#pem

[chronicallydragons]

Very rude that fun spoons are still spoons

#my body is committing hate crimes against me #me/cfs #PEM #post exertional neuroimmune exhaustion #fibromyalgia #chronic illness #disability #migraine #postural orthostatic tachycardia syndrome #chronic fatigue #chronic pain #pots #gastroparesis #MCAS #interstitial cystitis #hEDS

[pandemic-info]

Why You Should Rest If You Have COVID-19 | Time

#covid #long covid #article #time magazine #time #rest #PEM #post exertional malaise #pasc

[artdecoandmodernist]

Cover illustration by PEM (Maurice Pepin), Le Sourire Cover, French Magazine, 1933

#pem #illustration #cover #1933 #le sourire #cover illustration #art deco #maurice pepin #Le Sourire cover #30s covers #30s illustration #1933 illustration #summer #summer fashion #stripes #big hat #wide brim hat #smoking #attitude #the art of smoking #smoking hot #chic #my edit #edits #Beachwear #beachlife #beach babe #betty boop #betty

[nutnoce]

Fire suppression p.1 & p.2: “Flame Retardant” & “Building Potential” Inspired by the PEM's ‘Our Time on Earth’ exhibit

I was gladly surprised to see the exhibit’s various optimistic installations, especially the building materials of the future. As a forestry student I am beginning to understand our relationship to our forests differently. In the US, forest policy which aimed to suppress wildfires has contributed to a century-long build up of fuel that would otherwise have been cleared by controlled burns or small spontaneous ground fires. Indigenous peoples shaped the forests of the Americas to require these controlled burns. More and more I realize that indigenous knowledge and collaboration is a necessary part of the stewardship of future. A concept which is present at large at the museum but also specifically within Our Time on Earth. Getting a ‘sustainable’ amount of lumber from our forest still disregards the health and purpose of these trees to a diverse and complex ecosystem. It is essential that we diversify our building material, to include carbon-negative things like mycelium! Natural resources that are close by, and at hand in our local environment, which doesn’t require chopping down a tree 3000 miles away and transporting it to the US. We need local resources whose collective cultivation lead to a sense of community and collaboration. A better future!

My thanks to lane.m.artin for collaborating with me for p.2!

#acrylic painting #artists on tumblr #PEM #peabody essex museum #climate change #fire suppression #wild fire #TEK #Traditional ecological knowledge #controlled burning #art of mine #solarpunk #is how i would describe the exhibit but listen I am just doing my best and maybe this gallery might even see this piece in it's peripheral #and thats a win #contemporary art

[mothbaubles]

12 - handles

No matter what changes, they'll always share a love for music

(please click for higher quality!)

#baubledoodles #furry #anthro #wg #hugo #pem #fatfur #octumber 2023 #art #wanted something more tender and grounded #not everything's gotta be sexy-- little touches and keeping company are just as wonderful #it's probably how these two spend most of their time really #outside of making music themselves

[bopaaaa]

🌙Reunit🌕

:

Hello❤️ Finally! Today! I finished the short comic I said I would prepare!

The comic is about amy finding out that Pem, my mc, died of the red plague and she finds her in razaret. Asar has a small gift to give her and goes back to Vesuvia to her shop to reunite with her. Upon arrival, Asra notices that the shop's sign has not been maintained as it was before. Feeling uneasy, he cautiously opens the door and enters the shop. As if this ominous feeling was correct, there is a letter from Pem on the table. Reading the letter, Asra is shocked to learn that she is dying of the Red Plague. Soon after, his surroundings seem to close in on him, engulfing him with dark truths. Denying that she is dead, Asra runs with all his might to find her and reaches the island. Searching for her, Asra finds the remains of the trinket she always wore in her hair until her death. He digs in the dirt, unaware that his hands are scratched and bleeding. After digging for a while, only the tragic last vestiges of her life emerge from the dirt. Asra breaks down, bursting into the tears she's been holding in all this time, denying the truth and clinging to a shred of hope.

This story is my reimagining of the ASRA route (or maybe not) to fit my MC's personality. I didn't really start drawing the storyboard in one sitting, so the artwork may look a little... a lot... maybe even a lot different from scene to scene because I haven't drawn for so long...hehe…Please bear that in mind 🙏🙇🏻‍♀️❤️

#the arcana #the arcana game #the arcana fanart #illustration #the arcana apprentice #the arcana asra #asra alnazar #asra fanart #asra x apprentice #asra x mc #asra #asra alzanar #asra the arcana #asra art #short comic #bopa1004 #pezermay kwon #pem #red plague #may be triggering #maybe #…? #im not sure #the apprentice #artist on tumblr #digital arwork #digital fanart

[crazycatsiren]

When The Fatigue™️ hits hard and you feel like you don't even have the strength to hold up your own body:

#shitpost #disabled #spoonie #cripple punk #chronic fatigue warrior #me/cfs #pem #chronic illness warrior

[jennmakesitweird]

I'm tired.

I used to have energy. I used to be productive. I could make a big 'to-do' list and take pride in checking off each item as it was finished. Now getting more than one thing done per day is a huge accomplishment (and will likely mean I'm extra exhausted tomorrow).

I used to be creative. I could spend hours at my computer writing or designing. I had creative hobbies, too, DIY-ing things. By December 1st I'd have dozens of handmade gifts ready to go for the holidays. Not this year. Now I can spend - at most - an hour doing any one of those things before everything becomes a jumble and my brain seizes up and taps out. (Only one thing per day, though! Don't want to over-exert myself!)

I used to get up early. I would exercise: daily yoga, walks, roller skating. Now I sleep as long as I can. I drag my aching body out of bed and hope that maybe today it won't be too bad, that I'll be able to move around without pain. I'm exhausted by 8pm.

This isn't old age.

This isn't menopause.

I can't work. I can't enjoy life anymore. I see everything that I loved about my life - about ME - slipping away. I want to be silly again. I miss my sense of humor. I don't want to lose these worlds and stories and fantastical ideas I've had rattling around in my brain. I don't want to lose hope.

This is chronic illness, I guess. Chronic fatigue. Fibromyalgia. Long Covid. Whatever they want to call it. All I know is that it's breaking me.

I'm tired. And I'm sad. And I want my life back.

#ramblings #chronic illness #chronic pain #chronic fatigue #long covid #fibromyalgia #CFS #PEM #feeling sorry for myself

[spacedocmom]

Doctor Beverly Crusher @SpaceDocMom Do lovely, fun, productive things with your day but if you have a chronic illness and/or disability that can lead to post-exertional malaise then please don't push yourself too hard. Take breaks, pace yourself, give yourself extra rewards from me. emojis: black heart, blue heart, masked, lollipop x 5 2:01 PM · Nov 21, 2023

#star trek #doctor crusher #star trek the next generation #star trek memes #star trek tng #support #kindness #care #compassion #chronic illness #chronic pain #chronic fatigue #disability #spoonies #spoons #pem #post exertional malaise #pacing

[chronicallyuniconic]

Post Exertional Malaise (PEM) - What is it?

describes the worsening of your symptoms after minor physical and/or minor mental exertion.

can occur within 48 hours of activity, leaving you worse for days, weeks, months or even years.

What it DOES NOT describe is that the minor physical or minor mental exertion can come from*:

- sitting up or rolling over in bed

- a coughing fit

- DIY noise

- the TV being too loud

- using the bathroom

- getting too cold or too warm

- too much light in the room

- a phone call or text conversation

- a hot shower or bath

- the noise of a hairdryer, of dishes being put away, the vacuum

*this is not a complete list by any means, it's all I can manage

For me, PEM has been one of the hardest to accept, knowing that the smallest of things will make my symptoms worse.

I genuinely used to think it was something people were wrongly trying to pinpoint because we usually have no other reasons & crave reasoning, so "it can't be from doing ONLY that," right?? Wrong.

I'm already having these symptoms, but now I'm going to suffer more with the symptoms because of some hollow event like brushing my damn teeth??

It's hard to accept because these things did not affect me this way before, but now, I cannot bear them.

Being in a state of PEM is to be in a state of pure suffering. You feel like you're dying but you're not, you're waiting for it to stop.

PEM makes me extremely depressed & all I want to do is be alone. In fact I HAVE to be alone, because everything is too overstimulating & makes it last longer.

It makes me extremely irritable, when I have to strain my way through the day, forcing my head to stay up with my hands, when all I may have done is fold some washing.

Stretching and straining my eyes open like I have been awake for 3 weeks. Trying to stand up but it's like someone in front of you forcing you back down with their body weight, every single time.

I get unbelievably apathetic towards PEM, because "this is who I am now" & I DESPISE IT.

Being ill, PLUS being in a state of PEM is living torture. It's the antithesis of everything I aspired to be. It is NOT ME.

#post exertional malaise #PEM #chronic life #chronic pain #chronic illness #chronically ill #chronic fatigue #fibromyalgia #myalgic encephalomyelitis #mental health #spoonie problems #chronic migraine #out of spoons #sorry for being depressing #i'm so tired #chronic disability

[chronicallydragons]

Not enough heating pad for the ouchie so I’m just rolling around like a rotisserie chicken

#*microwave noises* #PEM’s got HANDS today #chronic illness #fibromyalgia #me/cfs #disability #gastroparesis #migraine #postural orthostatic tachycardia syndrome #chronic fatigue #chronic pain #pots #PEM #ouchie #rotisserie chicken #food mention #cw food #hEDS #ehlers danlos syndrome #MCAS #interstitial cystitis #am i dying?

[myalgicencephalomyelitiscfstom]

Ed Yong is an award-winning journalist who has been praised for his previous in-depth articles on long Covid

"Pacing is more challenging than it sounds. Practitioners can’t rely on fixed routines; instead, they must learn to gauge their fluctuating energy levels in real time, while becoming acutely aware of their PEM triggers.

...pacing isn’t a recovery tactic; it’s mostly a way of not getting worse, which makes its value harder to appreciate."

One person’s summary: “Ed Yong nailed it again, writing almost an entire article about PEM. He acknowledges all the major difficulties of living with it: The inability to do things you want, the inability to do activities to manage your mental health, that doing one small thing means you can't do something else later, the false accusations it's psychosomatic, and the lack of support people receive.”

#post exertional malaise #long covid #myalgic encephalomyelitis #chronic fatigue syndrome #pem

[jesusonafrickinboat]

May is ME/CFS Awareness Month!

ME/CFS stands for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Chronic Fatigue (CF), a symptom of many chronic illnesses, is not the same as Chronic Fatigue Syndrome (CFS). There is a push for ME/CFS to be exclusively known as Myalgic Encephalomyelitis (ME) in the future

ME/CFS is a complex, fluctuating, chronic medical condition affecting multiple body systems and symptoms can change unpredictably

Post-exertional malaise (PEM) is the hallmark of ME/CFS

More on symptoms: Symptoms of ME/CFS

ME/CFS affects an estimated 836,000 to 2.5 million Americans, the majority of those diagnosed being AFAB

An estimated 90% of people with ME/CFS are undiagnosed

About 25% of people with ME/CFS are bedbound or housebound for long periods

Most of those diagnosed never regain their pre-disease level of functioning

The root cause of ME/CFS is unknown

Possible triggers include: viral infections (such as mono, the flu, or COVID-19), bacterial infections, physical or psychological stress, and immune system changes. There may also be a genetic component

There is no cure or approved treatment for ME/CFS

However, some symptoms can be treated. For example, PEM is treated by pacing. More on treatments: Treatment of ME/CFS

ME/CFS costs the US economy about $17 to $24 billion annually in medical bills and lost incomes

The ME Association and the CDC have more in-depth articles on ME/CFS for more information

#me/cfs #me/cfs awareness month #me/cfs awareness #myalgic encephalomyelitis #chronic fatigue syndrome #millions missing #chronic illness #disability #invisible disability #neuroimmune disorder #fatigue #post exertional malaise #pem #post exertional malaise awareness #pem awareness #post viral illness #me awareness #cfs awareness #long covid #awareness month

[beakstwopointoh]

#pem #me/cfs #cfs/me #me cfs #cripple punk #cripplepunk #chronic illness #chronic pain

[mothbaubles]

6 - gurgles

Pem loves hearing the sounds of his hard work~! Especially when it makes Hugo all cute and huffy

#baubledoodles #furry #anthro #wg #hugo #pem #fatfur #octumber 2023

[bopaaaa]

You are the idiot.

#the arcana #the arcana game #the arcana fanart #illustration #the arcana apprentice #arcana apprentice #pem #digital arwork #drawing inspiration #erupts at #dawn