So I'm leaving work and something darts in front of me, maybe 10ft away, too fast for me to see what it is. Peek around the tree blocking my path and I see this
Just like... a whole ass hawk. Dude's gotta be about 1.5ft tall. Massive fucking bird. And it's just staring me straight in my soul like this, even as I try to move ahead. It didn't budge. And there's only this path back to my car unless I want to walk on a busy highway. So I have the option of Death By Raptor or Death By Truck.
So I walk in the poison ivy filled patch off the sidewalk. Guy still isn't moving. Still staring me directly in the eyes. And I do this thing when animals are behaving strangely where I'll talk to them, so I'm just like, "Hey, man. I don't know you. You don't know me. This feels really threatening. I'm just trying to get to my car, dude. Can I get some space please? You're a big fucking bird. I see those claws. You could kill me right now, but I'd appreciate if you didn't, ok?"
It didn't move until I was about 2ft away. Again: I'm as far from it as I can be without walking into the street. It clearly wasn't going to budge. I walk past, thing flies up (silent, btw. Scary) and lands on a brick wall a little further ahead
Anyway. Weird guy. Nearly shit my pants when I noticed a bird big enough to carry off a fully grown cat was just... there, staring me in the face, unwilling to move away from me, a human, something it should see as a threat. I watched behind me the whole rest of the way to my car, just in case this bird decided to help me shed this mortal coil. 10/10 experience. Super cool guy.
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I think so many people are so deeply alienated from themselves that they have no clue how to exercise their free will and autonomy. For some, this alienation runs so deep that they are afraid of their own autonomy and humanity. It is completely understandable why one would have those feelings, but it can be worrisome.
I want to help others who feel this way, so here are small things I have done to exercise my free will:
Add "guilty pleasure" songs to playlists and actually listen to them (I have a ton of late 1990s-early 2000s music I listen to now proudly that I never listened to in the past out of shame)
Getting the décor item, bath set, bed spread, ect. in the patterns you like, even if it's "childish" (I got a dinosaur-themed wastebasket from the kids' décor section and I adore it)
Taking a new route to get to a place you go to often
Eat dessert first
Celebrate well, and often
Collect things that are "odd" or don't seem like an "acceptable" thing to collect (somebody on my "for you" page collects dandelion crayola crayons and it was so cool!!!!!!)
Incorporate one new piece in an outfit you wear frequently (e.g., a new chain, a necklace, ribbons, bracelets, ect.). Challenge yourself to add onto the outfits if you feel up for it.
Sing along to songs without worrying that you sound "good" or your intonation is completely accurate
Read a book from a genre you weren't allowed to read as a kid (comics, thrillers, mysteries, anything!)
Walk without having a specific destination or goal
Pick up a new craft without expecting yourself to master it or to ever be "good" enough. Get your hands messy.
I don't want to shame anybody for not feeling as though they have free will or that they are exempt from exercising it. However, I wanted to give ideas so that you might read this list and find your own ways to express your intrinsic autonomy and will. You deserve to be a person, to feel alive, not just living. That is what our lives are for.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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Simon has always been confused on why you gift him toys. Sure, most of the gifts you gave him were some of the things he liked. Bourbon, masks, gloves, make up for him to smudge his eyes with, some daggers and knives. Things that we're useful for him, just him. But later, you gifted him a toy airplane. He makes a comment about it, saying he is not a child anymore and you were better off giving it to Johnny instead.
"No, this is specifically for you, take it."
When he gets to him room, he walks toward his trash can, opening it with the tip of his boot. He gives one more look at the toy, his mood souring before throwing it into the trash. He goes on about his day, training, signing paper work, drills. Doing anything to ignore the pain stinging memories that the toy brought back. Emotions that were buried thousands of feet deep it could reach hell itself. Later, he lies awake in bed, staring at the ceiling, avoiding looking at the cylinder shape that's calling for him in his peripheral.
Fuck.
He pulls the covers off vigorously and stomps over to the trash can. He is standing over it like he's trying to intimidate it, as if it was an enemy he's trying to get rid of in battle. To anyone else, the scene would look comical.
He sighs to himself and reaches down to take out the toy he so cruelly threw away. He sets it on his desk and quickly walks toward his bed, facing away from his desk.
The next day, he wakes up feeling different. He swears he sees his room more vibrant, more lively. That energy follows him through out the day, having his other teammates notice his rather bright mood.
You catch him in the hallway. Pulling him aside to ask him about the paper work you left at his desk this morning. Of course, he notices the way you smile brightly, more so than usual. But he notices that you're not looking at him. More like looking at something next to him.
"What's got you so cheery?"
You turn to look up at him, feeling a bit embarrassed.
"I just..." You take a quick glance at the spot next to him, before bringing your eyes back upon his.
"I just hope you liked your gift." The same bright smile appearing on your face.
He stares at you, examining your words. Your expression.
You think you see his eyes crinkle a bit.
"Yea,"
"I liked it."
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