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#pediatric cancer
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Transcript Below:
John Stewart: "Why would the state of Arkansas step in to override parents, physicians, psychiatrists, endocrinologists who have developed guidelines? Why would you override those guidelines?"
Arkansas AG Leslie Rutledge: "Well, I think it's important that [of] all of those physicians, all of those experts, for every single one of them, there's an expert that says we DON'T need to allow children to be able to take those medications. That there are many instances where—"
JS: "Right, but you know THAT'S not true. You know it's not 'For every one there's one.' There's 'These are the established medical—’”
LR: "Well, I don't know that that's not true. I don't know that YOU know that—"
JS: "Then why did you pass a law, then, if you don't? If you don't know that it's true, wouldn't you have done some—"
LR: "Well, I know that there are doctors and that we had plenty of people come and testify before our legislature who said that, uh, you know, we have 98% of the young people who have gender dysphoria, uh, that they are able to move past that and once they had the help they need, no longer suffer from gender dysphoria. 98% without, uh, that medical treatment that—"
JS: "Mhmm. Right. Wow! That's uh, that's an incredibly made-up figure. That—that doesn't comport with ANY of the studies or documentation that exists from these medical organizations. What—what medical association are you talking about of these doctors?"
LR: "Well, we have all of that in our, uh, legislative history and we'll be glad to provide that to you. Uh, I don't have the name of that off the top of my head. I know it's something that—"
JS: "You don't have the name of the organization that—?"
LR: "Off the top of my head.”
JS: "Oh, ok."
LR: "Yes. But we have all of that cited in all of our briefs."
JS: "You're suggesting that protecting children means overriding the recommendations of the American Medical Association, the American Association of Pediatrics, the Endocrine Society..."
LR: "We don't have enough data. We don't have enough to show that these drugs ARE effective and that these children ARE better off and that we should encourage these—"
JS: "'We don't have enough' or there's not enough for YOU? But, let me try and flip it a different way and see if maybe this can help... In Arkansas, if you have pediatric cancer, and obviously we all wanna protect children, I think we established that earlier, whose guidelines do you follow, for pediatric cancer?"
LR: "Well, I think if my child, who's 4, if I was faced with that terrible, uh, decision, then I would be speaking to my doctor. And if my doctor recommended something that I'd disagreed with, then I would get a second opinion and that's what I believe, that these parents need to make sure that they're encouraged to get numerous opinions when they're talking about an irreversible step in their childs—"
JS: "You're not letting them. The state's not saying 'Get another opinion,' what they're saying is, 'YOU CAN'T.' What you're actually saying is the opposite."
LR: "No, that's actually not at all what the state said. The state simply said that you cannot perform these procedures and so parents SHOULD get another opinion that they—and children SHOULD want to have another opinion, because again these are 9, 10, 11, 12 year olds."
JS: "But that's not—So, if your child is suffering from pediatric cancer and the state comes in and says to you, 'They recommend chemotherapy but we're not going to let you do that. You can't. We think you should get a different opinion and here's the organization we think you should get the opinion from. They're not the mainstream, but they're AN organization, so that's how you— that's who you have to be treated by.' Does that sound like something that you would accept?"
LR: "Well, I think that's a very extreme example. That's not at all in line with what we're talking about. We're not saying that at some point, because when you have cancer it literally is—uh, particularly pediatric cancer—and having friends that have lost children to pediatric cancer—"
JS: "Sure."
LR: "Having a 4 year old, I'm sure—"
JS: "I've got some bad news for you. Parents with children who have gender dysphoria have lost children to suicide and depression because it's acute."
LR: "They absolutely have."
JS: "And so these mainstream medical organizations have developed guidelines through peer-reviewed data and studies, and through those guidelines they've improved mental health outcomes. So, I'm confused why you follow AMA guidelines and AAP guidelines for all other health issues in Arkansas, because we checked, but not for this."
LR: "It's simply saying let those young people who are facing gender confusion and dysphoria, allow them to become adults and to make that decision. Allow a child to be a child."
JS: "So, here's where we have our—our crossroads. You've made the determination that protecting these children means not giving them access to the guidelines and care that have been designed by medical and mental health professionals for children expressing gender dysphoria and I'm asking you, again, what are your qualifications to step in and say, 'No, keeping you from that care is protecting you.' You've made that determination."
LR: "Well, these are irreversible decisions that these children at these young ages are making or that their parents are making—"
JS: "They're not making the decision. You're making it sound like a 9 year old walks into a doctor's office and says, 'Give me some testosterone.' And the doctor goes, 'Oh thank God, because we're wanting to create an army of transgenders, because we're crazy!' And they go right in, like—"
LR: "No. We passed a law to protect the children in Arkansas and I think that's what is important."
JS: "Again. The medical community disagrees with you that that's protecting children."
LR: "Well not ALL of the medical community..."
JS: "Who doesn't? Who—?"
LR: "We have had experts testify here in Arkansas."
JS: "Ok, from what medical organizations?"
LR: "Well, we have all of those in our briefs and I apologize that I wasn't prepared to have a Supreme Court argument today in front of you, but I—we are going to have arguments on this case—"
JS: "Right..."
LR: "—when the time comes."
Watch the episode, including the full interview, for free here:
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cbirt · 1 year
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Scientists from The Hospital for Sick Children, Toronto, have developed an atlas for childhood cancer diagnostic classification using machine learning approaches. Pediatric cancers are one of the leading causes of mortality in children worldwide. However, there is no comprehensive molecular assay for pediatric cancer diagnosis and classification. Currently available transcriptome-based diagnostic tools are based on supervised machine-learning approaches that use pre-existing tumor labels. The authors developed RACCOON, a clustering approach for the unsupervised classification of cancer tumor subtypes, using RNA-seq data. Next, they developed a classifier for pediatric cancer, OTTER. Together, these methods generate an atlas for pediatric cancer classification.
Why do we need a novel methodology for pediatric cancer classification?
Childhood cancers differ from adult cancers as they develop mostly from embryonic tissue, thereby affecting several cell types. Childhood cancer prevalence according to subtypes also varies from adult cancers. Around one-third of pediatric cancers are leukemias. While carcinomas are common in adults, childhood cancers like neuroblastoma, a heterogeneous form of cancer, are rarely found in adults. Thus, pediatric cancer diagnosis requires a completely different and separate toolkit from the existing ones for adult cancers.
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terry-on · 28 days
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Asking for help
My 15 year old daughter was recently diagnosed with a very rare ovarian cancer called Sertoli Leydig with Rhabdomyosarcoma. It has spread to her stomach and she has an extensive chemotherapy schedule. Paid vacation days are almost out and Family Medical Leave is unpaid. I am humbly asking for any help you can give to me and my family Please share even if you can’t donate. Thank You 🙏❤️‍🩹
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dreamixed · 1 year
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Some of you know my 14 year old has been fighting stage 4 Hodgkins Lymphoma. Fortunately she's doing great, finished her chemo, will start radiation next week.
Her and I designed these pins together to give back to the charities that have helped her, and kids like her. A portion of the profits will go to the Ronald McDonald House, an equal amount to Childrens Cancer Research Institute, a smaller amount to Adi herself, and the rest will go towards paying back the credit card I used to pay for them + possibly ordering more 😅
You can get your own enamel pin here if you want one:
https://newbletteattire.com/products/1-5-axolotl-hodgkins-pin
Thank you 🥰
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astridthewarlock · 2 years
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I don’t know if anyone has posted this here, but I wanted to let my fellow Guardians on Tumblr about a wave of gold that is washing over the community for the month of September.
I’m linking the Twitter account where I saw it from too, as well as the actual image for anyone not using Twitter or not wanting to go to Twitter to view the image. Sorry if it seems redundant!
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emisanidiot · 2 years
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WOW THIS IS LATE!! SO SORRY! in honor of brain cancer awareness month, i present you THIS!!
everyone who has never had an experience with cancer tells me that i should wear my scars with pride. i don’t know if i’ll ever be able to, if i’m being honest. something i carry with me that i think i’ll carry until the day i die is the tremendous survivors guilt, a lot of people didnt survive polycystic astrocytomas at the time.
and don’t take this the wrong way, i’m really glad i survived and had the best doctors on my side. but i can’t stand the lasting effects. no pun intended, because i have a drop foot. it makes it hard to go up and down stairs sometimes, and uneven ground is a challenge. the reality of it is that i wish i could make these scars just disappear. another part of me loves them because they’ve grown with me, i had my operation when i was maybe 6-7. i prefer to keep my hair longer in the back and i’m not a fan of low-cut shirts. i don’t view them as ‘battle scars’ as those without any cancer experiences do; i view them as horrendous marks that plague my skin.
another aspect is i don’t like people touching my head/neck area, i’m pretty sure those reasons are obvious. i have body image issues, not because of my build or anything; the scars play a big role in my hating my body. i wish they were more like stains, so i could wipe them away with a towel or wash them off in the shower. or stickers so i could peel them off.
something that really bothers me personally is that since i had this cancer experience so young, family members tend to talk over me. they talk about me. as if i’m not really there, when i’m the one who had the first-hand cancer experience. everyone agrees ‘oh i’m such a fighter i can do anything nothing can stop me’ when in reality i couldn’t talk, i lost the ability to vocalize how scared i really was. it’s still hard for me to talk about it because all i end up doing is crying. that’s how i felt as a kid.
if i could give every non-cancer—personal-experienced person a message, it would be take everything the cancer experience person says deeply. try to hold it. it is unbearable. every time i see any type of medical building - it doesn’t have to be a hospital even! it can be a dental place, a small health center like we have at my home, or a small city hospital. it doesn’t matter. my body remembers what it went through even if my memory is foggy.
be understanding. do not pester them to talk if they say no. do not talk about it behind their backs. do not deny their place in the conversation about themselves.
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gwydionmisha · 2 years
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drforambhuta · 2 months
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Survivorship Trends and Challenges in Pediatric Cancer
Traditionally, pediatric cancer carried a grim prognosis, but advancements in treatments have significantly improved the five-year survival rate to around 80%. However, the increasing number of pediatric cancer survivors presents unique hurdles, such as long-term health issues and the necessity for comprehensive survivorship care.
Effects of Treatment on Reproductive Health
The aggressive treatments used against pediatric cancer, including chemotherapy, radiation therapy, and surgery, can negatively impact survivors' reproductive health. Chemotherapy and radiation therapy may damage ovarian and testicular tissue, leading to infertility, while surgery might involve the removal of reproductive organs, further complicating fertility.
Options for Preserving Fertility
Aware of the risks treatment poses to fertility, healthcare professionals have been exploring various options for preserving fertility in pediatric cancer patients. Experimental techniques like ovarian or testicular tissue cryopreservation hold promise for prepubescent children, while adolescents have options such as sperm or egg banking, embryo freezing, and ovarian transposition to protect their reproductive potential.
Transitioning to Adult Care
Pediatric cancer survivors transitioning to adult care face challenges such as changing healthcare providers, insurance coverage, and support networks. Ensuring a smooth transition and addressing survivorship issues, including reproductive health concerns, during this phase is crucial for optimizing long-term health and quality of life.
Doctors recommend a lifetime regular full body health checkup for children who have undergone cancer treatment to check the success of treatment and also manage any side effects associated with the treatment, such as problems in the reproductive health and fertility of the patient. Many good hospitals in India offer health checkup packages for regular health checkups of children.
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drpedi07 · 6 months
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Toronto Childhood Cancer Staging criteria for Ewing sarcoma Calculator
Ewing sarcoma treatment usually begins with chemotherapy and/or radiation followed by surgery to remove any remaining cancer. Treatment options for recurrent sarcoma include targeted therapy and high-dose chemotherapy with stem cell transplant.
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spacefricks · 7 months
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please join the registry.
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supernerdninja · 1 year
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The Hardest Goodbye I had To Say Was To My Five-Year Old
If I was any different than I am now, I honestly don’t remembfer. In my opinion if you met me within that last three years, it’s the better version, and we can go from there. February 22 would have been my daughter’s 11th birthday. I only just now thought of it in terms of years passing. I also realized that this month was ok. I am doing quite well in a way that feels authentic. I am not putting…
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nisthaevah · 1 year
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Every year on February 15, the world comes together to commemorate International Childhood Cancer Day (ICCD), a movement that was started to increase public
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sgmchospital · 1 year
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Cancer surgery:Breast cancer,Pediatric cancer,Lung cancer
We have the best surgical oncologist in India.Team of highly qualified oncologic and plastic surgeons trained in various specialities.
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eastsidemags · 1 year
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Rolling for Initiative
Come watch a live TTRPG (table top role playing game) for charity!
All proceeds for this event with a suggested donation of $5.00 goes to Tomorrow’s Children’s Fund, an organization that assists families of children with pediatric cancer.
It’s exciting, daring, strange and hilarious!
Join us for a great cause and a great adventure!!!
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medicomunicare · 1 year
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Enveloping leukemia: from genetic variants to "fiery" cytokines, no rest 'til the enemy is sent to the depths
Enveloping leukemia: from genetic variants to “fiery” cytokines, no rest ’til the enemy is sent to the depths
Cancers can grow when tumor cells are not identified or destroyed by the immune system. Autoimmune diseases, on the contrary, occur when the immune system attacks our own cells, mistaking them for foreign cells. According to a new study from the Garvan Institute of Medical Research, some gene variants associated with leukemia can produce ‘rogue’ immune cells that drive autoimmune diseases,…
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blackcatscorner · 2 years
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I need the community’s help!
I had currently entered a competition and would like the communities help with votes! You get one free vote everyday and if you choose to want to vote more, you can choose to donate, at least $10 minimum, it goes towards supporting families dealing with pediatric cancer!
Please! It takes one vote a day to keep me in the top 20 but I will need top 5 in order to have a chance at winning!
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