#LupusWarrior

[berberriescorner]

Sooo…I had a follow up with my hematologist.

Guess who starts yet another cycle of iron infusions next week?!

This lady 🤦🏾‍♀️. I’d go into detail, but at this point who knows what the real answer is 🤷🏾‍♀️. I’m just venting lovelies. Tired of being tired. Tired of being out of breath. Tired of lupus flare ups. Sick and tired of being sick and tired.

Yes, you get used to it, but man! I want to get back to a place where I have enough energy to do the things I love. Welp I guess it’s good I ordered all those damn books lmao! Now I’ll have new reading material for my infusion appointments😆😩🥹.

Okay enough of being an emotional lil bish. Back to being a sensitive thug😆😂🤣.

How my babies doing though?!

#berberriescorner #just venting #i’m just tired #anemia sucks #iron deficiency #lupusproblems #life with lupus #systemic lupus erythematosus #lupus nephritis #lupusfighter #living with lupus #lupuswarrior

[livingwithlupus614]

Truth

#lupuswarrior #narcolepsy #chronic illness awareness #chronicillnesslife #systemic lupus erythematosus #sle lupus #adhd #adult adhd #chronic illness warrior

[yes-brandeebleueaurelie]

Goodbye July, Hello August... fuck you both; I'm waiting for September!

It's too hot!

#goodbyejulyhelloaugust #lupuswarrior #lupusawareness #lupus #lupusdiscoid #living with lupus #glitzglamfuckery #brandeebleue #coloringbookforme #brandee #peachology #fuckery

[dating--while--disabled]

I absolutely fucking hate how Medical Facilities think that if they smile and give you baby talk that somehow the lack of Quality Care will be overlooked. You don't have to be an obvious asshole to have clear discriminatory medical practices.

#disability #medical discrimination #black and disabled #Dating_While_Disabled #mobility aid #chronically ill #invisible disability #lack of empathy #chronic pain #babe with a mobility aid #chronic disability #disabilties #disabled community #sle lupus #lupuswarrior #lupus fighter

[artoflifehealingarts]

A share of what's to come with some works in progress sneaked in, on the sly. Got into a Tool vibe today and it hasn't let me go. High charge "at peace with the charge" kind of day Chillosophy just rolling in. Word vomit at it's finest pouring down, like the rain upon the ground, grounds be getting wet. Soaked with life in tenderness unraveled, spices of sentiments unknown, slipping into a rumbling stumbling upon an intricate delight. My soul be creating wild horses in the sky.Deep in presence, we find our way.DeviMea Art and Chillosophy I don't want to be hostile.I don't want to be dismal.But I don't want to rot in an apathetic existance either. ToolRambling onHealingartsforthecure.square.site An art gallery of sorts with Chillosophy and roads unknown filled with gifts or Simple drops od someone was here.

#DeviMea #Chillosophy #Art #Artreel #Inspired #Music #Tool #artistsoninstagram #Lupuswarrior #Artist #work in progress #artwork #arte

[digicontact]

World Lupus Day !

May this World Lupus Day bring us one step closer to finding a cure for this chronic illness. Let's continue to raise awareness, funds, and support for lupus research. …

https://www.facebook.com/DigiContactOfficial

#WorldLupusDay #LupusAwareness #LupusWarrior #LupusStrong #FightLupus #HopeForLupus #SupportLupusResearch #LupusAdvocacy #LupusCommunity #LupusAwarenessMonth #digicontact

[izyjean]

I was able to do a small amount of yoga tonight & that’s helped immensely with my mood of not finishing my routine. I’ve also been reading an amazing book, by Beth Evans, of where she talks about her OCD & how it’s shaped her routines & I don’t feel so alone in having to do certain things to feel successful in my day. I still don’t know what’s in the air, but I have prayed about my frustration & cut ties with many people today. Idk why it can’t be a mutual respect & understanding that we may see things differently, & that’s okay, but I don’t have time nor care to want that drama in my life. I’m not sorry for wanting peace & respect. I am still extremely shaky, not keeping food down & relying on my neuropathy oils, vitamins & ibuprofen for the pain, I just really wish one symptom would subside so I could manage the others. I work a double tomorrow & back to my other job starting Sunday evening. I’m absolutely exhausted & it’s unreal that it takes this much to live comfortably, but nevertheless, not surprised. I hope everyone continues to be open-minded, loving & kind to everyone, everywhere- you don’t know what’s going on behind closed doors, so just let it be. Happy evening. 💛 #momvlog #lupuswarrior #dailycheerup #yoga #fitness #thriver #lifestyle #lupusflare #nottodaysatan #booklover #clouds #photography #chronicillness #autoimmunedisease https://www.instagram.com/p/CqWyNmXMtTP/?igshid=NGJjMDIxMWI=

#momvlog #lupuswarrior #dailycheerup #yoga #fitness #thriver #lifestyle #lupusflare #nottodaysatan #booklover #clouds #photography #chronicillness #autoimmunedisease

[badass-lupus-warrior]

Had to go home early today. Negative covid test at least, but all day I felt like I was going to throw up. If I feel like this tomorrow I'm calling off work. I for sure overdid it last week. 😭 #lupus #lupusawareness #lupuswarrior #spoonielife #spoonie #chronicallyill #disabled #disability #workingwhiledisabled #disabled #chronicpain https://www.instagram.com/p/Ck9oSYkpkDz/?igshid=NGJjMDIxMWI=

#lupus #lupusawareness #lupuswarrior #spoonielife #spoonie #chronicallyill #disabled #disability #workingwhiledisabled #chronicpain

[cozy-comfy-cuteness]

Guess who tried to go for a walk in sunny weather? This dumbass. This is before, during, and after. With sunscreen and a hat. I am not sure what to do. I want to go walking without my skin feeling like it's going to melt off. Happy the weather and time is changing. #chronicillnesslife #chronicillness #chronicillnessproblems #lupus #lupuswarrior #spoonielife #spooniesupport #spoonie https://www.instagram.com/p/CkmiobFry3R/?igshid=NGJjMDIxMWI=

#chronicillnesslife #chronicillness #chronicillnessproblems #lupus #lupuswarrior #spoonielife #spooniesupport #spoonie

[lindgrenjulie]

#Repost #chronicillness #lupus #lupusawareness #lupuswarrior Post: @simplyspoonie Feel free to repost this if you want! ✨🌈 #spooniecommunity #spoonie #chronicillnessquotes #chronicillness #invisibleillness #disability #autoimmunedisease #mentalhealth #lupus #crohnsdisease #colitis #mals #diabetes #cancer #arthritis https://www.instagram.com/p/CebER2ytwRw/?igshid=NGJjMDIxMWI=

#repost #chronicillness #lupus #lupusawareness #lupuswarrior #spooniecommunity #spoonie #chronicillnessquotes #invisibleillness #disability #autoimmunedisease #mentalhealth #crohnsdisease #colitis #mals #diabetes #cancer #arthritis

[livingwithlupus614]

The struggle is real

#chronic illness flare #living with lupus #lupuslife #lupuswarrior #sjogrens #chronic illness awareness

[yes-brandeebleueaurelie]

Forgive the 🎨 art-attack... Colors help me ignore my chronic pain.

#glitzglamfuckery #brandeebleue #coloringbookforme #peachology #art #blue #orchid #surreal foodie #lupuswarrior #lupusdiscoid #lupus #living with lupus #lupusawareness #systemic lupus erythematosus #canis lupus #lupus symptoms #diverticulosis #diverticulitis #ibs #ibd #chronic pain #chronic fatigue #help

[beingsanket]

#rheumatoidarthritis #chronicillness #chronicpain #autoimmunedisease #arthritis #fibromyalgia #lupus #spoonie #invisibleillness #rheumatoidarthritiswarrior #autoimmune #chronicillnesswarrior #osteoarthritis #spoonielife #rawarrior #lupuswarrior #jointpain #lupusawareness #pain #butyoudontlooksick #chronicfatigue #chronicpainwarrior #rheumatoidarthritisawareness #arthritisawareness #chronicallyill #rheumatology #mentalhealth #arthritiswarrior #depression #fibrowarrior

[pensamientosruidoso5]

Consider joining the community if you relate!!

Instagram @ chr0nic.ic0nic

#lupus #systemic lupus erythematosus #podcast #chronic illness #autoimmune #mental health #health #spotify #living with lupus #lupus symptoms #lupuswarrior #chronic pain #chronically ill

[izyjean]

I’m really loving how Yoga is tuning my body. 💛

#me #life #love #momvlog #lupuswarrior #thrive #chronicillness #autoimmune #fitness #healthandwellness #vitaminsandsupplements #sheingals #sheinpartners #Shein fashion #fashioninfluence #yogainfluence

[cake-n]

Update for anyone who cares , Firstly , it's my birthday!! I got admitted to one of the best hospitals in my country! So my new doctor (a professor how fancy) doesn't think I have lupus so I ran more tests and a biopsy, and we saw I have a little bit of nerve damage in the little fibers of my feet. My next test is in April sadly . I'm not on Plaquenil anymore so i'm still in pain when walking too long so I'm on paracetamol and opioids when in great pain. So if anyone is going through something similar I would love to chat ! I have to file so many complicated forms and wait like a year to see if I can be recognised officially as disabled :( so I can't get government help and access to accommodations in public . I try to use my cane less , because I can walk for an hour with relatively low pain but it makes my back arch >:( I can never win ! I'm in college ! It's weird but very stressful and cool , I'm on my own in a city close to one of the most beautiful city in the world so I'm very happy about that (except for the cost of living and the problems with accessibility and public transports). Oh I gotta make another post about abelism in public transports because I have things to say !!

#disability #disabled #diagnosis #cripple punk #cpunk #lupuswarrior #chronic illness #chronic pain #update #neuropathy