#chronicallyillstudent | Explore Tumblr Posts and Blogs

hannahcrazyhawk · 4 years

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Dear able-bodied people,

• Stop asking us if we're better yet.

• Please READ the definition of the word chronic.

• Stop pushing your "miracle cures" on us.

• STOP, for the love of fuck, telling us to do more Yoga.

• And if one more person tells me I'm not trying hard enough and to think positively, I will fling them so deep into the sun that they will start fusing hydrogen in their assholes!!!

@spooniestrong @taythepteradctyl

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420spoons · 6 years

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Chronic Illness Problems:

Me: "I have an illness that will never go away."

Friend: "I hope you get better."

Me: "Thank you (were you even listening??)"

😣

#420spoons #chronicallyillstudent #chronicillness #fibro #pain #spoonie #spoonie life #spooniestrong

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jp-journals · 6 years

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New post! Since it is that time when everyone is returning to school, college and university I wanted to share my study tips as a chronically ill student. There has been a lot of trial and error over the last few years but I think I have finally found some good study techniques that work for my health. It is really difficult to be a student and be chronically unwell so I hope this helps! Follow the links below for the post and my instagram page! https://www.instagram.com/p/Bn58LP-D4qD/?taken-by=jp_journals https://jpjournals.com/2018/09/19/7-study-tips-for-chronically-ill-students/

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chronicallyillvetstudent · 6 years

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This endless circle of staying up all night worrying and sleeping all day due to exhaustion is not working out body!! There is nothing healthy about having the energy to worry about the immense amount of things I need to do before going back to St. Kitts at THREE IN THE MORNING. Then, when it comes time to actually do one of those tasks, like calling the doctor regarding medications, my throat tightens, I get hot flashes, and I can’t breath. What gives?! What is it about going back to finish my degree at a school that I love that scares me? I was so excited for months, but now it’s creeping closer and I’m digging my heels in the sand in fear. What if I relapse? What if I can’t do it? What if I don’t make any new friends? What if my old friends/classmates forget me? (One already has and it’s incredibly heartbreaking). What about all the debt? (Mine and my fathers! He is working to support my mother, sister, and I through our Lyme treatment. I’m talking thousands of dollars a month.). What if I fail him and mom and get sicker and have to come home again ? Failure. I’m terrified of that word and I hope somehow I can get over this rut and back into determination mode, cuz this current mode is just exhausting and sad! In other news, I’m so proud of my green semester friends heading out to new pastures and doing their clinicals, and so unbelievably proud of my old purple classmates who are about to start their last semester at RUSVM! 💜💚 you got this! #lymedisease #lymedontkillmyvibe #lymewarrior #lymefighter #survivor #lymesurvivor #remissionispossible #nevergiveup #chronicillness #chronicpain #chroniclyme #vetstudent #chronicallyillstudent #vetmed #rusvm

#chronicillness #lymefighter #chroniclyme #survivor #vetmed #rusvm #lymesurvivor #lymewarrior #lymedisease #lymedontkillmyvibe #chronicallyillstudent #chronicpain #vetstudent #nevergiveup #remissionispossible

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hannahcrazyhawk · 4 years

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Please read, share, and donate (if you are able) to my new Go Fund Me. Thank you so much!

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hannahcrazyhawk · 3 years

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Well, my cardiologist called me yesterday. Both my kidneys are failing and I need surgery as soon as possible. I am in shock.

And I am very angry. I've had alarmingly high blood pressure since I was fifteen years old.

My blood pressure has been very resistant to treatment. But every single doctor kept throwing a different pill at it.

It took months of convincing and another six months of waiting to see a cardiologist. Concerned, my cardiologist asked why I've never had a renal ultrasound. Well, I told him, "because I'm a low income, marginalized, woman in a country that could care less about her."

I had my tests done day before yesterday. My cardiologist called me yesterday morning. Kidney failure would account for my high blood pressure, anemia, and low vitamin D. And I'm sure a hell of a lot more.

I have no idea how I will get through this alone. I suppose the same way I've been forced to do everything else alone. And when I say alone, I mean - with no one here to give me a fucking hug.

Here's to another trip to the darkness. Batten down the hatches.

Update: I just found this on my porch. I love being a McNair Scholar. They have been so supportive and kind. 💐

#chronicallyillstudent #kidneydiseasewarrior #kidneyfailure #spooniewarrior #spoonielife #surgery #sickandtiredofbeingsickandtired #spooniestrong

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hannahcrazyhawk · 3 years

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My $8,000.00 chemotherapy time. 😑 My battle gear: 🎧 Headphones by @bose 🦅Hawk t-shirt by @beaksandtalons 💍Athena ring by @greekgoddessjewelry #spoonies #strongaf #autoimmunedisease #warriorwoman #chronicallyillwarrior #crohns #spoonie #paintudes #autoimmune #rheumatoidarthritis #infusion #autoimmunewarrior #paintudes #spoonielife #chronicallyillartist #chemotherapytreatmeat #hospitalselfie #bohemianjewelry #autoimmuneprotocol #hospitals #chronicallyillstudent #falconer #chemotherapysideeffects #chemotherapy #HS #spoonieproblems #chemotherapysucks #chronicallyill #spooniestrong www.hannahcrazyhawk.com (at Oregon Medical group, Infusion Center) https://www.instagram.com/p/CLVFe80l3f3/?igshid=zuizflcq2xa2

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hannahcrazyhawk · 3 years

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Skål. I've successfully completed another orbit around our local star. It's been a rough day. I had kind friends drop off some good food. I'm so, so lonely. Last night I dropped a full 40oz. @HydroFlask on edge, on the top of my foot/toes. I couldn't figure out all night and day today why it felt like my foot was being crushed. I exist in a high state of perpetual pain - so I forgot. 🤕 The top of my foot/toes are broken. It's been a rough birthday and I'm smiling to make everyone feel better - the true Eccedentesiast. The chronically ill are masters of disguise. This is how we survive, most people can't handle/understand (or don't want to) hear the harsh reality of our daily suffering. And yes, someone told me that I was too beautiful to be in so much pain. Yes, true facts. 🤦‍♀️ #spoonies #strongaf #autoimmunedisease #warriorwoman #chronicallyillwarrior #crohns #spoonie #paintudes #autoimmune #rheumatoidarthritis #suicideawarness #autoimmunewarrior #paintudes #spoonielife #chronicallyillartist #chemotherapytreatmeat #quantumphysics #autoimmuneprotocol #hearingimpaired #suicidial #chronicallyillstudent #menieresdisease #chemotherapysideeffects #chemotherapy #HS #spoonieproblems #dying #chemotherapysucks #chronicallyill #spooniestrong #bluelightglasses www.hannahcrazyhawk.com (at Eugene, Oregon) https://www.instagram.com/p/COCCmrllnJT/?igshid=10gufwy5szubk

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hannahcrazyhawk · 3 years

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I'm so tired of living in this spiteful flesh prison. 😞 #ptsd #imadethat #trigeminalneuralgia #rheumatoidarthritis #crohnsdisease #trigeminalneuralgia #chronicillnesswarrior #chronicpain #selfcarematters #ptsdawareness #anxietyhelp #anxietyattack #chronicallyillstudent #restnow #mentalhealthadvocate #migraine #menieresdisease #Paintudes #quoteofday #notalldisabilitiesarevisible #spoonies #prisoner #butyoudontlooksick #fibrowarrior #hearingimpaired #strongaf #wordsofencouragement #erythromelalgia www.hannahcrazyhawk.com (at Eugene, Oregon) https://www.instagram.com/p/CNyE_2DlACj/?igshid=12j8xd37jscg6

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hannahcrazyhawk · 3 years

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Endurance. #spoonies #strongaf #autoimmunedisease #infusion #chronicallyillwarrior #crohns #spoonie #paintudes #autoimmune #rheumatoidarthritis #infusiontherapy #autoimmunewarrior #paintudes #spoonielife #chronicallyillartist #chemotherapytreatmeat #hospitalselfie #bohemianjewelry #autoimmuneprotocol #hospitals #chronicallyillstudent #sadness #chemotherapysideeffects #chemotherapy #aloneforever #spoonieproblems #chemotherapysucks #chronicallyill #spooniestrong www.hannahcrazyhawk.com (at Regional Infusion Center) https://www.instagram.com/p/CNs3-XAF8Ae/?igshid=t0mvhx0rqigm

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hannahcrazyhawk · 3 years

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"A smooth sea never made a skilled sailor." - Franklin D. Roosevelt ⛵ #spoonielife #chronicfatigue #yourworthisnotmeasuredbyyourproductivity #ptsd #imadethat #rheumatoidarthritis #crohnsdisease #trigeminalneuralgia #chronicillnesswarrior #chronicpain #selfcarematters #ptsdawareness #anxietyhelp #anxietyattack #chronicallyillstudent #restnow #mentalhealthadvocate #migraine #positivityquotes #Paintudes #quoteofday #notalldisabilitiesarevisible #spoonies #flowerstyle #butyoudontlooksick #fibrowarrior #fibromialgia #sailinglife #strongaf #wordsofencouragement www.hannahcrazyhawk.com (at Eugene, Oregon) https://www.instagram.com/p/CKXvPYZFBYH/?igshid=l69a58duzisz

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hannahcrazyhawk · 4 years

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“The only reason a warrior is alive is to fight, and the only reason a warrior fights is to win” - Miyamoto Musashi #spoonielife #chronicfatigue #imadethat #rheumatoidarthritis #crohnsdisease #trigeminalneuralgia #chronicillnesswarrior #chronicpain #selfcarematters #ptsdawareness #anxietyhelp #anxietyattack #chronicallyillstudent #loveposts #goodquote #migraine #positivityquotes #painrelief #quoteofday #notalldisabilitiesarevisible #spoonies #fibrowarrior #fibromialgia #mentalhealthwarrior #strongaf #martialartslife #selfdefense #cancerfighter #blackandwhitepic #miyamotomusashi www.hannahcrazyhawk.com (at Eugene, Oregon) https://www.instagram.com/p/CCJz42zFRZU/?igshid=1jna0oi5wnaq1

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hannahcrazyhawk · 4 years

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Amazon Influencer

I feel it's time to share my news. I am now officially an Amazon Influencer. My page is ready for traffic. Please take a look at my endorsements: books, home decor, art supplies, Spoonie Must Haves, Falconry Books, appliances, and a lot more awesome stuff I've found helpful.

https://www.amazon.com/shop/hannahcrazyhawk

🌻💜🌻

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hannahcrazyhawk · 4 years

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You are safe. 🧘‍♀️ This is a mantra I speak aloud many times a day. Complex PTSD is insidious and constantly pulls me back to my trauma. I must make a conscious effort to combat that response with constant mindfulness. #spoonielife #chronicfatigue #yourworthisnotmeasuredbyyourproductivity #ptsd #imadethat #rheumatoidarthritis #crohnsdisease #trigeminalneuralgia #chronicillnesswarrior #chronicpain #selfcarematters #ptsdawareness #anxietyhelp #anxietyattack #chronicallyillstudent #restnow #mentalhealthadvocate #migraine #positivityquotes #Paintudes #quoteofday #notalldisabilitiesarevisible #spoonies #flowerstyle #butyoudontlooksick #fibrowarrior #fibromialgia #restday #strongaf #wordsofencouragement www.hannahcrazyhawk.com (at Eugene, Oregon) https://www.instagram.com/p/CGgB2BYlYVK/?igshid=eah10w1ah599

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hannahcrazyhawk · 4 years

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More good news from my hardwork:

The Facial Pain Research Foundation wrote about my experiences during COVID-19.

I am very proud of this and the words I spoke to the world. Please have a read and share:

💙🌍🧠🌍💙

@spooniestrong @taythepteradctyl @spoonieproblems

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hannahcrazyhawk · 3 years

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What you see: a woman smiling. Reality: a dying woman in excruciating pain in light blocking glasses who is only dressed well from her chemotherapy appointment. The chronically ill are masters of disguise. This is how we survive, most people can't handle/understand (or don't want to) hearing the harsh reality of our daily suffering. These blue light blocking glasses do help with my indoor photosensitivity. I would highly recommend them to anyone. @theraspecs #spoonies #strongaf #autoimmunedisease #warriorwoman #chronicallyillwarrior #crohns #spoonie #paintudes #autoimmune #rheumatoidarthritis #infusion #autoimmunewarrior #paintudes #spoonielife #chronicallyillartist #chemotherapytreatmeat #bohemianjewelry #autoimmuneprotocol #hearingimpaired #chronicallyillstudent #menieresdisease #chemotherapysideeffects #chemotherapy #HS #spoonieproblems #dying #chemotherapysucks #chronicallyill #spooniestrong #bluelightglasses www.hannahcrazyhawk.com (at Eugene, Oregon) https://www.instagram.com/p/CNNasqcFZQ9/?igshid=1b3jizlvrxw07

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