probably time for this story i guess but when i was a kid there was a summer that my brother was really into making smoothies and milkshakes. part of this was that we didn't have AC and couldn't afford to run fans all day so it was kind of important to get good at making Cool Down Concoctions.
we also had a patch of mint, and he had two impressionable little sisters who had the attitude of "fuck it, might as well."
at one point, for fun, this 16 year old boy with a dream in his eye and scientific fervor in heart just wanted to see how far one could push the idea of "vanilla mint smoothie". how much vanilla extract and how much mint can go into a blender before it truly is inedible.
the answer is 3 cups of vanilla extract, 1/2 cup milk alternative, and about 50 sprigs (not leaves, whole spring) of mint. add ice and the courage of a child. idk, it was summer and we were bored.
the word i would use to describe the feeling of drinking it would maybe be "violent" or perhaps, like. "triangular." my nose felt pristine. inhaling following the first sip was like trying to sculpt a new face. i was ensconced in a mesh of horror. it was something beyond taste. for years after, i assumed those commercials that said "this is how it feels to chew five gum" were referencing the exact experience of this singular viscous smoothie.
what's worse is that we knew our mother would hate that we wasted so much vanilla extract. so we had to make it worth it. we had to actually finish the drink. it wasn't "wasting" it if we actually drank it, right? we huddled around outside in the blistering sun, gagging and passing around a single green potion, shivering with disgust. each sip was transcendent, but in a sort of non-euclidean way. i think this is where i lost my binary gender. it eroded certain parts of me in an acidic gut ecology collapse.
here's the thing about love and trust: the next day my brother made a different shake, and i drank it without complaint. it's been like 15 years. he's now a genuinely skilled cook. sometimes one of the three of us will fuck up in the kitchen or find something horrible or make a terrible smoothie mistake and then we pass it to each other, single potion bottle, and we say try it it's delicious. it always smells disgusting. and then, cerimonious, we drink it together. because that's what family does.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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turn left is literally the most insane episode ever written. yeah the main character would kill himself if he didn't meet his best friend and the UK government is like 2 bad days away from putting all non-english people into labour camps. also all your favourite characters died trying to do what little they could. wouldn't that be crazy? anyway time for the daleks again
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I love how on Tumblr, "media literacy" has become "Um, just because someone writes about this doesn't mean they're endorsing this. I hate all these media puritans ruining everything."
I'm sad to inform you that knowing when and whether an author is endorsing something, implying something, saying something, is also part of media literacy. Knowing when they are doing this and when they're not is part of media literacy. Assuming that no author has ever endorsed a bad thing is how you fall for proper gander. It's not media literacy to always assume that nobody ever has agreed with the morally reprehensible ideas in their work.
Sometimes, authors are endorsing something, and you need to be aware when that happens, and you also need to be aware when you're doing it as an author. All media isn't horny dubcon fanfic where you and the author know it's problematic IRL but you get off to it in the privacy of your brain. Sometimes very smart people can convince you of something that'll hurt others in the real world. Sometimes very dumb people will romanticize something without realizing they're doing it and you'll be caught up in it without realizing that you are.
Being aware of this is also media literacy. Being aware of the narrative tools used to affect your thinking is media literacy. Deciding on your own whether you agree with an author or not is media literacy. Enjoying characters doing bad things and allowing authors to create flawed or cruel characters for the sake of a story is perfectly fine, but it is not the same as being media literate. Being smug about how you never think an author has bad intentions tells me you're edgy, not that you're media literate. You can't use one rule to apply to all media. That's not how media literacy works. Sorry! Sorry! Sorry! Aheem heem. Anyway.
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don’t get me wrong, i’m all for the ‘aziraphale knows crowley loves him and crowley knows aziraphale loves him’ meta posts but. haven’t we known that since “you go too fast for me, crowley”? isn’t that statement a clear indication that they both know what’s happening but it’s new and scary and very real. they’re at different speeds but they know it’s love
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