’t go away in an hour or they worsen, or you start vomiting, seek medical attention, because they could progress to heat stroke, and that is a life-threatening medical emergency. DO YOUR OWN RESEARCH. I AM NOT A MEDICAL PROFESSIONAL. I’m just someone who’s taken many of these meds, some for over a decade, and it wasn’t until I moved to Arizona that a medical professional ever talked to me very specifically about these potential side-effects in a way that made me actually realize I’d been experiencing this. My prescriber is working with me to find some different meds that addresses my needs without making me miserable with side-effects, so if you’re in a similar place, ask what other options there might be for you. Above all, be safe in the heat! Stay hydrated, you need more water than you think, and it’s far better to take frequent small drink! 

#heat sensitivity #heat intolerance #medications #idk what to usefully tag this with I just made a post on twitter specifically for folks going to FFXIV FanFest in Las Vegas next week #and I stole my own content to put it here too

[chronicsymptomsyndrome]

Thinking about that one time right before I passed out at work when my coworker said “are you doing okay sit down and have a snack” and I apparently said “you’re a snack” and then fell over lol I never heard the end of it

#absolute silliness lmao #invisible illness #invisible disability #dysautonomia #heat intolerance #disability accommodations #chronic illness #neurological disability #physical disability

[slowlivinggirlie]

Fellow POTies I have a cool ❄️ product for you (pun intended.) It’s a spray for hot flashes that cools you down and deodorizes. It’s technically for women going through menopause but hot flashes are hot flashes ���‍♀️

#pots syndrome #potsie #postural orthostatic tachycardia syndrome #heat intolerance

[mandana-the-service-pup]

TMI WARNING: 🤢

I don’t think people realize how awful heat intolerance can be. The power went out last night and the only reason I woke up was to vomit bc I was too hot. It was maybe high 70s inside? Even after the AC kicked back on I couldn’t go back to sleep without ice packs because unlike normal people I can’t regulate my temperature very well.

#tmi #tw vomit #heat intolerance #chronic illness community #disabled community #dysautonomia #gastroparesis

[disagigglebilities]

I might have to quit this job...

#chronic illness #heat intolerance #pots #fainting #syncope #presyncope

[consider-your-potatoes-mashed]

Fuck heat intolerance and exercise intolerance. I cant fucking sit without sweating my ass off and having a high heart rate, and when I just walk i end up dripping and with an extremely high heart rate. The fuck is up with that shit.

#disabled #disability #actually disabled #physical disability #chronic illness #pots #pots syndrome #hyperhydrosis #sweat #sweating #fuck this #postural orthostatic tachycardia syndrome #posturaltachycardiasyndrome #posturalorthostatictachycardiasyndrome #exercise #exercise intolerance #heat #heat intolerance

[headpainmigraine]

Attn: Spoonies, especially people with dysautonomia and migraine/headaches

SHAVE YOUR HEAD THIS SUMMER

It's. amazing.

Washing your hair takes 1 minute

Drying you hair, 1 minute

Wanna cool down quick? Shove your head under a cold water tap, it'll dry off soon and cool you down as it does.

It's luxury, you need to try it.

I went down to a grade 1, I love it. (Plus, it feels really nice to rub, or have someone massage your head for you++)

#spoonies #spoonies in summer #disabilities in summer #migraine #headache #dysautonomia #coping with disabilities in the summer #coping in the summer #coping in the heat #heat intolerance

[disabled-is-not-a-dirty-word]

[ID: A picture of a smart watch. The display shows a heart rate graph with a sharp increase and decrease. The increase has been labeled with an arrow and says "put on a hoodie" in red. The decrease is labeled "took off the hoodie". /End ID]

So this is how bad my heat intolerance has gotten. I hardly sweat at all anymore, and I didn't even realize that I was hot until I told my mom that I "felt like I have a high fever." Istg my body is being held together by rubber bands.

#pots #potsie #postural orthostatic tachycardia syndrome #dysautonomia #heat intolerance

[justabunny]

living in a state where the weather constantly changes is bad because

too hot: migraines, heat intolerance, fainting

too cold: joints owie

#disability rights #disabled #chronic pain #forearm crutches #joint pain #mobility aid #young and disabled #mobility aid user #chronically ill #disability #chronic migraine #pots syndrome #heat intolerance #heat allergy

[tothestarstothenight]

it's so great /sarcasm seeing ppl saying how we need to go outside, join irl communities, meet real ppl not "online communities", that we need to touch grass, and equate being online "chronically online" with bigots, as a disabled person who is unable to exist outside the house without encountering many issues that make it not worth it, or even make us sick. We are at risk of heat stroke just going in our backyard because of heat intolerance. And a combination of chronic pain and muscle atrophy from being solitary makes walking and moving and doing anything beyond simple tasks (that we're already used to, cause many other simple tasks still leave us in pain).

It hurts being equated to assholes or ppl who purposely stay ignorant and avoid things that they are able due because they are abled. Sure ppl may not be reffering to specifically disabled ppl who are mostly or fully housebound/bedbound but ppl never bring us up, so how do we know if they mean us too.

We would love to be able to be outside, we have a huge beautiful backyard, yet can only view it from a window. We don't get to go to places, even with air conditioning for long, cause our body can't handle it. We'd love to go to pride, we tride once but the one we went to was so abliest, they literally had 3 flites of like 8 or 9 step staircases, even if they didn't the heat made us sick in the end. And places like bars, caffes, are sensory overload or cause other sensory issues.

We see people describe living a life where they can interact with the world, who don't feel like their confined to a house. We're already jealous, and we can at least go outside if we must now, but we know our disability is only gonna get worse, cause we have progressing ones and are still young, and it's only gonna keep getting hotter and hotter, which rn we're literally scared of being outside because of the chance of heat exhaustion leading to heatstroke, we don't wanna die that way. But it's made worse botb by ppl who've turned not leaving the house into an insult, a thing to be ashamed of, a thing that makes you a bad person, even saying that in response to bigots *that are being hateful to you* (example of seeing somebody say "go outside" to somebody being transphobic, and we are trans ourself.) and then from the perhaps ignorant folk who tell you to go outside for your health, and to have real life experiences, and that online experiences can't be the same. Online experiences are the only way we can socialize while being disabled. If we weren't online we would have nothing to do, cause physical hobbies, even very 'low effort' ones cause pain and overheating and other issues. Hell even the vast majority of video games cause pain!

We hate living like this, but there's nothing in our sight that tells us we'll ever be able to live the way others do. This may be the rest of our life. And we're tired, stressed, angry, sad, depressed, jealous, and sick and many more negative emotions at ppl ignoring or insulting being partially or fully unable to leave the house.

#tw ableism #tw transphobia #disability #disabled #actually disabled #housebound #homebound #vent #tw vent #chronic pain #chronic illness #neurodivergent #heat intolerance