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#is it cerebral palsy or fibromyalgia
brightlotusmoon · 2 years
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Friend Steph:
"A stereotype of autistic people, and a compliment I get fairly often, is "you don't care what others think." On one level I think this is accurate for me, but I also think it misses some distinctions. One is relative safety, as I've mentioned before. Many marginalized people are operating under conditions where their appearance and behavior are heavily and violently policed. Related is my embodiment not being able to pass for nondisabled and my consequent approach not to mask. (I'm still not sure whether this is a conscious choice or an inevitability or both)
But I think the other distinction is not defining "others." And this is what's been a work in progress for me. When a decision affects just me, I'm pretty good at just doing what I want/need, because no one else's opinion directly matters. So I eat and wear what I want, and I engage with my deep loves. But when others are involved, and especially in questions of ethics, I'm deeply concerned with what others think and how what I do affects them. I have definitely made mistakes and/or harmed others, so this is not to say that thinking or worrying about ethics is the same thing as being ethical, but my point is that I do think about it deeply. So I do care what some others think in some situations. It's not a blanket thing.
The aspect that's been historically hardest for people supporting me to grasp is that in some situations I notice and weigh how others will be affected against my own needs or wants and still decide to do the thing I need or want. An example is how I was told as a kid that wearing headphones to large family gatherings makes me look rude. This might be the case, but not wearing headphones has a high likelihood of causing me pain and/or sensory overload that makes engaging very difficult. That can also look rude. So I often opt to wear headphones. I think some people, particularly those raised to prioritize others' thoughts over theirs, assume I will take "but others might think..." as a command or a full sentence, and I don't. I wonder if that quality is what people see in some autistics."
Friend Kris:
"I've written about this in my work on media sensory curation. We see the headphones and think "rude" but the headphones may be what allows the child to spend time with the family instead of opting out altogether. A good portion of our pain comes from completely inaccurate assumptions about what's in other people's heads."
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gr8rainbowpunk · 2 months
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Chronic pain syndromes really have people doing the weirdest shit to be in 1% less pain
“why are you sleeping on a blanket on the floor”
“Because laying on the floor made my back hurt slightly less and I couldn’t sleep anywhere else cause it hurt too much”
Feel free to add your own
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4spooniesupport · 2 months
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I know that sometimes having a chronic illness or disability can be really lonely. That's why I created my brand new forum. Come check it out and find out that you are NOT alone!
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angeliqueshadows · 3 days
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So, my appeal finally worked and staff took the explicit label off my blog. I can have a profile pic again and maybe my posts will get traction now.
Please go look at my art. It means so much to me! Please and thank you. Love yall! Now that I’m not being punished by the site I’ll def be back here with more regularity.
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chroniccoolness · 1 year
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positivity post for physically disabled people :] if you are/have:
d/Deaf/HOH
blind/visually impaired
an amputee
ME/CFS
fibromyalgia
POTS
multiple sclerosis
SCI
cerebral palsy
arthritis
EDS or h/EDS
unlabeled chronic pain or fatigue
cystic fibriosis
a mobility aid user
or any other physical disability i missed with my poor memory and limited knowledge
i hope you have a very very good day :]
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Disability Swag Summit 2!!
The Swag Summit is back!
Now with some improvements.
I’ve added different categories to display and represent a wider array of characters and disabilities throughout the competition.
Also, since my goal is representation, you can submit any character with disabilities as major or “minor” as you want.
Also, head canons and coding are allowed, just mark them as such in the form.
The categories go as follows:
Motor
Here go characters with movement disabilities, like paralysis, missing a limb, or not being able to coordinate your body. Here go people with club foot, Parkinson’s, flat feet, dyspraxia, tic related disabilities, cerebral palsy, paraplegia, amputees, mobility aid users, etc.
Visceral
Here go characters with disabilities related to their internal organs, endocrine system, immune system, amongst other systems inside of your body. Disabilities in this category may include asthma, autoimmune disorders, allergies, chronic pain, diabetes, PCOS, fibromyalgia, IBS, skin conditions, amongst others.
Sensory
Here go characters with disabilities related to their senses, be it sight (blindness, colour blindness, cataracts, astigmatism, photosensitivity, etc), touch/pain (CIPA, Hyposthesia, Dysesthesia, etc.), hearing (deafness, being hard of hearing, etc), smell (anosmia, phantosmia, etc), taste (Ageusia, Hypogeusia, etc) or a combination of different senses (like synesthesia).
Speech
Pretty straight forward, disabilities related to speech, be it selective mutism, speech impediments, full on mutism or other speech related disabilities.
Physical differences
Catch all term for people who were born or developed some sort of physical difference. Idk if it counts as a disability, but we’re looking to represent as many people as possible here so. Here go people who are missing limbs, visible organs or pretty much any body part, people who use prosthetics, people with extra body parts (that are actually not normally supposed to be there, don’t fill this category with bug people and aliens) people with deformities, scars, conjoined twins, little people, people with gigantism, etc.
Neurodivergent
Since different types of Neurodivergencies overlap so much, I feel like separating them would make my job 10 times more difficult, so I decided to lump together Cognitive, Info-processing, Psycosocial, Learning, and other mental disabilities. Here go characters with Autism, Dementia, DID, Schizophrenia, brain damage, PTSD, OCD, Tourette’s, dyslexia, etc.
Other
Those who do not fit under other categories, be it because I forgot, because it’s not really categorizable or because it’s a fantasy disability (if the fantasy disability is close enough to one of the other categories, put it there too for good measure).
And finally
Rules!
1- No real people. Live action characters are fine, but I feel kinda uncomfortable putting actual real living (or historical) human beings here. Maybe you can submit a disabled real animal if you want, but no people.
2- Preferably positive or neutral representation, please. As in, I rather not see blatantly ableist media represented here, there’s better representation out there, but if you really have to, I guess do whatever you want.
3- Be civil. This is for fun and not to be taken seriously. If you manage to spark drama or harassment out of this silly and fun competition, you are going to the dungeon.
4- Don’t make submissions in the asks. The asks are for questions and propaganda, make your submissions in the form.
5- Propaganda is allowed and highly encouraged! Either share it in the asks, at @eddies-disability-swag-blog or tag it as #disability swag summit
6- Should go without saying, but, like, bigotry is cringe, so, like, don’t do it?
Anyways, here’s the form! Submit away!
The Form will close on December 25 (May be earlier or later depending on the number of submissions), so make sure to submit your blorbos by then!
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cripplecharacters · 15 days
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I want to have the character be (physically) disabled, but still physically active. Is there any way I can write this?
Hi! I am trying to write a action based series, but I want to give one of the main (teenage) characters a disability that affects their movement.
I want the character to be physically active, maybe a martial artist, but I want to have them be disabled as well, in a way that actually affects them and the story (not just cosmetically disabling them, essentially)
The story isn’t supposed to be centred around this, and I don’t want to use it as a “punishment” or “cure” it- I want it to be something that have already adapted to.
When I search up disabled athletes to find stories/ references for this character, it’s all missing limbs, which is not what I am going for with this character
Do you have anything that can help me?
Hello, anon - Something to start with is what do you mean by "mobility related disability", as there are a lot of things that could go under that category. I would recommend thinking more of what you want - something more dynamic or static, something acquired (whether through injury or illness) or something from birth, or even something genetic or hereditary that was triggered or got worse later in life? Do you want something that gets worse as time goes by, or something that won't continue to progress?
That being said and considered, have you considered a dynamic disability? A dynamic disability is a disability that varies in severity. It may be something that "flares" one day and is less severe potentially another day. An example is arthritis or often fibromyalgia. The disability doesn't disappear day to day, but the use of mobility aids or other disability aids for example may differ from day to day. Some are progressive and some are static, and it can be acquired, from birth, or a combination.
A thing to keep in mind for dynamic disability that many people talk about in these spaces is borrowing energy. You may have a good day where you push to do more, but this could lead to the next day having more severe symptoms.
Here's a link, for example, about martial arts for people with arthritis.
Another suggestion that I always like to add is Cerebral Palsy! There are a variety of ways the disorder can affect someone, from more severe to more mild, and people can adapt in really interesting ways. Here is a great link about a martial artist who adapts for his cerebral palsy and teaches others.
If anyone has any other suggestions or experiences, let us know in the replies or comments!
-Mod Bert
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crippled-peeper · 10 months
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Do u know what the term is for some who can walk most of the time but it's extremely tiring and painful but there 40% of the time wen they struggle to walk idk
Also who is allowed to follow the cripple punk tag can anyone support that and reblog that stuff or no?
Everyone can view/reblog/engage with cripplepunk content so long as you’re respectful and the OP hasn’t specified it’s for folks with cerebral palsy only for folks in wheelchairs or something like that
You can call yourself physically disabled if you want, you can call yourself a part-time mobility-aid user or an ambulatory mobility aid user or just a mobility aid user (if you use one. If you don’t I recommend trying one)
There’s no like… threshold you have to meet to belong in this ‘cripplepunk’ space. Just that you consider yourself physically disabled and that you’re not only there to perpetuate mainstream ableism into a somewhat insular online community
You don’t have to be quadriplegic or missing limbs or anything. The OG creator of the community had fibromyalgia for example 🖤🤝
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hi posting about my project sekai ocs
ok so their group name is Brighter*Days and they're a group of disabled future idols!
Makoto:
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he/they
cis-ish nby gay guy
Deaf, chronic pain (suspected fibromyalgia)
leader of the group
silver hair and eyes
smart and chill
autistic, OCD
Kamiyama High School, class 2-C
Chizuru:
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they/neos
nonbinary
diplegic ataxic cerebral palsy, manual wheelchair user
gold eyes, light-medium brown hair
sweet and shy
semiverbal autistic (uses AAC except to sing), ADHD
mixed black+japanese
Miya Girls', class 2-C
Yuri:
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she/love/💕
trans lesbian
hEDS, POTS, MCAS, cane user
hot pink eyes, split colored light pink/light blue hair
outgoing and affectionate
ADHD, HPD
Kamiyama High, class 2-A
Haruki:
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any pronouns
bisexual trans guy
VEDS, crutches+rollator user
brown eyes, red hair
moody and closed off
autistic, BPD
Kamiyama High, class 2-B
their sekai is the Playground Sekai, which is owned exclusively by Haruki. it's an old, dilapidated playground that is formed shortly after Haruki almost dies and is diagnosed with VEDS. Haruki shuts off everyone around him and pulls a Mafuyu (disappears into sekai for a while) before being found by his friends.
alt text will be added to images later i am so tired
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bunnywip · 5 months
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𝘼-𝙕 𝙇𝙄𝙎𝙏 𝙊𝙁 𝘿𝙄𝙎𝙀𝘼𝙎𝙀𝙎/𝙄𝙇𝙇𝙉𝙀𝙎𝙎𝙀𝙎 𝙁𝙊𝙍 𝙎𝙄𝘾𝙆𝙁𝙄𝘾/𝙒𝙃𝙐𝙈𝙋
— A
Anemia.
Adenomyosis.
Asthma.
Arterial thrombosis.
Allergies.
Anxiety.
Angel toxicosis ( fictional ).
Acne.
Anorexia nervosa.
Anthrax.
Atma virus ( fictional ).
ADHD.
Agoraphobia.
Astrocytoma.
AIDS.
— B
Breast cancer.
Bunions.
Borderline personality disorder.
Botulism.
Barrett's esophagus.
Bowel polyps.
Brucellosis.
Bipolar disorder.
Bronchitis.
Bacterial vaginosis.
Binge eating disorder.
— C
Crohn's disease.
Conjunctivitis.
Coronavirus disease.
Coeliac disease.
Chronic migranes.
Coup.
Cushing syndrome.
Cystic fibrosis.
Cellulitis.
Coma.
Cooties  ( fictional ).
COPD.
Chickenpox.
Cholera.
Cerebral palsy.
Chlamydia.
Constipation.
Cancer.
Common cold.
Chronic pain.
— D
Diabetes.
Dyslexia.
Dissociative identify disorder.
Dengue fever.
Delirium.
Deep vein thrombosis.
Dementia.
Dysthimia.
Diphtheria.
Diarrhoea.
Disruptive mood dysregulation disorder.
Dyspraxia.
Dehydration.
— E
Ebola.
Endometriosis.
Epilepsy.
E-coli.
Ectopic pregnancy.
Enuresis.
Erectile dysfunction.
Exzema.
— F
Fusobacterium infection.
Filariasis.
Fibromyalgia.
Fascioliasis.
Fever.
Food poisoning.
Fatal familial insomnia.
— G
Gonorrhoea.
Ganser syndrome.
Gas gangrene.
Giardiasis.
Gastroesophageal reflux disease.
Gall stones.
Glandular fever.
Greyscale ( fictional ).
Glanders.
— H
Hookworm infection.
Hand, foot and mouth disease.
Hypoglycaemia.
Herpes.
Headache.
Hanahaki disease ( fictional ).
Hyperhidrosis.
Heat stroke.
Heat exhaustion.
Heart failure.
High blood pressure.
Human papillomavirus infection.
Hypersomnia.
HIV.
Heart failure.
Hay fever.
Hepatitis.
Hemorrhoids.
— I
Influenza.
Iron deficiency anemia.
Indigestion.
Inflammatory bowel disease.
Insomnia.
Irritable bowel syndrome.
Intercranial hypertension.
Impetigo.
— K
Keratitis.
Kidney stones.
Kidney infection.
Kawasaki disease.
Kaposi's sarcoma.
— L
Lyme disease.
Lassa fever.
Low blood pressure.
Lupus.
Lactose intolerance.
Lymphatic filariasis.
Leprosy.
— M
Measles.
Mad cow disease.
Mumps.
Major depressive disorder.
Malaria.
Malnutrition.
Motor neurone disease.
Mutism.
Mouth ulcer.
Monkeypox.
Multiple sclerosis.
Meningitis.
Menopause.
Mycetoma.
— N
Norovirus.
Nipah virus infection.
Narcolepsy.
Nosebleed.
Nocardiosis.
— O
Obsessive-compulsive disorder.
Osteoporosis.
Ovarian cyst.
Overactive thyroid.
Oral thrush.
Otitis externa.
— P
Pancreatic cancer.
Pneumonia.
Pelvic inflammatory disease.
PICA.
Premenstrual dysphoric disorder.
Psoriasis.
Parkinson's disease.
Panic disorder.
Polycystic ovarian syndrome.
Plague.
Postpartum depression.
Pediculosis capitis.
Psychosis.
Post-traumatic stress disorder.
— Q
Q fever.
Quintan fever.
— R
Rubella.
Rabbit fever.
Rotavirus infection.
Ringworm.
Restless legs syndrome.
Rhinovirus infection.
Rosacea.
Relapsing fever.
Rheumatoid arthritis.
Rabies.
— S
Shingles.
Sore throat.
Stutter.
Separation anxiety disorder.
Smallpox.
Scoliosis.
Septic shock.
Shigellosis.
Sepsis.
Social anxiety disorder.
Stroke.
Scarlet fever.
Schizophrenia.
Sleep apnea.
Sun burn.
Syphilis.
Sickle cell disease.
Scabies.
Selective mutism.
Salmonella.
Sensory processing disorder.
— T
Thyroid cancer.
Tuberculosis.
Thirst.
Trichuriasis.
Tinea pedis.
Tourette's syndrome.
Trachoma.
Tetanus.
Toxic shock syndrome.
Tinnitus.
Thyroid disease.
Typhus fever.
Tonsillitis.
Thrush.
— U
Urinary tract infection.
Underactive thyroid.
— V
Valley fever.
Vertigo.
Vomiting.
— W
White piedra.
Withdrawal.
Whooping cough.
West nile fever.
— X
Xerophthalmia.
— Y
Yersiniosis.
Yellow fever.
— Z
Zygomycosis.
Zika fever.
Zeaspora.
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brightlotusmoon · 2 years
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Mm. It's raining again.
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Fibromyalgia sometimes makes rain feel like donuts and screaming.
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Hiddisablgender
A gender related to having a hidden disability! This can be used as a standalone term, or it can be used in addition to other terms. It can also be used as a modifier by combining it with other identities (hiddisablgirl, hiddisablboy, hiddisablenby etc.)
This term is exclusive to people who have a hidden disability.
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Hi, since it’s still Disability Pride Month I wanted to coin something disability related! So I chose to coin a hidden disability term! A hidden disability is a disability that isn't visible to the average person; a disability that isn't extremely obvious or obvious at all to untrained, and especially, neurotypical and able-bodied people, such as Autism, ADHD, Dyslexia, Cerebral Palsy, Epilepsy, brain injuries and Fibromyalgia and more!
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elevator-to-mars · 1 month
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hey guys i’m here to push my Everyone I’m A Fictionkin Of Is Physically Disabled agenda (also kinlist reveal!!):
Yannick!Ricky — frederich’s ataxia, ehlers danlos, rumination syndrome, partially paralysed from the waist down, POTS, chronic pain, hearing loss (bros got a lot going on but same… there are two things im not projecting on)
Nina Rosario — Chronic pain & fatigue, haemophilia
Bobby Toti — arthiritis, hearing loss
Nat[ idfk their last name] — snapping scapular syndrome
Alex!Ricky Potts — cerebral palsy
Sav Potts — ehlers danlos, hearing loss, frederich’s ataxia
Vincent Lin — Fibromyalgia, FND
Quincy Martin — Chronic Fatigue
Leaf Coneybear — hearing loss
Jane Doe — Epilepsy
Ezra Lamb — DCD
Maddox Horowitz — NEAD
Dr. Sweets — Ehlers Danlos
Jack Hodgins — Paralysis (canon !!)
Constance Blackwood — Chronic Fatigue
Zooble — amputee
ATRD!Caine — vision loss
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tiggerific13 · 11 months
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Hi friends! I multiply disabled. Some of stuff me have nonverbal autism, cerebral palsy, IDD, aphasia, epilepsy, Blind, ME/CFS, fibromyalgia, celiac, and more. I have lots meds and lots medical equipment. My fav my AAC and my feeding tube with KetoVie 4:1 peptide formula and my Rifton Pacer gait trainer. Me maybe look and act and type much same child because much disabilities but me adult. Sometimes I have help with words and sometimes my words more bad because seizure or something. My brain and body have good days and bad days. Please nice here my safe space.
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astral-aromance · 2 years
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It is July, which is disability pride-month! So here are 12 multi-fandom physical, sensory and mental disability hc's, both visual and invisual!
Maedhros from the Silmarillion is canonically an amputee, I headcanon him as being autistic and having PTSD, fibromyalgia and Chronic Fatigue Syndrome, he's also depressed
Yuri Plisetsky from Yuri on Ice has Hypermobile Ehlers-Danlos Syndrome and ADHD
Legolas from the Lord of the Rings has dyslexia and Cerebral Palsy
Atsushi Murasakibara from Kuroko's Basketball is autistic and has ARFID and Marfan's. He also has chronic pain due his frame and overworking at a young age. He is also depressed.
Yuuri Katsuki from Yuri on Ice has anxiety, panic disorder and binge eating disorder (these are not directly stated, but likely canon) I also hc him as autistic and having chronic migraines
Midorima Shintaro from Kuroko's Basketball has sever visual impairment and has autism and OCD. He also suffers from depression.
Celegorm from the Silmarillion has ADHD and Ablinism, which causes visual impairment, but this is limited given that elves have much better eyesight to start with, this means he is not legally blind, but very light sensitive and often relies on sound rather than sight while hunting.
Fëanor from the Silmarillion has autism, PTSD, depression and OCD
Akashi Seijurou from Kuroko's Basketball has DID and BPD
Amras from the Silmarillion is autistic and has selective mutism
Maeglin from the Silmarillion is autistic and has BPD and Solar Urticaria, he is also visually impaired
Mila Babicheva from Yuri on Ice is deaf and wears hearing aids, she also has G-HSD
Feel free to add your own!
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(Friendly reminder to use this flag, as other versions are known to have caused seizures!)
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finniestoncrane · 1 year
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good afternoon finnie spooky anon again! im so glad you’re having so much fun with the requests you’re getting and thank you for all the nice things you said! im having a good day im hanging out with my bro who i don’t get to see often and we are waiting for him to get a tattoo!
which now it’s got me thinking about getting one myself but im unsure if i should because my pain tolerance is so low especially since i have cerebral palsy and scoliosis so idk how my body will react to that but man am i thinking 🤔
anyways I hope you continue to have a good day and I’ll try to keep interacting regularly!!
- 🎃💊
oh anon i have a horrible low pain threshold, i thought for a while i had that... thing... fibromyalgia, or at least a very very mild form of it because a colleague who suffers from it shared my symptoms BUT i think it might be the autism so who knows ANYWAY i used numbing cream and it worked a treat but the vibrations were still kinda weird...
i recommend a little line one to start with though! <3 but even if you don't get one, it's so much fun to imagine what you might go for! 💚
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