#just spoonie things

[epic-sorcerer]

ER docters @ me

#merlin #bbc merlin #merlin bbc #from my own little galaxy world #amplified musculoskeletal pain syndrome #just spoonie things

[auressea]

social scripts for freeing oneself..

mulling/ musing:

What Short and Easy response can I say to (well-intentioned) people who ask me Gender 101 questions

about my pronouns specifically

about pronouns in general

what does "non-binary" mean anyway?

I require a different flavour of response for the liberal 'allies' who are not actually.. but don't know that about themselves.

about how they've just figured out They/Them and how are they supposed to remember everyone's neo-pronouns

about how they've always 'felt that way to' and they don't need to make a big public change about it.

about.. it's SO HARD! for *insert reason*

You were 'XYZ' when I met you and now It's hard for me to 'see you' any other way...

Of course I support "X-type" people, I have a "Z-type" family!

ALL submissions and suggestions Received!

#gender troubles #the labour of educating others about your own axes of marginalisation #just queer things #just spoonie things #no spoons only knives #white liberals #wtf is gender #round up #colloboration #hey queer peers... #nonbinary #genderqueer

[theunapologeticallygaypirate]

150/2000 The short version is, I am on welfare, do not qualify for my province's Basic Income because my doctor does not believe I am "sick enough" for disability for more than a month at a time, and won't sign my disability papers long-term. My IBS is so bad I can barely do chores for a long period, which my family has turned into some kind of joke, and even though I spend all my time working freelance jobs online, I barely make enough to help make ends meet, and my mom ends up helping out a lot with laundry and money for my therapy.

Her attitude towards my chronic illness has gotten so bad it has now become abusive, and I need a way out, but I have no means to care for myself. The amount I am asking for would be a nest egg to put some distance between myself and my family, instead of feeling trapped because I can't live without their help.

Please donate if you are able, I know times are tough right now, and if you can't, please share this post <3

#ibs #irritable bowel syndrome #spoonie in need #spoonie #just spoonie things #chronic illness #need help #chronic pain #chronically ill #gerd #gastroesophageal reflux disease #spoonie stuff #spooniestrong #please donate #crowdfunding #our flag means death #need money

[i-call-me-clarence]

Thank you so so so much for the advice on how to deal with fibro!!! I really appreciate it!!! I am going to try out as much of that as I can asap. Um last question, if that's okay, should I be worried about any of the things you listed interacting badly?? Ik there can be outside stuff but just from that list?

Good question! I didn’t even think about that but I should’ve included it.

Okay so Benadryl and Kratom together could make you more tired. I’ve found one post just now that suggested it may even be fatal (I have no idea the doses of each they were taking but they had a serious drug problem, and as people take insane amounts of Kratom and Benadryl to get off other drugs I’m betting it was a lot of both. Also I can’t verify whether this post was genuine or not). I’ve personally taken benedryl and Kratom many many times and been fine, but I have a very high tolerance for Benadryl due to allergies (and now using it to numb my stomach) and I am very used to my level of Kratom. So mix at your own risk.

Don’t use arnicare or tigers balm or lidocaine patches with the TENS machine. You don’t want to numb an area and then electrocute it. Also you need the area your placing the electrodes on to be dry, tigers balm leaves a greasy gel film over the skin for a long while. Here is a site about the dos and don’t of TENS machines: https://www.nhs.uk/conditions/transcutaneous-electrical-nerve-stimulation-tens/

Don’t use a heating pad on an area you have numbed. Though I suggest a cloth heating pad filled with rice or whatever and different herbs that you microwave to get warm, both that and an electric heating pad can cause burns, even if you can’t feel them right away. If you’re numb then the chances of being burned are greater. Make sure to check your skin at least every fifteen minutes and consider disuse after 10-30 min. Using the heating pad for longer (30 min) tends to help more with chronic pain.

Green tea mixed with a stimulate dose of Kratom can have adverse effects. Both stimulate you which can lead to heart palpitations, excessive sweating, restlessness, paranoia, sense of doom. You would have to drink a lot of caffeine (green tea) to have this effect with the small stimulate dose of Kratom. Make sure you know how green tea and the stimulate dose of Kratom will affect you and mix in small doses and at your own risk. Personally I have never had any adverse side effects even after several cups of green tea and then adding Kratom (helps with fatigue quite a bit actually). Just know your body and take it slow.

Don’t mix arnicare, tigers balm, and lidocaine. I’ve never done it but I know mixing topical gels can irritate the skin.

Cannabis and Kratom can interact by increasing the sedating effects and a ‘high’ feeling. I wouldn’t suggest edibles and Kratom unless you really know how it affects you and start at low doses of each. Kratom in high doses (higher than pain relief dose) can cause a high feeling. Mixing with Cannabis can be crazy. Personally I do this because my fibro is out of control. Just used it (edibles and Kratom) an hour ago to kill the flare up that happened due to the eclipse (idk why I’m guessing it has something to do with sundowning and my body being confused. How are you doing btw? Did you flare up too?) ALSO edibles can cause you to trip. Like an acid trip. I did not know this until my QPR partner experienced it first hand (he did take 200mg second time ever doing edibles, (and the first ones were weak)and fourth time ever using cannabis products, before had been flower and he was fine. So perhaps the dose played a part).

Benadryl and cannabis products can increase the drowsy effect of both products. Unless you’re one of the unlucky ones where cannabis causes paranoia, and the Benadryl does the weird thing where it stimulates you instead of puts you to sleep (rare but happens, very annoying happened to me last night and caused horrible restless legs) (btw Benadryl can cause restless legs), then the paranoia will be much worse.

Don’t exercise with a lidocaine patch on or while you’re still feeling the effects of it. You could easily injure yourself.

I don’t know if various mushrooms interact with Kratom, Benadryl, cannabis or even green tea. I bet it’s a case by case basis. Make sure to do your research before combining.

All that said this is only the advice from a dude on the internet who also deals with chronic pain. My experiences may not hold true for you. Make sure to do your research before combining or using any of the things I have suggested. I can only do my best in trying to warn you of things, but I may very well have missed something. If you want to talk more you can send another ask or say hi in my dms. Always ready to give another spoonie advice or an ear to listen.

#asks and answers #chronic pain #chronic pain relief #fibromyalgia #just spoonie things

[hartshorn-and-isinglass]

I think I scrambled my brains a bit with not enough sleep last night. I realized today that maybe the Irish/Scottish stuff is my path forward while I figure out my right-hand situation but I do not have the brain-spoons to plan this out properly right now nor do I have the wherewithal to start writing up the accompaniment I want for all these tunes.

I did discover a bunch of Scottish stuff the Muse did tho and my God, just... goals TBH. That balance of classical meets folk that so many people cannot quite do is just... hnnng. Gorgeous.

Meanwhile... I was so sure I was gonna get Dorico as my upgrade software but now that I am 500% done with the major corporate software ecosystems I think I'm just gonna look for a Linux DAW for using VSTs and keep using Flat as my main composing software. I really don't have the spoons to investigate this further right now, though.

The main difficulty here for the composing side is approximating a cittern... ugggh okay I really do not have spoons right now, I'm just leaving myself notes for later I guess.

Also I'm going to have to buy a MIDI keyboard at some point. Did I mention that I got rid of my old keyboard years ago because I was so sure I'd never need it again?

I just... I need to stop thinking for the evening... my brain can't deal, LOL.

#personal #Marve won't shut up about violin #just spoonie things

[poetry-protest-pornography]

Well, that sure was a fun "I'm useless and everything is pointless and I don't deserve nice things because I'm too disabled to work" spiral. 0/10. Do not recommend.

#fun with chronic illness #fun with mental illness #just spoonie things #chronic illness

[jbankai89]

I'm trying this again, as I've been struggling to get donations for a while now. To sum it up, I live on my own out of necessity. My mom's transphobia pushed me out of the house, and after we made up, she rarely used the correct name or pronouns with me. She only remembers when my stepdad pointedly uses the correct name or pronouns first. Even being on my own, my mom helps out with me a lot. Times are tough, and due to my severe IBS and GERD, along with having gallbladder surgery last year, I need help with groceries and pet food, as my cats need special vet food. On top of that, I need to d laundry at her place, as the only laundromat in town is astronomically expensive. It would have been fine, except my mom feels the need to fling fatphobic remarks at me thanks to her own unresolved trauma, laughs at me when I am having a chronic illness flare up, and gaslights me when I ask her for something and she forgets. Somehow it's always my fault when she forgets something. This week I couldn't leave my apartment at all because the key for the front door of my building broke, and if I left, I'd be locked out. She had my spare, and when she forgot to bring it, she twisted it around into being my fault in a bizarre logic that makes no sense.

I need to go low or no contact with her for my own mental health, but I cannot afford to do so, in spite of doing everything I can to sell my designs on etsy and redbubble, freelance, and sell my books. I need a little help reaching that goal, and I am hoping someone on here would be willing to do so. Please donate if you can, or share this post. Thanks everyone <3

#snarry #drarry #otayuri #pliroy #stucky #chronically ill artist #chronically ill #chronic disease #chronic illness #chronic pain #ibs #irritable bowel syndrome #gastroesophageal reflux disease #gerd #spoonie #just spoonie things #queer spoonie #please help #please donate #please share #signal boost

[dovesndecay]

Chronic pain, fatigue, and ADHD like to team up regularly to interrupt my focus mid-task because it feeds into the sense of failure and self-hatred that I'm trying so goddamn hard to evict. Leaves me having internal temper tantrums like

#original post #just spoonie things #except it's just me trying to clean and or rearrange my room to feel like i have control over something

[thefundisorderdiary]

I wanted my water, but I left it on the feet-side of the settee so I guess I’m just gonna desiccate instead.

#water #hydro homies #drinking #desiccated #funny #jokes #functional neurological disorder #spoonie #disabled #fnd #myalgic encephalomyelitis #me #chronic illness #disability #invisible disability #just spoonie things

[dotsunflowers]

shout out to whoever made my heart medicine heart shaped

#every morning i break a heart #and every evening i consume the other half #it's the little things #lol #just spoonie things #actually chronically ill #these are just rambles

[auressea]

#post viral syndrome #Long Covid #ME/CFS #just spoonie things #research #medical research #living with chronic conditions #chronic pain #chronically chi'll

[theoldfundisorderdiary]

Reblog if you’re having a gentle/soft day today and what are you doing to take care of yourself?

#I’m sitting in mum’s swing seat and snoozing in the sunshine #time to get that sweet vitamin D #functional neurological disorder #chronic fatigue #spoonie #disabled #fnd #cfs #chronic illness #invisible disability #disability #depression #putting the fun in fnd #cripple punk #just spoonie things

[theunapologeticallygaypirate]

I have a new logbook available on Amazon, this time for my fellow spoonies, in hardcover and paperback!

US UK Canada Australia

#chronically ill #chronic fatigue #chronic illness #chronic pain #chronic disease #ibs #gerd #fibromyalgia #crohn's disease #just spoonie things #spooniestrong #spoonie stuff #spoonie #disabled #planner #planners #planneraddict #plannercommunity #plannerlove #plannerlife #plannerjunkie #plannerstickers #plannernerd #plannerobsessed #plannersupplies #plannerinspiration #plannerlayout #plannersetup #planneraddicts #plannerdecoration

[hartshorn-and-isinglass]

Bleh.

Ended up having an entire shutdown day yesterday. Organizing stuff is a bitch and my brain decided that I hadn't taken enough breaks so it was going to just take one for me LOL. I should have known it was going to be a touchy week because I did one (1) social last Sunday with not enough spoons and ended up stimming for the next 24 hours, which is unusual for me.

On the one hand, a clear sign that I pushed too far past my limits this week. Not great. On the other hand, here's me having typical and expected reactions to stress, as opposed to policing myself into suppressing those too until it all turns into physical pain and depression! I know this sounds like the most pathetic victory ever, but I had layers of trauma I've had to process just to get to this point.

I feel much better today, and I'm hoping I can catch up on cleaning up before the property management reps come by on Tuesday.

#personal #just spoonie things

[poetry-protest-pornography]

Can't get my BP to cooperate, and therefore I can't regulate my temperature, so I am sweating under fleece blankets because I'm also cold enough that I'm shivering.

Fml.

#pots syndrome #dysautonomia #just spoonie things

[jbankai89]

I always feel bad about doing this, like I should be able to get through a month without asking for help, but I'm out of everything, and everyone I have asked cannot help. At this time, everyone is strapped for cash.

I am chronically ill, and as a result doing grocery shopping on any given day is a difficult thing, as many processed foods I cannot eat without suffering terrible pain. Because of that I need to make a lot of stuff from scratch, and usually I'll augment this by borrowing things like eggs and flour from my mom, but her car is out of commission, and I have no means of transport to get to her house. No car, and no buses go out that way. Even if they did, I couldn't afford it anyway. I'm on welfare, as my doctor doesn't seem to think that I'm 'sick enough' for welfare.

So I turn to you, The Internet. I just need a little but of help getting through to the end of the month for basics like pasta, flour, rice, and tofu (the cheapest protein I can eat without pain).

Thanks,

xox James

#chronically ill #chronic disease #chronic illness #chronic pain #irritable bowel syndrome #gastroesophageal reflux disease #spoonie in need #just spoonie things #queer spoonie #please help #need food #need money #snarry #drarry #stucky