#migraine diagnosis

[resilientdeafie]

I just had a neurology appointment and got diagnosed with migraine. I'm starting on sumatriptan and topiramate.

#awareness #disability #disability rights #actually disabled #disability awareness #disabled #sumatriptan #topiramate #migraine #migraine diagnosis #headache #headache disorder #chronic migraine

[terrivond]

migraine.

#migraine headache #migraine therapy #chronic migraine #headaches #chronicpain #migraine triggers #migraine diagnosis #migraine symptoms #poetry #quote #poetic #my poem #poets corner #poetsofinstagram #new poets society #female poets #poeta #poems #poetrycommunity #poem #daily diary #dear diary #diary #journal

[harmeet-saggi]

Headache Or Migraine? How To Recognize, Manage, And Find Relief

Welcome to our guide on headaches and migraines! We're here to help you not only distinguish between the two but also to understand how to manage them effectively. Let's dive into the world of headaches and migraines, explore the diagnostic process, and discover the key signs that point to migraines.

Know More

#Headache #Migraine #Diagnostic Process #Telltale Signs #Migraine Diagnosis #Migraine Relief #Migraine Management #online doctor consultation #doctor consultation #online consultation

[melodymorningdew]

I cannot fight for my health and fight the world at the same f**king time.

#melody morningdew art #disabled #degenerative disease #undiagnosed chronic illness #undiagnosed disability #tic disorder #neurodivergencies #diagnosis #disability #undiagnosed chronic pain #chronically fatigued #chronic migraine #chronic disability #chronically ill #chronic illness #so fucking tired #fibromyalgia #hypermobile eds #multiple sclerosis #ms #dysautomnia #pots #no spoons #spoonie #medical gaslighting #medical trauma #angry disableds #low spoons #part time wheelchair user #autism

[affectionatepanda]

So apparently I’ve been diagnosed with fibromyalgia and my doctor just didn’t mention it to me??? Alright.

#disabled #chronic illness #disability #chronic fatigue #chronic pain #chronic migraine #diagnosis journey #fibromyalgia #rheumatology #fibro

[donniesexceptionalmind]

hai :3 trade offer You get: art of your choosing I get: infodump about space cat/and or autism (/nf btw)

*smug smile* YES, PLEASE.

I have talked about executive dysfunction before, but have you heard about

Autistic inertia?

It is the inability to change task or focus.

Our autistic brains love to be fully & all-consumingly engaged in one activity & we struggle to retreat back from it/ take a break to do something else.

You're probably familiar with the term hyperfocus, which is (to the person experiencing it) a positive side of being focused intensely on (preferably) your special interest. You can't stop & you're consumed entirely by it & it gives you joy. PURE BLISS!!

Although I tend to forget I exist during these times...

For me, inertia & hyperfocus are two sides of a coin.

Inertia does not give joy.

It can lead to the frustrating reality of my body & brain working against my desire to do something nice & relaxing.

It's independent of any desire to do the other activity; unlike procrastination, where you purposely avoid tasks due to reasons.

Example: I absolutely love The Legend of Zelda & I was in BLISS about the newest game. So naturally, one would assume I've beaten Tears of the Kingdom at least ten times & that I've reached 100%.

The hard truth: I have not even completed the four main quests, nor have I achieved to get the whole map of the overworld.

The desire to play it is... low. (SAD DONNIE NOISES)

This is because my brain struggles to adjust from one reality (the game isn't out yet) to the new reality (the game is released). I was so in awe & excitement that my brain still hasn't processed that it's truly playable now.

As time passes, the inertia will go away - you just have to be patient.

Sadly, autistic inertia is often seen as laziness or procrastination - a character flaw, if you will.

But it is tied to how our brains are wired & function. It's not a personal failure.

It's just one of many aspects that make autism a disability.

I'm trying my best 🥺💜

#I apologize for my absence life is hard & I struggle to find a balance between shutdowns migraines and trying to exist #on top of that is the reality of a TRUE REAL CONFIRMED autism diagnosis that's just BOOOM #I did self diagnose for 3 years but having professionals telling you you're correct AND you know MORE than them - woah. /srs #donatello infodumps #donnies exceptional mind #turtle net #rottmnt #autistic spectrum #rottmnt autism #i love to infodump #donnies special interests #autism #autistic inertia #inertia #rise autistic donnie #rottmnt autistic donnie #autism awareness

[wobblefloss]

STUFF I DIDN'T KNOW WHEN I WAS STILL ABLED...

It's not always obvious what's wrong.

.

Hi, Doctor. I'm tired. Like, all the time.

No. All the time. I wake up exhausted. I fall asleep at work. I fall asleep in the shower. I'm scared to drive.

No, Doctor. You don't understand. I'm not 'sleepy.' Not 'drowsy.' I'm tired in my bones. My blood feels heavy. The weight of my head hurts my neck. I can't think sometimes--I forget how to read--i get lost in familiar places! I say 'tired,' but I mean that 80% of my life, I feel like a sloppy heap of mud splattering and crumbling from too much moving, too much thinking, too much feeling, too much light, too much noise, too much everything. I'm confused and disoriented and like I'm in a terrible dream.

Oh.

That's a symptom of a lot of things?

Anemia. Migraine. Sleep apnea. Vitamin deficiency. Thyroid dysfunctions. Brain diseases. Heart diseases. Neurological disorders. Blood disorders. Autoimmune issues. Depression and other psychiatric conditions. Lifestyle choices: sleep, food, activity level. Environmental factors: mold, pollution, allergies.

There's a lot of testing to rule things out, huh? Could take years? Yes, I know it will be expensive. Yes, I accept that some of the tests will hurt. Yes, I commit to rearranging my eating/sleeping/exercising habits and seeing every recommended specialist.

Doctor, you don't understand. Either we find an answer, no matter how long it takes, or I am trapped outside of the world forever for no reason. Not testing won't make these horrible feelings stop.

Can you imagine feeling this way? Always? During your friends' birthdays? When your boss demands work? When you're home alone in the middle of the night trying to remember how the sink works? During the commute. During the shower. Taking out the trash. Feeding the cats. Staring at your bills. Talking with your family. For years... weddings, funerals, holidays, weekends, 4am, 4pm, when your loved ones need you, during every emergency, while you fail at your job, at your hobbies, at your relationships, at being your basic self?

Fuck, Yes! Doctor! Run! The! Tests! We are burning daylight!! Let's get this ball rolling! Journey of a thousand miles, begins with single step, etc!

I do want to feel better. This is not my imagination. It's not my fault. I am a reliable witness to my own life and I don't care how many tests 'come back normal.' Those must be the wrong tests to find what's haywire. I know something is wrong and even if we can't fix it, I must understand it.

.

I'm now in year 7 of trying to improve my situation. I know so much more about my conditions than I did. I am getting help. I still don't have a full picture. I'm still disabled.

But it's not like it was.

Please. Don't give up. Diagnosis can take years. Some people never get a firm answer. Regardless, you will learn ways to cope. You will meet people who help you cope. Don't give up on yourself. You are worth the effort.

.

Seems like something we should all know.

.

.

.

Disability happens to people without our control or consent. Every single disabled person has strong feelings about their own situation and I would not presume to talk about anyone’s thoughts but my own. But none of us chose to do life on hardmode, so if the world could listen this month, there’s a lot to say.

#disability pride month #invisible disability #chronic illness #disabled #chronic fatigue #chronic migraine #postural orthostatic tachycardia syndrome #pots #mast cell activation syndrome #mcas #myalgic encephalomyelitis #me/cfs #diagnosis #ambiguous symptoms #undiagnosed #us medical system #medical system #doctor #medical tests #dontgiveup #don't give up #the goal is understanding #the goal is coping #only way out of hell #is through it #you are worth it

[talkethtothehandeth]

Me: i have migraine with aura; it affects my vision and body before the actual attack

My doctor: yeah that’s migraine with aura

My doctor in my chart, brewing up whatever diagnosis she so pleases: ✍🏻 migraine … with ✍🏻 no… aura ✅

#personal #what is wrong with these guys #migraine #chronic migraine #chronic pain #disabled #postural orthostatic tachycardia syndrome #the pots diagnosis peeking out from the bottom waiting to strike 🔪 #pots #chronic illness

[canesinmedia]

Cripple Punk Disability-cord

all are welcome, please help our community grow (also ill post another cane user tonight maybe two who knows)

#cane #canes #chronic pain #canechronicler #media #cripple posting #walking canes #mobility aid #cane user #chronic illness #chronic fatigue #arthritis #fatigue #disease #diagnosis #migraine #chronic disability #illness #cripple shit #queer cripple #queer community #cripple problems #physically disabled #mental illness #mentalheathawareness #crippleness #disabled

[ditzydollsdiary]

chronically ill daughter gf 🤝 tired old man dad bf

"can we just stay in bed and cuddle all day??"

"for the 4th time this week?? of course we can :)"

#will just post nonsexual fatherless things for now😖 #getting worse has genuinely been so lonely and isolating tho👍 #send help!! and by help i mean a dad to keep me company all day when im too sick to get out of bed #and a new brain so no more migraine #and a diagnosis!! that would be cool too #i do have my suspicions on what it could be

[arionawrites]

decided to make a list of all my diagnosed issues and like fucking. god damn. how am i just living day to day.

#nine bullet points #of diagnosed things i struggle #i struggle with #1. type one diabetes 2. adhd 3. bipolar 4. severe anxiety 5. depression 6. insomnia 7. migraines 8. dpdr 9. ptsd #and im just ?? existing like this??? literally how what the fuck #there’s more than that too thats just like the actual able to be diagnosed shit #probably also at least slightly autistic but my psychologist said that its not bad enough to impact me big time and a diagnosis would do mor #more harm than good so im just kind. Not lmao #but also: abandonment issues self worth issues guilty conscience issues feeling unworthy of literally everything issues #awful at establishing boundaries #sh issues #(not for like years but its a struggle to not relapse every year esp during winter) #suicidal ideation but at least ive never actually been suicidal #not bc i particularly love being alive but because the fact that i dont know what comes after death scares me too much lmao #even at my lowest of lows i have not wanted to kms SOLELY bc the unknown scares me enough to be like #yeah this sucks but at least i know it #at least it’s like familiar which is sad but still true lma #OH ALSO eating disorder lmao. diabulimia is a thing. #genuinely how have i not been fucking hospitalized #not in a bad way but like. idk how i havent gotten to that point yet #tho to be fair there are multiple points i probably should have been tbh #i just. dont want to worry people? or inconvenience anyone. and i know im not gonna kms so its easy to be like ‘i dont need that’ #i have overshared way too much in these tags sorry i’ll stop now #if anyone has actually read all of these: i’m sorry. i love you. i hope you feel better than i do. i hope you smiled today.

[headpainmigraine]

Headache diary

One of the things your neuro SHOULD do when you see them for migraines/headaches, is to ask you to fill out a headache diary

This is a pain in the ass task that is invaluable for tracking the severity of your headache, the intensity, frequency, what meds you used and how often, if you had aura symptoms, if it was migrainous or just a headache, and so on.

The diary helps with diagnosis, and also with what treatment they might recommend.

If your migraines are episodic, high frequency episodic or chronic.

What your med use looks like, if you're taking too much or not enough or not the right meds, and how effective they are.

It's also used to find patterns in your migraines, to see if a med is helping, if your condition is improving or not.

They're a really helpful tool for migraineurs, even without a neuro.

For example, I see a spike in migraine intensity in March and September. I'm actually going to get hold of some barometric pressure readings from the Met Office to see if there's a correlation there.

All stuff that you can use to better understand the pattern of your migraines, and to show medical professionals the extent of your condition.

To that end, here's the headache diary that my neuro has asked me to fill out.

It's pretty easy to fill out, doesn't require a lot of thinking to do so. I usually fill mine out at the end of the day.

Hope it helps!

#headache diary #headache pain diary #migraine diary #neurologist's tools #neurologist tools #diagnosis tool #migraine diagnosis tool #migraine tracking tool #chronic migraines #migraines #migraine isn't a headache

[theprissythumbelina]

Meds take away the pain but do nothing for the other migraine issues like nausea, dizziness, eye strain

#i finally got meds this last week for panic attack #which i have probably needed for about 10 years now #turns out people pay attention if the emts get called #also going to pursue an adhd or whatever I have diagnosis #because this is getting out of control #not writing #rl posting #medical care #migraine

[melodymorningdew]

I haven't weighed this little since I was 13-14 years old... I really don't want to waste away my guy.

#disabled #chronic illness #chronic pain #chronically ill #chronic disability #chronically fatigued #fibromyalgia #undiagnosed chronic pain #undiagnosed chronic illness #melody morningdew #diagnosis #degenerative disease #major depressive disorder #invisible disability #ibs c #just ibs things #invisible illness #irritable bowel syndrome #irregular heartbeat #dysautomnia #pots maybe #pots #undiagnosed disability #undiagnosed something #chronic migraines #chronic migraine #chronic fatigue #fibro problems #medical trauma #weight loss

[affectionatepanda]

Sometimes I think “wow I really miss being able to do XYZ thing” and then I start thinking about everything else I can’t do/have to be careful if I do now. I’ve obviously had these conditions for years longer than I even knew they were a thing that existed but they’ve all gotten so much worse as I’ve come into my early twenties. I already didn’t really lead a “normal” life beforehand but now that feels completely out of reach. I get so mad sometimes, if I think about it for too long. It feels like I can’t have a fun, carefree experience at any point in my life. Usually it doesn’t bother me because I’m not even naturally a carefree person but not even really having the option… It just makes me wanna have a fit. But what does that help? So I just shove it down and try to move on and enjoy the things I can still do.

#disabled #chronic pain #chronic illness #chronic fatigue #disability #chronic migraine #vent post #diagnosis journey #pots #ehlers danlos syndrome #getting my thoughts out

[donniesexceptionalmind]

I wanted to thank you for all the ‘tism posting. I’ve long suspected I might be on the spectrum and have a syndrome that can ride alongside both autism and adhd but it was reading your posts that made me realise. I might never get a proper diagnosis due to my syndrome existing but I KNOW my own mind and mannerisms match up with a LOT of autistic traits.

You are welcome!

I love talking about my special interests, it's joyful for me & sometimes it's JUST what I need to feel better.

Affirmative, you know your own mind best.

And if autism describes what you're experiencing AND the accommodations help you, I do not see a reason you aren't allowed to call yourself autistic.

You are valid.

#I think I am getting a migraine & I do not enjoy THAT #donnies exceptional mind #donnie speaks #turtle net #rottmnt #rise of the teenage mutant ninja turtles #rottmnt donnie #rottmnt donatello #autistic spectrum #autism #self diagnosis