Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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Honestly I think a lot of people who have never made a gif for tumblr don't get that it does actually take time and effort, its not just rip it from a video and post it- you have to download the video, in my case I have a video player installed that grabs continuous caps, figure out what parts you need, you have to open those in photoshop or gimp, depending on where you got photoshop you might be paying for it every month and then on top of that is actually sizing, cropping, colouring, sharpening, adding text, etc. etc. like it is something that takes time and effort for which the only real reward is creating something that makes you happy and hopefully people reblog it with a nice or funny tag, so maybe keep that in mind the next time you think gif makers are being mean or unfair for being upset about reposts. It is its own little artform that is fairly unique to this website, and that's a big aspect of why I have always loved tumblr, if all the gifmakers stopped posting things would be a lot more boring around here.
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Different Italian anon, but the thing with Tuscan C is that it's pronounced like a very strong H sound, which is extra weird cuz the letter H makes no sound in Italian, normally. It sounds the way Spanish pronounce the J. We say it's "aspirato". So then people from there will say things like Hoha Hola (coca cola), and it's funny. It's also extremely contagious, I got family in Florence, you spend 3 days with them you start doing it too before you even realize.
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Hey abled people
Don't offer to assist someone just to be polite
You don't get to offer to push me and then turn around and complain when I accept, or push me for like a minute and then give up while complaining.
I get if you didn't realize how heavy it is or that you might not be strong enough, just say that and apologize. And then STOP PUSHING ME. Don't continue while bitching and making me feel bad.
If you bitch at me it's only going to make me feel worse and everyone around us is going to be mad at ME for "taking advantage of you"
Usually I will only ask for help when I am at my limit, or when I'm around a group of friends I trust, so they can switch off if they get tired. When I need to get up a hill and no one is there to help I just get out and push. Until I get a power assist I still will need help from time to time.
Also in most cases, a stranger won't want or need your help unless they are in immediate need and usually then we will ask. It's very uncomfortable to have a stranger touch your chair.
You don't need to ask every wheelchair user if they need help. I think in some countries it's considered polite to ask but please..just stop if you can't back it up and actually help!!!
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