Tina Cohen Chang should've killed people.
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Lil Nas X is someone who tragically had to have a wildly successful music career in order to support his true passion, being a top quality internet troll
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someone please help me find that quote about how someone was overwhelmed with the weight of the world and their problems when they were physically alone, but that weight felt like nothing in the presence of a friend and good conversation
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lived my whole life in guilt bc i thought i was responsible for people's feelings. newly realizing that other people are responsible for their feelings and reactions, even if they make it seem like i'm the problem. a lot of the time it really has to do w them and their own emotional regulation. i can't keep thinking i'm not allowed to have space bc of other people's insecurities. like i literally refuse to dim myself. other people are responsible for their feelings just as i'm responsible for mine.
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you know what boils my blood.
over the last 2 weeks, i've seen countless patients walk into my urgent care center, symptomatic for so many things, refusing to get tested for covid and flu, citing that they don't want to knowingly bring it to their holiday tables. i had a patient tell me, verbatim, "i don't want to test for covid, because i don't want to be the asshole who brings it on a plane."
i understand that - i understand that holidays are times where people look forward to meeting loved ones that they might only see once a year, or where they get a break from the hectic back and forth of their lives.
but here's the thing - whether they get tested or not, they will bring whatever they have to their holiday tables. it's pure recklessness to know that you're sick, and walk into someone else's house spreading the disease.
today, january 2, i saw 91 patients, many of them who have tested positive for covid and flu. many of these patients are the same ones who didn't want testing 3 days ago, until their events were over, and now, they will have to reach out to everyone they know to let them know that they were positive because they were showing symptoms well before their event.
the next week or two? we're going to see many, many more, all people with symptoms that started around christmas. these are the only two viruses we test for rapidly in our office, but they are potent and can be fatal in many people.
so here's why i wrote this post, and maybe it's a little late, but - if you care about your loved ones, please get tested if you know you're sick. it doesn't have to be at a clinic if you don't want it to, because the over-the-counter tests work just fine too (if you test within 5-7 days of symptom onset). just...please don't try to run from the knowledge that you might have covid, because immunocompromised people, elderly people, people with co-morbidities like asthma, pregnancy, diabetes, etc...many of them may not recover. and they may not be sitting at your holiday table in the future because of it.
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I am curious, bc I just ran across one of those, 'everyone remembers where they were when 9/11 happened!' things so-
This isn't meant to be a commentary on the event, just whether or not you remember where you were/what you were doing when the news hit.
As an example, I was home sick, doing dishes, when mom yelled for me to get in the living room RIGHT NOW.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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tumblr users will have the most inaccessible, unreadable, low contrast, flashing carrd you can possibly imagine, with a dni full of insider acronyms with no translation and numerous link buttons labelled with cryptic captions, and then go ahead and put “ableists dni and kys!” on that carrd
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Apparently much-needed reminder that reposting artists' art (by saving the images or screenshotting them and reuploading them yourself) on other platforms without the artists' expressed permission and without credit is theft and an insult to their passion and craft. You are profiting (in views, in attention, in feedback) from someone else's work and ideas, who do not get that feedback for sharing their creation.
If you are an art reposter, you are a thief and I have no respect for you.
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