Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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"when i was your age, i was working three jobs to help support my family" and "when i was in college i was sleeping on a mattress on the floor and living off of soup"
YOU SHOULDN'T HAVE HAD TO DO THAT. NO ONE SHOULD HAVE TO DO THAT. I DON'T KNOW HOW TO EXPLAIN TO YOU THAT THIS ISN'T A CHARACTER-BUILDING LESSON, IT'S JUST BAD
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i swear sometimes i think people forget that Jon's s1 skeptic act was just that—an act. it was an act!!! he believes the statements!! he's believed them since episode one! do we so soon forget that he denied the statements were real because he knew the Eye something wanted him to be scared, and he knew that was bad, so he decided to act like the statements just didn't scare him? remember, he was working with extremely limited information ("when i record the tape statements, i feel watched, like something knows i'm afraid, and i don't want it to know that"), and came up with a genuinely solid solution with what he had! not his fault that the thing watching him was a literal unknowable eldritch entity that feeds on fear, and he was just some underqualified archivist.
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“It’s very rare, but some powers can awaken and affect objects aside from the wielder!!!”
You see it may look like they’re just running and improvising a plan on the spot,,, but it was ALL PART OF THE MASTER PLAN!!! (lying)
Speedrun/Time Travel AU masterlist
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if I asked very nicely would you all be willing to take a one minute anonymous survey for my linguistics class. if the answer is yes, please click here. thanks :)
(sharing for a better response size would also be very appreciated)
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