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myalgicencephalomyelitiscfstom · 1 year

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https://twitter.com/edoajoeric/status/1578421283817390086

#unexplained illness #medically unexplained symptoms #undiagnosed something #chronically ill #chronicillnesscommunity

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baldgirlandherwigs · 2 years

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The Roller Coaster Ride of the Chronically Ill •This was a good time—September October 2021. The fullest my hair had been. My skin had improved, my musculature, and most of all my mood. •I had recently seen my family that I never see •lol that embarrassing facial expression says it all ”🥳” 😂 Today I am in a beanie, with very little hair on the sides of my head with one goal: —To Not Fall Asleep. They are soon to run a CAT scan to hopefully find some kind of answer to my inability to stay awake/control being awake. Does anyone else struggle to be awake or stay awake? Any advice? How is everyone else’s day? I LOVE YA! ☮️💟ash . . . . . #baldgirlandherwigs #baldwomen #chronicillness #chronicallyill #autoimmune #thyroid #womenshealth #healthandbeauty #dayinthelife #wigs #wigreview #shorthair #shorthairlove #shorthairdontcare #normalizebaldwomen #alopecia #alopeciasupport #chronicillnesslife #chronicillnesscommunity #baldgirl #baldwoman #lookatme #selfiegram #shorthairstyle #blondehair #blackandwhitephoto #thingswereokay #wellness #healthandwellness https://www.instagram.com/p/CZZ-Jqcpkql/?igshid=NGJjMDIxMWI=

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roseleevader · 2 years

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I'm still a believer but I don't know why✨ • 📸: @catamosphotography • I often talk about my body and brain as if they are separate entities from both each other and myself. • There’s my brain is demanding we do fun things to make up for the drudgery of never ending medical admin and appointments. It’s depressed and anxious and it’s tired and just can’t quite keep up with processing all that’s happened (happening?). • Then there’s my body. My body that’s been in pain since childhood. That I’ve become so disconnected from. because not being attached to my body means I don’t feel it as much. My body that is screaming at me to allow it more rest. But resting feels like all I do and I want more out of this life. • My body and my brain have become separate from me as a coping and survival mechanism. I’ve become detached from painful things in my life and unfortunately that includes some pretty vital pieces of myself. It’s easier to deal with a depressed brain than a depressed Rose. Easier to deal with a broken body than a broken spirit. • #mentalhealthawareness #mentalhealthblogger #ptsdawareness #mentalhealthtips #biracial #curlyhairdontcare #curlynaturalhair #naturalcurls #naturegram #naturegirl #butyoudontlooksick #sickandtiredofbeingsickandtired #sickchick #chronicallyill #chronicfatigue #seizuressuck #chronicillnesscommunity #chronicpainsucks #invisibleillness #chronicallyawesome #ehlersdanlossyndrome #fibromyalgia #disabledmodel #disabledpeoplearehot #disabledblogger #disabilityawareness #spoonie #vintagefashion (at Oregon) https://www.instagram.com/p/CiN8AaCPrxq/?igshid=NGJjMDIxMWI=

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risingphoenix87 · 2 years

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That's me 🙋🏼‍♀️ 😂😂😂 Who else can relate? 👇 💫Thankyou @fulcandles for this post and to @georgiesselfcareclub for sharing! 🖤🤍🖤 (Image description: This post is a picture of a black chalk board with a grey effect border that has text placed inside. The text says; WHEN I SAY I'M DOING HOT GIRL SH*T I MEAN LAYING ON A HEATING PAD. This is in all capitals and in white. @fulcandles tag is placed on the left bottom side of the border. There is a grey heating pad placed around the board and both the heating pad and board are laid on top of a white fluffy blanket. The image appears to be in black and white format. End of description.) #ChronicIllnessLife #ChronicIllnessIs #ChronicIllnessTruths #ChronicIllnessMemes #ChronicIllnessHumour #SpoonieHumor #FlanderTheFlare #ChronicIllnessWarriors #RareDisease #SpoonieMeme #YouDontLookSick #InvisibleIllnessLife #FatigueCronique #ChronicFatigueAwareness #Fibromyalgia #AutoimmuneDisease #ChronicalllnessFacts #ChronicIllnessCommunity #InvisibleIllnessCommunity #PotsSyndrome #Gastroparesis #Endometriosis #EhlersDanlosSyndrome #ChronicIllnessAwareness #EhlersDanlosAwareness #DisabilityAwareness #FunnyMemes #InvisibleNotImaginary #HiddenDisabilityAwareness #FibroCommunity Reposted from @thepotsiepanda https://www.instagram.com/p/ChSkTBBJMYp/?igshid=NGJjMDIxMWI=

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thelupusdiariesofficial · 2 years

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COMING SOON:

THE LUPUS DIARIES MY LIFE WITH CHRONIC ILLNESS

by Lillian Smith

Lillian Smith has been a writer on her illness in print and online media and helped many people by sharing her story with others. This book began as an idea when she was diagnosed with lupus at the age of twenty-two and there were no books available to help her find answers to questions she was desperately seeking help for. She set out to write The Lupus Diaries in 2012 and, for over ten years, wrote journal entries on her life with lupus, hoping to help young people and others with chronic illness so that they would find not only answers but hope about how to find a balance with illness and recovery from their disease. She offers real-life solutions with her real-life experience, with real-life stories that you can relate to. If you are seeking answers to a more balanced life with your chronic illness, or are newly diagnosed and want to find out how to cope, read this book, with very real and helpful chapters such ‘Dating and Chronic Illness’, ‘Marriage and Chronic Illness’, ‘Missing Out‘, and much more. A memoir, a self-help book, and at heart, a true love story, this book offers lessons for everyone seeking help for their chronic illness.

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elementalevolutions · 29 days

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Elemental Journeys in Health

Navigating Life’s Twists with Courage and Care With the vibrant spirit of your ‘Adventuring Liver’ character as inspiration, your blog could become a beacon of hope and resilience for those facing similar health challenges. Here’s a conceptual framework for your blog, blending inspiration and information. Hello Brave Expeditioners, Welcome to Elemental Journeys in Health, a place where stories…

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#AnxietyRelief #AutoimmuneAllies #bloodsugarmaintenance understanding hypothyroidism #ChronicHealthJourney #chronicillnessawareness #ChronicIllnessChampions #chronicillnesscommunity coping with chronic illness #chronicillnessmanagement #chronicillnessmentalhealth #chronicillnesssupportgroup #chronicillnesswarrior living with a chronic illness #copingwithchronicillness #CourageousCare #diabetesmanagement #digestivesystemhealth neuropathy pain relief options #EmotionalWellBeing #EmpowermentThroughIllness #gastroparesisdiet #GentleWellness #HashimotosHealing #hashimotossymptoms #hashimotosthyroiditis managing diabetes naturally #HealingHandsCommunity #HealthHeroJourney #HolisticHealthPath #hypothyroidism #invisibleillness chronic illness support groups #livingwithachronicillness #lowthyroids gastroparesis diet tips #mentalhealthandchronicillness emotional impact of chronic illness

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bpdmummyto1 · 2 years

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💙💙 Having a chronic illness or more than one not only feels like someone stole your identity, it feels like they stole everything from you as nothing is the same anymore and that is hard to come to terms with! 💙💙 . . Photo credit to @itsmychroniclife . . 💙💙 . . . . . . . . . #relatablecontent #chronicillnesshumor #chronicallyfabulous #sickchick #sickaf #chronicbadass #chronicallyawsome #invisbleillnessawareness #healthmemes #symptoms #spoonielife #chroniclife #sicklife #disabledlife #endometriosis #invisbleillnesswarrior #endometriosisawareness #endometriosisuk #millionsmissing #chronicpainwarrior #chronicfatiguesyndrome #chronicillnesslife #chronicillnesscommunity #spooniecommunity #endocommunity #addisonsdisease #endosisters #addisonsdiseaseawareness #mentalhealthawareness #bpdwarrior (at United Kingdom) https://www.instagram.com/p/Cg2UPJVreO_/?igshid=NGJjMDIxMWI=

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cutebubblycraziness · 2 years

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I was hospitalized twice mid December into early January with a week between hospitalizations because I had a gastroparesis and cyclic vomiting syndrome flare. When this happens I can't stop vomiting and can't eat or drink anything. Nothing helps other than being hospitalized and sedated for about a week so im not throwing up. I hadn't had an attack since 2019, but had run out of crucial medication so wound up having another attack. #gastroparesis #gastroparesissucks #gastroparesisawareness #gastroparesiswarrior #cylicvomiting #cylicvomitingsyndrome #vomiting #chronicnausea #chronicillnesswarrior #chronicillnessawareness #chronicillnesslife #chronicillnesscommunity #chronicillnessandme #chronicillnessproblems #chronicillnesswarriors #chronicillnessfighter #chronicallyill #chronicallysick #hospitalized #hospitalization #chronicallyillartist #chronicallyillwarrior #illness #invisibleillnesses #illnesssucks #livingwithchronicillness #livingwithgastroparesis #livingwithillness (at Waukesha, Wisconsin) https://www.instagram.com/amberanndesigns/p/CYzPAk-rQHT/?utm_medium=tumblr

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little-misses-lee · 4 years

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Community.

Having chronic illnesses or disabilities can often lead to loss of friendships, relationships, and isolation. But whilst we may feel alone, we are not. There is an amazing community of people with chronic illness and disability online. Sometimes we are fortunate enough to meet through charity events etc.

This community is the most powerful and supportive place anyone could possibly be. No matter what time of day or night, there is always someone there. Someone who understands your pain, your emotions, the challenges you face. We are not all the same, we have different conditions, different ages, different personalities and come from different walks of life, yet none of that matters when we all need someone. There is always someone there. Despite all the challenges we all face, there is a strength in this community that makes life that tiny bit easier. This community is not only there for support, they raise funds for numerous charities and research projects, they raise awareness, they encourage equality, fight against ableism and discrimination and take to the streets and screens to implore governments to act. And there are people in this community, who despite having never met, hold an important place in my heart and I am so so thankful to have found them. ❤

To the chronic illness and disability community, Thank You.

IMAGE DESCRIPTION: Shows an illustration of four women of different ethnicities with various signs of illness or disability. The first woman hqs a feeding tube, the second woman is on oxygen, the third has a wrist support and a walking cane, and the fourth has no arm below the elbow on one side. They are sitting/laying together in front of a greenish background with purple writing saying 'Disabled people have shown me the power of community.'

Artwork by Insta: @cantgoout_imsick

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thedisc0panda · 3 years

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QOTD: do you have required summer reading? Hello friends this spring and summer have been crazy so tell me about something cool I really want to get back and immerse myself into this community but I’ve had no energy to create spreads thanks to ye olde chronic health issues and some new funky and potentially serious symptoms. But to quote Monty python IM NOT DEAD YET Have an old spread anyways? A crumb of Content?? Yay??? Reminder to take care of yourself and do stuff you like SELF CARE ❤️ #bujo #bujoinspiration #bujoideas #bujocommunity #bujoinspire #journal #journaling #journalinspiration #journalcollage #journalingcommunity #summerschool #summerlearning #summervibes #summertime #summerreading #chronicillness #chronicpain #chronicfatigue #chronicillnesscommunity #chronicallyill #bulletjournal #bulletjournaling #bulletjournalideas #bulletjournalcommunity #bulletjournalinspiration #bookstagram #booklover #bookstagrammer #booknerd #booksbooksbooks (at Boston, Massachusetts) https://www.instagram.com/p/CSMelyrr2bT/?utm_medium=tumblr

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twentysomethingandsickofficial · 3 years

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Coping With Lupus "As A Normal Life"

Coping With Lupus "As A Normal Life" a new blog article on Twenty Something And Sick about how to cope with Lupus "As A Normal Life."

By Lillian China Smith I was diagnosed with Lupus in 2012. I have lived with it for nine years now. It is hard to estimate how much of that time I spent having flares, but looking back at photos, a good deal of my camera roll is taken up by photographs of me with mobility aids, and my memories of my twenties are filled with me “missing out” on things because I was ill, and having to leave…

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myalgicencephalomyelitiscfstom · 4 months

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#chronic illness #chronically ill #spoonie life #chronic life #ChronicIllnessCommunity

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ryanlight0317 · 3 years

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Sadly the one thing you want is often the one thing that holds you back. . CEN folks don’t know it, but the things they think will make them happy have little to do with their actual happiness. In fact, their notion of happiness is mostly about protecting themselves. . Growing up with your feelings unvalidated (Childhood Emotional Neglect) sets you up to feel that there is something wrong with you for simply having normal human feelings. Then, moving through your adulthood, you then feel you must not only protect yourself from your own feelings and needs but also hide them from others. . 📝 book "You Will Bear Witness" . . . . . #mentalwellbeing #recoveryjourney #mentalhealthday #personalitydisorder #everydayisagift #selfregulation #depressionhelp #fightingdepression #counselorlife #emotionalresilience #christiancounseling #healthymindbodysoul #chronicillnesscommunity #bipolarawareness #anxietyattack #mindhealth #mentalgrowth #getsupport #mindfulliving #recoverywarriors #recoveryforlife #anxietyhelp #bpdawareness -------- (at Atlanta, Georgia) https://www.instagram.com/p/CNIveZ2DDDC/?igshid=7hgyavsftz5v

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the--social--anarchist · 4 years

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#Repost @smilethrough_eds Oh my gosh, this is absolutely gorgeous and I LOVE it!!

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spoonsandpositivity · 5 years

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Never forget how far you’ve come. Everything you have gotten through. All the times you have pushed on even when you felt you couldn't. All the mornings you got out of bed no matter how hard it was. All the times you wanted to give up but you got through another day. Never forget how much strength you have developed along the way. #chronicillness #chronicfatiguesyndrome #mecfs #positivequotes #positivity #spoonie #spoonielife #kind #happy #quotes #invisibleillness #chronicillnesscommunity #support #myalgicencephalomyelitis #ptsd https://www.instagram.com/p/B1e6QIxHYBv/?igshid=15xw4ubo8p5yo

#chronicillness #chronicfatiguesyndrome #mecfs #positivequotes #positivity #spoonie #spoonielife #kind #happy #quotes #invisibleillness #chronicillnesscommunity #support #myalgicencephalomyelitis #ptsd

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thelupusdiariesofficial · 3 years

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Pain

I hate the pain scales that they give you at the doctor’s office. The ones with all the little faces and you have to choose which one represent’s how much pain you are in. When you are in pain all the time you become numb to pain. I always say it is like being in a room and someone is either shouting or screaming, and the pain is always there. It is either shouting or screaming, but it is…

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#butyoudontlooksick #chronic pain #chronicdisease #chronicillness #chronicillnessawareness #chronicillnessblogger #chronicillnesscommunity #chronicillnessfighter #chronicillnessmeme #chronicillnessrecovery #chronicillnesswarrior #chronicpain #fibroflare #fibromyalgia #lupusawareness #lupusflare #pain

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