Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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I have absolutely no opinions on the Barbie movie but since I am already seeing discourse about it all over my dash I am begging people once again to get involved in some kind of local activism so they will stop thinking what movies you watch is a hardhitting form of praxis
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there are days that it is hard, and unfair, and some horrible part of me wishes i could have been born in a different world. i love being queer, i hate how others react to it. when i first came out at 15, my mom whispered: please don't say that. your life would be so much harder.
it is harder.
it is also a tuesday, walking my dog. we are both skiving off of work, and yes both of us have dyed hair and pronouns. mine is patchy - it was my first time trying bleach; i didn't have enough. theirs is a resilient toadstool green. a little girl comes up to us and asks um, excuse me? is your hair real? 'cause jason says you're a fairy.
it is sunday brunch, all of us talking over each other, overfull on love. she is trying out a new name today, and we made her a cake with today's name scrawled in shaky purple letters. she laughs so much she cries and then gets frosting in her hair. someone young at a different table keeps giving us these large, wide eyes: the same look we have all been on the other side of. the kind that says, breathless: wait, is that possible?
it is a half-fight in a supermarket because he loves "dance moms" and says abby's tiktok is funny and meanwhile i think the children in that show should be allowed to sue abby lee miller for child abuse. i tell him that it led to the casual acceptance of child harassment for mainly adult views; and then i am standing, suddenly, in someone else's thrown soda. there's a white lady standing there, furious, saying something about hell-on-earth. i had forgotten i was wearing stuff with pride colors. and then it is this: he had just been casually arguing with me - and within an instant, he squares his shoulders and goes after her like i am his sister
on saturday i sat in a circle while beca played with my hair and we were all over 30 and we laughed about how much happier we are being this old, how much more we appreciate our community. 25 minutes from now, we will be on stage to dance in baggy beige clothing, but for now we look on with envy to the dancers in loud-and-bright buttondowns. where are they getting these shirts! i cry, distraught. everyone laughs. one of our friends has a mushroom witch hat. this would have been cringey in high school, probably. instead we are all delighted with each other; happy just to be here and alive and moving
it's that last week my new friends cried with joy for me when they heard i'm getting top surgery. every so often i have the honor of being the first person someone feels comfortable enough to tell. i'm trying to make long fluttery butterfly wings to wear to pride; but i don't know anything about fabric or dye, so my friends have been sending me their personal advice.
i think in a different poem i would talk about how sometimes you walk into a room and put the mask back on. but i'm sleepy and my whole brain is fuzzy so i think in this one, it's a monday, and my dog and i took a nap on a couch, and i had missed texts from friends. i used to wake up lonely. i think this poem is about walking into a room and seeing someone and just knowing, the way you just-know-sometimes, and then giving them that little smile, and seeing them light up with joy and relief. it is how we always seem to be able to find each other in a crowded room. how we always seem to make friends with each other before even we know-it-to-be-true. it is saying: we're very different people; but i belong to you.
it is harder, yes. but it comes with a built-in family.
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i just KNOW that simon riley is a messy kisser. this mf is grabbing you by the hips, waist, hands, thighs, neck, he does not care—hands rubbing up and down your curves like he doesn’t know where to touch first. it’s all teeth and tongue—he’s one impatient mf. he’s waited long enough to kiss you, he’s not gonna be light. and i know he doesn’t half ass that shit!!! this man is either kissing your forehead softly or making out with you like there’s no tomorrow. definitely the type to “accidentally” bump into you while you’re doing something and use it as an excuse to kiss you. he’s not a PDA person, but when you’re alone he’s always, and I mean always got a hand on you. one hand on the wheel, the other on your thigh or holding your hand. he lets you have aux too, but he’ll complain about your “shit music” every time. EVERY TIME!!!
can you tell i’m in love with this man
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In love with the idea of captain marvel being Billy's imaginary friend. Like, it'd be so easy. Early depictions had them as almost fully separate people sometimes, like one soul with two minds, rather than just two filters like we mostly see now.
But imagine a Billy down on his luck, hurt and hiding from police and criminals alike, daydreaming the hours away as children do, taking inspiration from all the superheroes rising to fame, making little stories to play out his dreams of saving the world with a generic action doll he found while dumpster diving once. Most of the paint's rubbed off.
Red's his favourite colour, his comfiest jumper is a bright ruby even after all the grime and washes. Gold, too, it's shiny and warmer than silver! A hero cape is a must, big and eye catching! And he can fly, of course, like superman, and in his daydreams, when he's sore and frustrated after a long day's grind, his superhero is smart enough and knows all the right words to get the bullies to stop without resorting to fighting.
His superhero fantasy is one he spends a lot of time on, the first one he goes for when struggling to sleep at night, and he can picture it so clearly. Captain marvel is big and bright and kind, strong enough to lift the boxes for the old lady up the road who's moving all by himself, fast enough to catch Jamie who fell out of the tree on Saturday and broke his leg and couldn't come to class for weeks. He appears at the entrance to alleys when Billy is cornered, he steps up behind to cover for him when he gets caught shoplifting, he sits at the bus stop with him when it's pouring rain and the right bus doesn't seem to be coming.
And then the wizard comes, or rather whisks him away, and like a magician from a fairytale breathes life into his imaginary friend until Billy feels thrice his size and a million times more invincible.
From then on, captain marvel is a real hero, just like Billy is a real boy, and as one they save the whole city, and then the whole world, and get cats down from trees and help Mrs Victoria move the last of her boxes and she gives them a pinch in the cheek and cookies for the road and sometimes it hurts but it's so much better than he imagined.
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