idk if you guys know this but pregnancy is the worst and I am not having a good time
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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Having no choice but to try and find at least a part time job remotely. Hoping I get a coding job because no phones lol
I wanna fucking die everyday and if it wasnt for my dogs I would probably stay in rock bottoms basement. I'm trying for them. I don't care about myself.
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Going to break into your house with pots and pans and yell at you until you reframe your thinking of productivity to include more than just schoolwork or a salary or chores and the like.
Did you do a thing? Was there a positive result for you or someone else?
Congratulations, you did a Productivity!!!
You aren’t ALWAYS going to be able to have the energy to do what we consider traditionally productive. You won’t always have the motivation.
Yeah, maybe you could have spent two hours studying for that test instead of 15 minutes. Maybe you could have cleaned the kitchen instead of the dishes. And? That’s still something!
Productivity is doing things!! Did you eat food and drink water? You did something that helped your body work! Doodled in class? You made art! Even just posting theories and memes on tumblr dot com is a thing! You thought out the post, figured out how to organize it (even if you don’t realize you did that) and you made it! And now other people can see and you DID something and you should be proud!!!
Be proud of yourself or I am going to show up outside your window tonight and scream positive affirmations louder than a cat who has just discovered her food bowl is empty.
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I think more people should make peace with their dark sides, and I don’t mean that in an edgy way, I mean that in a “letting purity culture infect you to the point where you get frightened by even your own darker thoughts and impulses is NOT the healthy own you think it is” kind of way and
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Okay, my brain refuses to think about anything other than Murderbot, so I looked at every use of the word "friend[s]" in TMBD and... created some pie charts. Normal human activities.
Some Thoughts™ I had while putting this together (under the cut):
In All Systems Red, Murderbot notes that the PresAux crew are all close friends (twice! and goes on to explain their internal relationships which I think is very cute). This is pretty much the only use of 'friends' in ASR, except for when Murderbot says that SecUnits can't be friends with each other.
It seems that this may be one of the first times Murderbot has ever really been around a group of friends before? Murderbot notes that this is not the norm for its contracts and admits that the fact that they are all friends and the way they interact with each other make it actually enjoy that contract (before!!!! the hostile attack, so it already enjoys this contract before they start seeing it as a person etc ghghhhh). [Inference: Friendship seems enjoyable.]
The first character that calls Murderbot its friend is ART in Artificial Condition. Murderbot immediately refutes this (and then goes on to call ART its friend to its clients for the rest of the book). [Inference: Maybe ART is Murderbot's friend. And maybe that is... agreeable]
Rogue Protocol has more than twice as many instances of the word 'friend' as any of the other novellas. Why? Miki. Friendship and its implications for non-humans are a central theme because Miki is friends with everyone. Murderbot initially scoffs at the notion that Miki and Miki's humans are friends. At the end of the book, after witnessing how desperately Don Abene tried to stop Miki from trying to save them, and her grief after its death, Murderbot has to admit that she had in fact been Miki's friend. [Inference: Humans can be friends with bots and can sincerely care about them]
In Exit Strategy, Murderbot tentatively uses the word "friends" for its humans for the first time (several times actually). It questions whether it can actually call them its friends or not and later realizes that it had been afraid what admitting that the humans are its friends would do to it. At the end of the book, Mensah tells Murderbot the PresAux crew are its friends, which is the first time a human has directly said that to it (at least on-page). [Inference: Humans can and want to be Murderbot's friends]
In Network Effect, Murderbot seems to be more habituated to the word 'friend', confidently calling ART and Ratthi its friends, like it is no longer just trying the concept on unsure if it fits. There are many instances in which other characters refer to MB as ART's friend or the other way around and Murderbot's humans refer to Murderbot as their friend several times. Generally, there seems to be less hesitancy, because yes, all of them are Murderbot's friends, why wouldn't they be. [Inference: SecUnits can have friends. This SecUnit has friends. They care about it a lot.]
Conclusion: The Murderbot Diaries tell the story of a construct that does not seem to consider the possibility of friendship for itself and is fine with that - until it accidentally starts caring a little too much and suddenly more and more people annex it as a friend (ew) to the point where it can no longer deny that this is happening and has to begrudgingly admit that yes, it has friends now and maybe that is actually not a bad thing.
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stacy is sooo interesting because she's in love with house but knows that they will never ever be able to have a healthy, stable, sane relationship because they're too similar so. she finds house-lite instead and marries him and. essentially moves on with her life! and is successful in this because she's a moderately well-adjusted person!
wilson, in contrast, never manages to escape the inevitable, in spite of his best efforts to find a house-lite of his very own, because he's an absolute fucking freak and ends up glued to house to the bitter. bitter end
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