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#fibromyalgia warrior
my-brain-is-soup · 2 years
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thelupuslady · 2 years
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somethingnubian · 5 months
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The Calming Beats: A Fibromyalgia Warrior's Journey with Andre 3000's New Blue Sun
As the last notes of "New Blue Sun" fade away, I find myself not only satisfied with a productive day but also inspired
Picture this – sipping on coffee from your specially crafted mug, the aroma wafting through the air as Andre 3000’s latest album, “New Blue Sun,” sets the perfect rhythm for a productive day. In this blog, I’m sharing how this musical masterpiece not only provided the soundtrack to my work but also became the soothing balm for my fibromyalgia-afflicted soul. Musical Therapy for Fibromyalgia:…
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not-your-pussikat · 7 months
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Suffering from fibromyalgia is a bit like playing Russian Roulette without the dying---you never know which body part will become unusable from overwhelming pain on any given day.
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burning-thistle · 9 months
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Battle Cries hits different when you have a chronic illness
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chronicsickness · 2 years
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I don’t think people understand the grieving you go through when you become chronically ill. The realization that you’ll never feel healthy again. That you’ll have this struggle and this pain for the rest of your life. That your body won’t ever be or feel the same that it used to. Sometimes I just sit and I cry and I grieve because I miss healthy me. I miss her so much.
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willowisachy · 6 months
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i hate the after-holiday crash/flare up i get. it’s like im being punished for having a good time and doing fun things :(
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crps-chronicpain-ptsd · 8 months
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Chronic pain problems •
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seven-oomen · 8 months
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Being chronically ill in a heatwave is torture. I'm so grateful I bought an a/c 4 years ago, otherwise I wouldn't survive with my dysautonomia. I can't regulate my own temperature. Already have a fever due to a throat infection. And my heart rate is consistency around 100 even though I am lying on my bed doing absolutely jack shit.
And then there's the shoots of agonizing pain that are going through my limbs.
Yeah I'm doing great.
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windysjourney · 6 months
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Guilt & Chronic Illness
Something I’ve noticed as I navigate living with chronic illness and connecting with others who are on the same path, nobody really speaks about the guilt that comes with chronic illness. I know in my own life I certainly have felt guilty for being sick and not being able to do the things I used to be able to do with and for myself and my family. My chronic illness is debilitating, which means…
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my-brain-is-soup · 2 years
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They want to remind you!!
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thelupuslady · 2 years
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My pots is so much worse in heat. With lupus the sun wants to off me haha. Almost 90 degrees here today. Oof.
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riddledem0n · 1 year
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I'm in desperate need to save up some money since I'm finally following my therapists advice to save up for a wheelchair as my Fibromyalgia and chronic fatigue is making it harder and harder for me to function. If anyone's interested, I'm offering these clean doodles for 9€ each. I know that any higher price won't attract people, which is why it's so damn low.
If interested, please message me!
More examples below:
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not-your-pussikat · 5 months
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Me, when asked how my health issues are going: "Right now, I have at least three doctor's appointments per week."
Healthy people: "THREE PER WEEK?!?"
Me, silently in my head: Which part of "chronically ill" are you struggling with in particular?
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violet-phoenix-nebula · 10 months
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I've recently found out that July is disability pride month.
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I personally still struggle to apply the word disabled to myself, primarily because of the classic 'not enough' mindset. I was diagnosed with fibromyalgia a few months ago, after my symptoms worsened drastically following a car accident and concussion.
Maybe it's partly because this time last year, most of my body worked the way it's supposed to, minus some pain.
Maybe it's because I can still walk and function, though the duration and frequency I'm capable of has plummeted.
Maybe I would still feel 'not disabled enough' if I was paralyzed. Who knows. But 'disabled' is a word I struggle with right now, despite fibromyalgia being listed as a disability. Classic imposter syndrome, really.
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However, it's a lot easier to use the words 'disability' and 'disabled' when talking about my 3 year old daughter.
Not because she's currently, actively disabled in the way adults with Ehlers-Danlos Syndrome are, but because of how likely it is that she will be disabled to some degree as an adult.
My 3 year old, who has already had a dislocation.
My 3 year old, who has been in physical therapy since before she could sit up.
My 3 year old, who will most likely be in physical therapy her entire life.
My 3 year old, who won't be able to play the majority of sports in school.
My 3 year old, who will inevitably notice all the things her (fraternal) twin can do that she can't.
My 3 year old, who already knows when to bring me the children's tylenol.
My 3 year old, who is already familiar with chronic pain.
I'll tell you right now, that last one is gut wrenching. To know that my tiny, innocent child deals with chronic pain already... There truly aren't words.
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So, while I'm still a bit uncomfortable "claiming" disability pride month for myself, I will loudly claim it for my child.
Fibromyalgia flag credit: @bees--on--toast
Ehlers-Danlos Syndrome flag credit: @eddies-spaghetti
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chronicsickness · 1 year
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the amount of medical gaslighting that happens to people with chronic illness is so disappointing. Every single chronically ill person that I know have experienced some form of it. I feel like there should be guidelines in place before people in the medical field are able to throw someone’s mental health, age, or appearance in their face. So many people get sicker or go undiagnosed and without treatment for so long because of this. It breaks my heart looking back at the way I used to have to beg for help and leave every appoint disappointed and in tears because no one would take me seriously. My heart goes out to anyone in the midst of that. Please don’t be afraid to let them know if you think they’re wrong, please don’t be afraid to advocate for yourself. I wish I did sooner. I waited 5 years to find a good team of doctors and a diagnosis. It takes most people 6-10. It shouldn’t be like this.
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