#pcos tag

[nojoom]

me, at 14 years old realizing that people got regular periods every month, for the entire year: fascinating, tell me more about this

#pcos tag #im sorry but if i ever experience truly regular periods im going to. well. idk. be very overwhelmed

[jarael]

I haven't talked about this here but in the past year, I've received 3 diagnoses:

-PTSD

-Polycystic Ovarian Syndrome

-ADHD

It's both not a big deal and still a huge deal, because I'm getting better at understanding my body and Why My Brain Is Like That.

#medical #pcos tag #adhd tag #ptsd tag #ask to tag

[magdaclaire]

ur not alone being pcos intersex !! always grateful to know others with the same situation

hand in pcos intersex hand, my friend. it's honestly a weird time for me sometimes because my sister, my mom, and my grandmother also have pcos, but we handle it very differently? like, i have dark facial hair and have since i was probably 10 or 11, and i didn't know that my mom and grandmother experienced the same phenomenon because they've both just shaved it their entire lives because it was the societal expectation at the time. and, like, it's still the societal expectation, i'm just very tired and also a guy so it's not happening, you know?

my sister's facial hair is lighter than mine and she goes back and forth on keeping it, but my mama (grandmother) has always shaved it, and she thinks it's weird that i don't- she's never said anything directly, but she's my grandmother and i know the look, you know? whenever i do something my mom wouldn't have been "brave enough" to do at my age, she's very proud. she got teary eyed the first time i wore a crop top in public (age 17) because they had successfully engendered enough confidence in me that i was a fat seventeen year old wearing a crop top in front of god and everybody. so she thinks it's neat that i keep my facial hair.

i also experienced a ghost period??? i had my first period when i was eight and then it was a whole year before i started bleeding with regularity- i'd get the cramps, the nausea, the headaches and light sensitivity, but i wasn't bleeding, so no one really Knew it was hormonal. if you are not currently on birth control and are able to be on birth control without experiencing dysphoria, i could not recommend it more as a pcos haver. it balances my hormones + my moods, because i didn't realize how much of my being upset with such frequency literally was hormone related.

sorry for being on one, i just don't get a huge amount of opportunities to talk about this with people outside of my family and i'm excitable <3

#mer rambles #thank you for the ask i really appreciate it #anonymous #ask answered #pcos tag #period cw #dysphoria cw

[tortiefrancis]

important reminder for people who menstruate:

if your cramps are so painful you can't do daily tasks, take care of yourself or get out of bed. if you pass out or vomit from cramps. if you can't walk or stand up properly from cramps. if you need to take pain medicine when you get cramps or else you will get sick, pass out, whatever.

seek medical help. people talk about how painful cramps are, and it's true, but there's a level of pain that simply isn't normal, and you need to get it checked

signed: someone who was recently diagnosed with endometriosis

#sam.txt #sam.message #psa #menstruation #menstrual cycle #periods #endometriosis #pcos #menstrual health #menstrual cramps #period cramps #health #emetophobia #emetophobia tw #medical #medical tw #ask to tag

[sparkles-and-trash]

Sometimes it feels like people kinda forget your pain when it’s chronic.

When someone healthy/able bodied gets sick or injured, people will pour out their support and understanding right away, which is good, obviously.

But after a while, people get tired of hearing about it.

They get tired of having to work around it, tired of having to be understanding.

But just because your empathy fades, doesn’t mean our pain and grief does.

I’m so, so tired of my pain. Of having to be understood. Of not having any chance to have a proper career, or dreams, or relationship.

I’m tired of my hands not working enough for me to write, draw and craft, which is what is normally keeping me going.

They just keep getting worse.

I’m tired of the pains related to my endometriosis and pcos making me unable to eat properly, get any exercise, and for making me bedridden more and more these days.

I’m tired of having to beg for support in what little buisniess I manage to make sure I survive during my rough recovery periods after surgeries and bad flare up’s.

I’m tired of knowing my life will not be a long one.

I’m tired of complaining, of being in pain, of grieving, of feeling like a burden.

There are no breaks for me.

That doesn’t mean I get used to it. I will never be used to it.

And I think I should be allowed to talk about all of this without feeling like a burden.

I probably won’t ever get to that point, but this is me trying to get there.

By being open and honest, and hoping that at least one person takes the time to read.

If you’re still here, still reading, thank you. It means the world.

Be kind to those around you who are like me.

We’re not happy about our situations, either, but having people willing to stick around and listen makes it a little easier to survive.

Thank you ❤️‍🩹

#chronic illness #chronic illness awareness #chronic illness psa #chronic illness support #disabilties #disability #lupus #lupusawareness #living with lupus #endometriosis #pcos #cfs #scoliosis #chronic migraine #chronic mental illness #mentalheathawareness #irl tag #personal

[beenovel]

I dream of things, just like anyone else. The things I dream of are so far beyond my reach I may as well be dreaming of riding a dragon.

I dream of a body that does not hurt. I dream of a mind I can trust. I dream of a life where I don’t have to down medication the second I wake up. I dream of travel, without the worry of where I’ll get my medication, without the worry of how the new environment will hurt me. I dream of holding a steady job, of being able to provide for myself, something I may never have. I dream of going through my day without having to calculate how much energy each task will consume.

I will never have most of these things. They will never exist in my life. And that is harder to accept some days.

#chronic illness #chronic pain #chronic fatigue #chronically ill #chronically fatigued #chronically disabled #chronically sick #autistic #autistic spectrum #autism #actually autistic #autistic adult #autistic experiences #autistic community #actually autism #bipolar #bipolar disorder #bipolar type 2 #bipolar type ii #bipolar tag #bipolar things #pcos #chronic inflammation #audhd #actually audhd #audhd problems #adult audhd #audhd life #rosacea

[nagichi-boop]

Winter is the season of being able to wrap up warm, wear a hat to cover up the hair that you haven’t had the energy to wash, cover those legs that you haven’t had the energy to shave, put a heat pad on the part of your body causing you pain.

And then there’s summer. /neg

#/lh #tagging stuff that may apply - not necessarily that I have #pots #postural tachycardia syndrome #postural orthostatic tachycardia syndrome #ibs #celiac disease #fibromyalgia #pcos #polycystic ovary syndrome #me/cfs #myalgic encephalomyelitis #chronic fаtiguе ѕуndrоmе #chronic illness #chronic pain #disabled #disability #hidden disability #physically disabled #nagichi talks

[sepulchritude]

My endocrinologist seemed to be a mostly serious person, but I like to think me referring to my lil pcos beard as a “freebie” while we talked about putting me on T startled a laugh out of her

#i’m sure she sees a lot of people all day who are very upset about having a pcos beard #was not aware that it was pcos (suspected but never bothered to confirm cause i was happy to have elevated T levels) #apparently having an iud and going on T means that the suspected-pcos will be well managed so ¯\_(ツ)_/¯ #we’re waiting on insurance to approve my prescription and then i’ll start T!! #she said it would probably be a week or two? #i’m excited and worried but mostly just super fuckin jazzed #i’m gonna be one of those people who record their voice every month or so to track changes #sepulchritudinous #testosterone #idk if i have tags for this yet #transition

[wormworker]

PCOS mood: having months-old cysts rupture and suddenly wishing you lived in a luxury home with an indoor hot tub, the most comfortable bed ever, and a gentle yet peppy servant named jessica

#pcos #actuallyintersex #actually intersex #disability tag

[thee-radio-host-is-a-kookaburra]

i have discovered that way too many of you guys think that intersex means perfectly split-down-the-middle male and female and that anything different from that is “not intersex enough”. my thoughts on that are that you should shut the fuck up

#looking in the intersex tags and saw yet another anon ranting about ppl with pcos “pretending to be intersex” #no dude. that’s an intersex condition. they’re intersex. sorry people don’t fit your view of what intersex “should” be like #intersex #intersexism #kind of

[nojoom]

why do my ovaries hurt oh no this is ominous isn’t it

#pcos tag #no more cysts i beg

[intersex-support]

Is there any resources on people with PCOS who go on T? I’m extremely worried and have not in any of the decade+ I’ve looked, been able to find anything on the changes regarding bottom growth, sexual stimulation, or even logistics, for people with PCOS or people with other intersex conditions who experience bottom growth. Trauma has prevented me from exploring what little answers i could get regarding logistics by viewing porn, and even then, it doesn’t even begin to explain a lot of the answers I need.

Touching my clitoris/proto penis/however to describe it causes me intense searing nerve pain throughout my body and genitals, and I’m seriously concerned that bottom growth and nerve cluster changes on T, one of the only irreversible changes it has, will prevent me from being able to go on T.

I genuinely don’t know what to do. My genitalia has given me dysphoria all my life, and despite how extremely uncomfortable and visceral my reaction is to getting vaginally penetrated, it’s currently the only way I can feel any kind of pleasure or have sex involving penetration with my partner (i cannot do anal). I’m seriously worried that something that isn’t even guaranteed to grow enough to be usable differently in any way (bottom growth), is going to cause me so much pain that I have to stop and cope for the rest of my life with what irreversible changes occurred, and I cannot afford to waste money or negatively impact other health conditions with body/mental/endocrine system stress and any negative/compounded impact to my other disability’s neuropathy symptoms.

Thank you so much.

Hi, Anon.

This sounds like it's been a really difficult decision to consider, and with all the reasons you've listed out, it makes so much sense to me that you might be feeling conflicted about what you want to do, concerned about the pain, and I really empathize with not even being able to access resources that could help you untangle some of this. You're definitely not alone in this, and I wish there was more easily accessible information so that we as intersex people could feel supported in our desires for our bodies.

One really good resource that I've found is a doctor who did an interview talking all about hormone management when it comes to PCOS in the trans patients she sees. She explains that almost all people with PCOS can go on testosterone, and that it doesn't significantly raise the risk of complications associated with PCOS, but might change some of the monitoring that doctors would want to do. This interview is a really good overview of what medical transition and PCOS might look like, and how other treatments for PCOS might interact with that.

This study shows that testosterone HRT is not likely to significantly affect the metabolic complications of PCOS beyond what is already naturally occurring due to PCOS.

This study is long and not super relevant, but does show that within the study groups they were focusing on, the percentages of trans patients on testosterone HRT with PCOS ranged from 5%-58% of the study groups, which shows us that there are regularly people with PCOS taking testosterone without major health complications.

I'm not as familiar with how testosterone HRT affects the clitoral nerves, and I was also having a hard time finding resources that felt relevant for how going on T would affect sensation, pain, and overall experience during sex.

I want to give a content warning for a little more in depth discussion of genitalia and clitoral sensation.

So although I don't have any formal resources, I'm a trans person on T who had hyperandrogenism and clitoromegaly before going on T, and I asked around the other intersex people who I know that are on T and in similiar situations. One thing that we've noticed is that compared to our endosex (not intersex) friends, we've experienced a lot less overall change in terms of bottom growth. Some of us didn't experience bottom growth at all, some of us experienced slight changes in bottom growth, and some of us experienced more significant growth, but still less then the endosex people we know. Some of us have hypothesized that this might be because our body already has already done a lot of the clitoral growing and either hit or gotten very near to sort of the "maximum" clitoral size for our body, so going on T didn't affect it as much. Again, this is all anecdotal and there hasn't been any research done on this, but this is something that multiple intersex people I know have experienced.

In terms of sensation, we all had very different experiences. Some of my intersex friends experienced no changes in sensation, some people felt like it was more sensitive, some people felt like it became less sensitive. Many of us already experienced a lot of pain during sex, and testosterone didn't necessarily change that experience for all of us. Again, take all this info with a grain of salt, since it's kind of just crowdsourced info from the couple dozen intersex people I know. One thing we've also noticed is that our experiences with T tend to be on a different timeline than a lot of endosex people's timelines, and some changes are very dramatic, while others are not noticeable. For instance, quite a few of us had our voice drop very quickly, but we didn't experience much change in body hair, since we already had a lot of body hair. Overall, I think it's really going to depend on each individual person's experience, but it can be good to be aware that things you see online about the timeline of changes on T might not be relevant if you're intersex.

I wish I had better advice or resources to give you, anon--but truthfully there just isn't that much out there for us. Unfortunately, I'm not sure how much information or certainty you would be able to find about sensation and pain--it can be really hard to predict the individual effects of T on our bodies, even if we can see what the general trends are like. It might be worth trying to look for a doctor who specializes in HRT and is also aware of intersex variations, like the doctor listed in the article. In fact, it might be worth writing an email and trying to contact that doctor with your specific questions, or ask if she can refer you to other providers that she thinks will be aware and competent. You will always be the expert on what decisions make the most sense for your body, and I really hope that you're able to get connected to someone who can give you the information you need to be able to make the best decision for you. Sending solidarity and love your way, anon.

-Mod E

#actuallyintersex #intersex #hrt #testosterone #genitalia mention #genitalia talk tw #<- tag to block if you don't want to see discussions such as these! #trans #pcos #followers in similiar situations feel free to add on

[vdemon-weeb]

So... I started T recently. The endo said it's alright and stuff, I got the first dose, and so far multiple changes are already showing. Everything is alright, but one thing keeps bogging my mind.

When I was looking through the results of the initial blood test, I found out I had a very high level of T, even higher than the maximum norm for post-menopausal women. I can't get it out of my mind. Why would it be like that? There were seemingly no abnormalities in my development or puberty. I don't know how well my reproductive system worked, but menstrual cycle was alright (I had them long with lots of blood as a teen, but lately it was shorter and lighter, the last one was already after T started, idk how it'll be further). I suppose, I was quite hairy even before T? I even had the "happy trail", but idk how common it is among AFABs.

I checked PCOS symptoms (myself), but apart from relatively high T and debatably hairiness and overweightness, nothing else fits. And hairiness was usually blamed on me getting it waxxed (my mom insisted), and overweight was just me not exercising and liking to eat. And how do I even check this now, after I already started HRT? I suppose I can go to a gynecologist while I still don't really pass, but I reeeally don't want to. I'll also need to get karyotype tested for some reason, I was sure it'll be just XX, but I now have doubt. Why the fuck it was like that?

I probably need some advice what to do here.

#original post #personal #ftm #pcos #sorry for tagging

[lifeof-pink]

a thing that i cant get out of my head is that i cant stop seeing han sooyoung in my mind as being fat, but canonically (manhwa at least) she’s incredibly thin? like idk in my mind she’s short and chubby but canonically she’s like. short and scrawny i guess haha

#*cough* back at it again w/the ‘imagining characters with my body type’ #han sooyoung imo is chubby but thats just me #perhaps even a pcos haver #idk i love her i project onto her #im not adding this to main tag im too scared

[sparkles-and-trash]

I’m going to Oslo for a very important hospital appointment today.

It’s been weighing pretty heavily on my lately, and I’d love if anyone had any extra good vibes to send my way today 🥺💜

#irl tag #personal #gonna have to fight for a bigger surgery lol #love being a woman #endometriosis #endometriosis awareness #pcos #womens health #health tag

[cosmo-in-a-can]

I think someone should dissect me. Just see wtf is going on inside of this fleshsuit and fix it up so I can go about my day without feeling like a book all swollen and unreadable from water damage. I am so tired I am so tired I am so tired.

#ramblings #vent #chronic illness #chronically ill #mental health #PCOS #<I made this post about these specifically but feel free to tack on whatever tags you like