#celiacs

[transgendz]

Ik I've made a post about it before but hospitals don't always have the ability to cater to life or death food allergies and are often not up front about this when admitting patients.

Yesterday I had to take my roomate to the hospital. He is allergic to soy, dairy, most tree nuts, several fruits, and he has severe celiacs, so no gluten whatsoever.

Little backstory, we are both disabled, and I am his advocate in situations like these, generally I am his caregiver, though I'd say it goes both ways.

So he is being pushed to accept hospitalization, and I am agreeing until I ask about food. The nurse says "it's a hospital, why wouldn't we be able to accomidate"

I am more direct, and say "many hospitals can't, I don't mind walking to the cafeteria to confirm." She seems to get frustrated but says she will call them and leaves after belittling me for having her check.

When she returns I'm told "they cannot guarantee any of the foods we have will be allergen free, but nothing in life is 100%"

My roomate came to the hospital because he was bleeding from ulcers caused by accidentally getting a single speck of grain alcohol based hand sanitizer on his tounge.

Td;lr hospitals don't always provide for allergens, and when I brought this up in a hospital with a nurse, I was basically told the patient should just eat allergens

#disability #allergens #allergies #celiacs #celiac #food allergies #food allergy

[evilwriter37]

Fellow celiacs, be wary of So Delicious ice cream. They took the warning label that says it's cross contaminated with gluten off, and even claimed to now make the gluten free ice cream on separate lines from their ice cream with gluten.

I'm calling bullshit. My sister and I ate it (rather excitedly) and got pretty sick. It sucked.

There's still cross contamination of some sort happening in their facilities and they're just not warning about it anymore. If you're sensitive to cross contamination, don't eat this ice cream. It's not safe.

#celiac #celiac disease #celiacs #so delicious ice cream #food #warning #health warning

[cadmium-free]

thinking about how having celiac disease encourages developing an eating disorder, and how little is done to combat that. we know, we know, the likelihood of developing an eating disorder is doubled after a diagnoses but, unavoidably, the entire treatment plan for celiacs encourages disordered eating. the absolute mistrust in food prepared by others, the difficulty of obtaining safe food, the ritualistic and justified obsession with cleanliness and what other foods have been in the kitchen and can i see the label and where did this come from and who touched this. the fact that any mistake can mean anything from days of pain or vomiting to hospitalization depending on the person.

the obsession is so justified and so dangerous. i love food, i love eating, and even i fall into the traps. i’ll decide, especially if traveling, that skipping meals is less effort than trying to eat. i’ll sometimes refuse to eat with friends and family because trying to accommodate myself is too much work for even me. i don’t want to go places or travel because it makes eating too hard.

i don’t know. I’m just thinking about that post about how anyone can develop an addiction (to more than just drugs) and it’s important to recognize what it looks like & thinking about how many celiacs i meet whose relationship to food is even more abysmal than mine

#celiacs #disordered eating #tw eating issues #my tummy hurts today can you tell #text

[big-gay-bird]

Before disability pride month is over, I want to say, when showing how different bodies can look we need more representation of significantly bloated and distended bellies outside of medical textbooks and other similar contexts.

Yes, both can be signs of serious illness and yes that should be taken seriously, but because of the damage celiacs has already done to my body, I just look like this now. This is true for a lot of us with celiacs and we’re not the only ones. Even after we’ve healed and are taking care of ourselves our bodies are still sometimes shaped in “medically grotesque” ways.

My celiac groups are always full of people posting pictures of themselves after exposure to cross contamination or small amounts of gluten, joking that people would assume they are pregnant because that’s the only time bellies that look like ours are ever shown.

When I was a teenager, I saw some body positivity for people with larger bellies. It helped my self image a little but the problem was that my belly was never shaped like theirs was, and honestly it scared me so much. I didn’t know what was happening but I knew it was wrong, and that something was wrong with me. Instead of insisting on medical treatment, I developed eating disorders and tried to hide my shape in shame. I am not the only person with a a body shaped like mine who felt these feelings. I know others who still struggle with feeling like their bloated and/or dissented bellies make them look visibly sick and constantly out of place.

We deserve better, we deserve to be visible, we deserve neutral or positive relationships with our bodies.

#disability pride month #disabled #disability #celiacs #body positivity #body neutrality #chronically ill

[flaminghotcheaters]

My favorite part about having celiacs, IBS, and anxiety is that you can never quite tell why you're shitting yourself

#celiac #ibs problems #anxienty #shitty #celiacs #dailytalkswithstevme

[indagold-orchid]

I know the rex gene is associated with alopecia but didn’t know celiacs is also associated. Explains why my hair is thin.

Or maybe my old man casting spells on me so I will transmute into a rex rat.

#rats #ratblr #rex #rex gene #alopecia #celiacs #rex rat #oh to be a rat

[rabbottsworld]

Bathroom Signs

between the bathroom signs

the laws between the lines

i find myself fighting

my decline

failing before its time

my pulse is flatline

in this crippled body

i call mine

my loving is vulpine

a social aniline

what parent would love a creature

such as i

marked as infantine

no smarter than swine

i am disabled by the depictions

of my mind

fighting up an incline

persisting in spite of fines

and invisible lines

on this body of mine

how dare i shine

taking my time

and crossing lines

in this broken and beloved

body and mind of mine

#trans #poetry #ftm #transmasc #ehlers danlos syndrome #celiacs #trans t4t #lgbtq #gay #transgender #transisbeautiful #trans joy #original poem #my poem #poetblr #writers on tumblr #lgbtqa #lgbt pride #lgbtq positivity #lgbtqiia+ #gay men #ftm t4t #ftm mlm #rabbottsrambles

[someguywriting]

#celiac disease #celiac #celiacs #gluten free #snacks #snack food #my go to is chips #however i do frequently have candy or lollipops #and occasionally when theres no food I'll go get a high cal drink #mm mm mm #gotta love my dinner #(Starbucks caramel frappuccino) #being a celiac is tough man

[seven-oomen]

I hate having a hostile digestive system. Whoever came up with the idea to give certain people random moments of pure agony should be Hung by their toes upside down.

#irritable bowel syndrome #ibs #celiacs #chronsdisease #chronic illness #disability

[cookiesabode]

It’s WACK.

#gluten free #immune disease #celiacs disease #celiacs #parasaurolophus

[transgendz]

I hear it a lot and I just wanna say, people with severe allergies don't choose their allergens. We aren't being difficult, and we hate the hassle of having allergies more than you hate dealing with us.

And people with allergies deserve to be respected. I'm not saying "I can't eat that, I'm allergic" to everything you offer me out of spite. I actually feel very sad having never taken offered food or eaten communal at events for years, especially because no one has ever offered to make something allergy friendly. I am not alone in having these feelings. You just think people with food allergies are "difficult"

#allergies #anaphylaxis #food allergies #celiacs #idk what to tag this as?

[nightinghawk]

Some day there will be a giant fucking label that says ~Gluten Free~ right in the front middle of every GF item in stores

just so I don’t go and poison myself on fucking pancakes AGAIN WHY ARE THE PANCAKE MIX CONTAINERS SO SIMILAR AHHHHHH 😭🥹😭😖😫😭😶‍🌫️😱🫠🫥

And yes it was tasty of course it was tasty Arthur’s pancake mix is amazing fight me and godspeed 🫡

#nightinghawk talks #celiacs #chronic illness #chronic pain #celiac #ahhhhhh pancakes why do you betray me #I have eaten of the forbidden flour #gaaahhhaaaaaa I swear if I have to go to the hospital over FUCKING pancakes #sobs

[ali-oopsy]

BoOoOooOo!!!11!

I had an early morning appointment this morning at the hospital for an EMG. (which tests my nerves in my hands and feet) I've been getting severe numbness and tingling in my hands and feet at random so my doctor sent me for testing after ruling out a few things first. Welp nothing showed up on my results. Doc thinks its most likely fibromyalgia. Which makes sense. I have a lot of chronic pain and definite chronic fatigue. So now to start the testing! Wooo, see my family doctor next week, so I'll talk to him more about it then... :/ What an overwhelming summer health wise. First I get diagnosed with Coeliac's Disease in June. Now in July they suspect I have Fibromyalgia. Next month in August I'm planning on going to my psychiatrist to get an official diagnosis for PTSD/C-PTSD. Bah. So much diagnosis in such little time. Hopefully I can work towards finding ways to work with this now.

xxx Ali Oop

#fibromyalgia #diagnosis #medical issues #celiacs #complex ptsd #ptsd #overwhelmed #medical care #treatment #hospitals #selfie #selfiequeen #cutie pie #alt babe #crybaby #inkedbabe #piercingsandtattoos #girls with glasses

[big-gay-bird]

Me everytime my horrible GI systems traps me on the toliet for hours:

“Oh oh evacuate the bowels

(Oh, oh) I'm infected by something

(Oh, oh) stop this shit is killing me

Hey Mr. Tummy could you cut me just a little slack please “

#literal shit posting #unsanitary #celiacs #IBS #POTS #MCAS #spoonie #chronic illness #disabled #yes it’s not even 6am on a Sunday #and I am trying so hard not to hurl #send help

[a-birdhorse]

As someone with celiacs, trying to do any kind of gluten free baking feels like I’m defying God and capitalism at the same time. I want to scream, the world is collapsing, my head hurts, I think the police are at my door, there are no instructions, my head hurts, I’m so tired, everything costs twelve times as much as it would otherwise, there are a couple very specific people to blame, and one of those people is me for having the absolute gaul to be born into this world. It makes me want to break a window, but I’m too hungry right now and I will probably still be too hungry for the next several hours.

#celiacs #gluten free #gluten free baking #baking

[indagold-orchid]

Had a gluten free chocolate napoleon pastry. It was edible (surprised) and very delicious. I’m sad I can’t get this in the US 🥲

#Gluten free #gluten intolerance #celiacs #napoleon