the men and boys are innocent too.
we cry "the innocent women and children" to appeal to the masses, to try and force their sympathy, but the men and boys are innocent too.
I have seen sons crying out for their mothers, their fathers, their siblings. I have seen them break down at the loss of their families. I have seen them cling to their dead and grieve.
I have seen fathers cradle their dead children, seen them kiss their faces and hold their little hands. I have seen them faint with grief when asked to identify the dead. I have seen them carry their sons and daughters. I have seen them fasting to provide what little they can for their families.
I have seen men and boys digging through the rubble with just their bare hands, I have seen them comforting strangers, playing with children, rocking them, hushing them, even if the face of such imminent danger. I have seen them cry, seen them grieve, seen them break down into each other's arms, seen them be selfless, beyond selfless, becoming something I don't have a word for.
I have seen the men who are doctors refuse to leave their patients, even when they have no medicine or supplies to give them, even when they're threatened with bombings. I have seen fathers who have lost all their children pick orphans up into their arms and proclaim them their child so they are not alone. I have seen men and boys digging pets out of the rubble.
the men are innocent too. the men and boys are being hurt and killed too. the men and boys are grieving too. the men and boys are scared too. the men and boys are fighting to save their people too. the men and boys deserve to be fought for too.
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you know what boils my blood.
over the last 2 weeks, i've seen countless patients walk into my urgent care center, symptomatic for so many things, refusing to get tested for covid and flu, citing that they don't want to knowingly bring it to their holiday tables. i had a patient tell me, verbatim, "i don't want to test for covid, because i don't want to be the asshole who brings it on a plane."
i understand that - i understand that holidays are times where people look forward to meeting loved ones that they might only see once a year, or where they get a break from the hectic back and forth of their lives.
but here's the thing - whether they get tested or not, they will bring whatever they have to their holiday tables. it's pure recklessness to know that you're sick, and walk into someone else's house spreading the disease.
today, january 2, i saw 91 patients, many of them who have tested positive for covid and flu. many of these patients are the same ones who didn't want testing 3 days ago, until their events were over, and now, they will have to reach out to everyone they know to let them know that they were positive because they were showing symptoms well before their event.
the next week or two? we're going to see many, many more, all people with symptoms that started around christmas. these are the only two viruses we test for rapidly in our office, but they are potent and can be fatal in many people.
so here's why i wrote this post, and maybe it's a little late, but - if you care about your loved ones, please get tested if you know you're sick. it doesn't have to be at a clinic if you don't want it to, because the over-the-counter tests work just fine too (if you test within 5-7 days of symptom onset). just...please don't try to run from the knowledge that you might have covid, because immunocompromised people, elderly people, people with co-morbidities like asthma, pregnancy, diabetes, etc...many of them may not recover. and they may not be sitting at your holiday table in the future because of it.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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I truly, TRULY do not know how to say this, because the fact that I have to say it makes me feel like I am losing my grip on reality. But no, in the post-capitalistic anarchist utopia, I will not be relying on “autistic minecraft girlies” to be building inspectors because - and this may shock you - one of those occupations takes years of education in how to read and interpret hundreds of thousands of lines of regulations based on complicated math and physics that were the result of decades of tragedy and death, and the other one involves playing a children’s video game.
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