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#jean dominique bauby
sharry-arry-odd · 1 year
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A couple of lines or eight pages, a Middle Eastern stamp or a suburban postmark . . . I hoard all these letters like treasure. One day I hope to fasten them end to end in a half-mile streamer, to float in the wind like a banner raised to the glory of friendship. It will keep the vultures at bay.
The Diving Bell and the Butterfly, by Jean-Dominique Bauby
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escapeintothepages · 7 months
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“I need to feel strongly, to love and admire, just as desperately as I need to breathe.”
The Diving Bell and the Butterfly, Jean-Dominique Bauby
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dk-thrive · 1 year
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roses picked at dusk, the laziness of a rainy Sunday, a child crying himself to sleep
Other letters simply relate the small events that punctuate the passage of time: roses picked at dusk, the laziness of a rainy Sunday, a child crying himself to sleep. Capturing the moment, these small slices of life, these small gusts of happiness, move me more deeply than all the rest. A couple of lines or eight pages, a Middle Eastern stamp or a suburban postmark … I hoard all these letters like treasure. One day I hope to fasten them end to end in a half-mile streamer, to float in the wind like a banner raised to the glory of friendship.”
—  Jean-Dominique Bauby, The Diving Bell and the Butterfly (Vintage, March 6, 2008) (via Wait-What?)
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In Jean-Dominique Bauby’s book, The Diving Bell and the Butterfly, he offers some insight to how someone with locked-in syndrome may feel with people visiting them and conversing with themes :
Nervous visitors come most quickly to grief. They reel off the alphabet tonelessly, at top speed, jotting down letters almost at random; and then, seeing the meaningless result, exclaim, “I'm an idiot!" But in the final analysis, their anxiety gives me a chance to rest, for they take charge of the whole conversation, providing both questions and answers, and I am spared the task of holding up my end. Reticent people are much more difficult. If I ask them, "How are you?" they answer, "Fine," immediately putting the ball back in my court. With some, the alphabet becomes an artillery barrage, and I need to have two or three questions ready in advance in order not to be swamped. Meticulous people never go wrong: they scrupulously note down each letter and never seek to unravel the mystery of a sentence before it is complete. Nor would they dream of completing a single word for you. Unwilling to chance the smallest error, they will never take it upon themselves to provide the "room" that follows "mush," the "ic" that follows "atom," or the "nable" without which neither "intermi" nor "abomi" can exist. Such scrupulousness makes for laborious progress, but at least you avoid the misunderstandings in which impulsive visitors bog down when they neglect to verify their intuitions. Yet I understood the poetry of such mind games one day when, attempting to ask for my glasses (lunettes), I was asked what I wanted to do with the moon (lune).
What I’ve learned from this is that we need to be patient with others, especially those with limited abilities. And sometimes those with limited speech or those trying to rest in the hospital may prefer we just talk to them without asking open-ended questions.
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mesutbahtiyarolacak · 2 years
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Şimdi dönüp baktığımda
sanki tüm hayatım bu ucu ucuna kaçırdığım şeylerin bir listesi,
sonunu bildiğim
ama bir türlü kazanan tarafa oynayamadığım
bir yarış gibi geliyor….
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firstsentence · 3 months
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"In Hong Kong, I have a little trouble finding my way, for unlike many of my other destinations, this city is one I have never actually visited." 🍵
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bespectacled-bookwyrm · 4 months
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Starting the new year by reading The Diving-Bell and the Butterfly.
Memoirs aren't a genre I typically go for, but this one sounded so interesting that I had to give it a go.
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books-in-media · 1 year
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Emma Watson, (Twitter, March 18, 2014)
—The Diving Bell and the Butterfly, Jean-Dominique Bauby (1997)
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joshcockroft2 · 1 year
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The Diving-Bell and the Butterfly – Jean-Dominique Bauby 
27.10.2022
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sharry-arry-odd · 1 year
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I long to escape, but every time the chance arises, a leaden torpor prevents me from taking even a single step. I am petrified, mummified, vitrified. If just one door stands between me and freedom, I am incapable of opening it.
The Diving Bell and the Butterfly, by Jean-Dominique Bauby
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Not related to Animorphs, but as a psychologist, what are your thoughts on free will?
Don't worry, I'll make it about Animorphs!
Okay, so, there's this philosophical principle of free will that says there's a certain aspect of each individual human that's literally uncontrollable. Humans are too complex, too stubborn, and we will do our own thing. No drugs or sex or secret Satanic messages in rock 'n' roll can stop us from having opinions or believing things or pushing buttons marked "DO NOT PUSH". Having researched humans, having taught humans, having graded human-written essays about humans, I'm inclined to believe in that thing. We can't always detect the sources of our decisions, but by gum we'll make decisions anyway. Humans have the right to convince themselves the Earth is flat, and hundreds of them exercise that right every year.
But what about brainwashing and mind control?
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So the term "brainwash" originates from the American POWs in North Korea who spoke out in favor of communism. You look into those cases in more detail, and (contrary to what Martin Seligman and Donald Rumsfeld would like to believe) the primary method the Koreans used was offering the Americans candy and cigarettes, then asking them nicely to listen to lectures on Marx. That persuaded some people; the ones who weren't persuaded were told "record this video about your love for communism or we'll shoot you".
Later brainwashing research has found that cults use a combination of sleep deprivation, cognitive dissonance, financial abuse, blackmail, threats of losing all one's loved ones, and offers of perks in order to keep people. It's not so much that people believe believe Lore David Altman will save the world; it's that they've already given up everything toward the belief he might save the world and they can't possibly back down now or they'll lose all. Coercion and indoctrination are very scary and very real. Annihilating someone's personality and installing a new one, Winter Soldier style? Pure sci fi.
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So then, where does that leave the controllers?
Cassie argues in #28 that
No one, nothing can eliminate free will. Don't be ridiculous. Even with a yeerk in your head, you have free will. Not the will to do, but the will to think, to believe, to hope or love or whatever.
I'm like 99% inclined to agree with her. Again, if we're talking about reality, then I do agree. Oscar Wilde says he's free while chained to a treadmill. Victor Frankl says he's free while in a Nazi death camp. Jean-Dominique Bauby says he's free while unable to move any part of his body but his eyelids. Martin Pistorius says he's free while discussed as an object by people in the same room as him. I believe them. They would know.
But. If a yeerk can hear all of your thoughts and even control what you visualize or remember (#6), if a yeerk can physically harm you for thinking things it doesn't like (#10), if a yeerk can know your most private fantasies and hidden memories (#16), if a yeerk can change your personality by force (Visser)... then are controllers still free? Cassie, you and I might beg to differ. Heck, after both being in Mr. Tidwell's brain (#29) and being forcibly controlled by Aldrea way more than Aftran ever did (#34), Cassie might have a different opinion herself. I dunno.
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escapeintothepages · 10 months
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"I hoard all these letters like treasure. One day I hope to fasten them end to end in a half-mile streamer, to float in the wind like a banner raised to the glory of friendship."
The Diving Bell and the Butterfly, Jean-Dominique Bauby
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dk-thrive · 1 year
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Capturing the moment, these small slices of life, these small gusts of happiness, move me more deeply than all the rest.
Other letters simply relate the small events that punctuate the passage of time: roses picked at dusk, the laziness of a rainy Sunday, a child crying himself to sleep. Capturing the moment, these small slices of life, these small gusts of happiness, move me more deeply than all the rest. A couple of lines or eight pages, a Middle Eastern stamp or a suburban postmark … I hoard all these letters like treasure. One day I hope to fasten them end to end in a half-mile streamer, to float in the wind like a banner raised to the glory of friendship. — Jean-Dominique Bauby, The Diving Bell and the Butterfly (Vintage, March 6, 2008) (Via Alive on All Channels)
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cerisep0urrie · 7 months
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my to-read list of translated novels
the diving bell and the butterfly by jean-dominique bauby, translated by jeremy leggatt
night by elie wiesel, translated by marion wiesel
the diary of a young girl by anne frank, translated by susan massotty - in progress
the shadow of the wind by carlos ruiz zafón, translated by lucia graves
anna karenina by leo tolstoy, translated by richard pevear and larissa volokhonsky
the inferno by dante alighieri, translated by john ciardi
my brilliant friend by elena ferrante, translated by ann goldstein
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mesutbahtiyarolacak · 2 years
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Şimdi dönüp baktığımda sanki tüm hayatım bu ucu ucuna kaçırdığım şeylerin bir listesi, sonunu bildiğim ama bir türlü kazanan tarafa oynayamadığım bir yarış gibi geliyor.
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flavio-milani00 · 1 year
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Non mancava niente, eccetto me. Ero altrove.
Jean-Dominique Bauby - Lo scafandro e la farfalla
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