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cripplecharacters · 1 month

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Where to Start Your Research When Writing a Disabled Character

[large text: Where to Start Your Research When Writing a Disabled Character]

So you have decided that you want to make a disabled character! Awesome. But what's next? What information should you decide on at the early phrase of making the character?

This post will only talk about the disability part of the character creation process. Obviously, a disabled character needs a personality, interests, and backstory as every other one. But by including their disability early in the process, you can actually get it to have a deeper effect on the character - disability shouldn't be their whole life, but it should impact it. That's what disabilities do.

If you don't know what disability you would want to give them in the first place;

[large text: If you don't know what disability you would want to give them in the first place;]

Start broad. Is it sensory, mobility related, cognitive, developmental, autoimmune, neurodegenerative; maybe multiple of these, or maybe something else completely? Pick one and see what disabilities it encompasses; see if anything works for your character. Or...

If you have a specific symptom or aid in mind, see what could cause them. Don't assume or guess; not every wheelchair user is vaguely paralyzed below the waist with no other symptoms, not everyone with extensive scarring got it via physical trauma. Or...

Consider which disabilities are common in real life. Cerebral palsy, muscular dystrophy, stroke, cataracts, diabetes, intellectual disability, neuropathy, multiple sclerosis, epilepsy, thyroid disorders, autism, dwarfism, arthritis, cancers, brain damage, just to name a few.

Decide what specific type of condition they will have. If you're thinking about them having albinism, will it be ocular, oculocutaneous, or one of the rare syndrome-types? If you want to give them spinal muscular atrophy, which of the many possible onsets will they have? If they have Ehlers-Danlos Syndrome, which one out of the 13 different types do they have? Is their amputation below, or above the knee (it's a major difference)? Not all conditions will have subtypes, but it's worth looking into to not be surprised later. This will help you with further research.

If you're really struggling with figuring out what exact disability would make sense for your character, you can send an ask. Just make sure that you have tried the above and put actual specifics in your ask to give us something to work with. You can also check out our "disabled character ideas" tag.

Here are some ideas for a character using crutches.

Here are some ideas for a character with a facial difference (obligatory link: what is a facial difference?).

If you already know what disability your character is going to have;

[large text: If you already know what disability your character is going to have;]

Start by reading about the onset and cause of the condition. It could be acquired, congenital, progressive, potentially multiple of these. They could be caused by an illness, trauma, or something else entirely. Is your character a congenital amputee, or is it acquired? If acquired - how recently? Has it been a week, or 10 years? What caused them to become disabled - did they have meningitis, or was it an accident? Again, check what your options are - there are going to be more diverse than you expect.

Read about the symptoms. Do not assume or guess what they are. You will almost definitely discover something new. Example: a lot of people making a character with albinism don't realize that it has other symptoms than just lack of melanin, like nystagmus, visual impairment, and photophobia. Decide what your character experiences, to what degree, how frequently, and what do they do (or don't do) to deal with it.

Don't give your character only the most "acceptable" symptoms of their disability and ignore everything else. Example: many writers will omit the topic of incontinence in their para- and tetraplegic characters, even though it's extremely common. Don't shy away from aspects of disability that aren't romanticized.

Don't just... make them abled "because magic". If they're Deaf, don't give them some ability that will make them into an essentially hearing person. Don't give your blind character some "cheat" so that they can see, give them a cane. Don't give an amputee prosthetics that work better than meat limbs. To have a disabled character you need to have a character that's actually disabled. There's no way around it.

Think about complications your character could experience within the story. If your character wears their prosthetic a lot, they might start to experience skin breakdown or pain. Someone who uses a wheelchair a lot has a risk of pressure sores. Glowing and Flickering Fantasy Item might cause problems for someone photophobic or photosensitive. What do they do when that happens, or how do they prevent that from happening?

Look out for comorbidities. It's rare for disabled people to only have one medical condition and nothing else. Disabilities like to show up in pairs. Or dozens.

If relevant, consider mobility aids, assistive devices, and disability aids. Wheelchairs, canes, rollators, braces, AAC, walkers, nasal cannulas, crutches, white canes, feeding tubes, braillers, ostomy bags, insulin pumps, service dogs, trach tubes, hearing aids, orthoses, splints... the list is basically endless, and there's a lot of everyday things that might count as a disability aid as well - even just a hat could be one for someone whose disability requires them to stay out of the sun. Make sure that it's actually based on symptoms, not just your assumptions - most blind people don't wear sunglasses, not all people with SCI use a wheelchair, upper limb prosthetics aren't nearly as useful as you think. Decide which ones your character could have, how often they would use them, and if they switch between different aids.

Basically all of the above aids will have subtypes or variants. There is a lot of options. Does your character use an active manual wheelchair, a powerchair, or a generic hospital wheelchair? Are they using high-, or low-tech AAC? What would be available to them? Does it change over the course of their story, or their life in general?

If relevant, think about what treatment your character might receive. Do they need medication? Physical therapy? Occupational therapy? Orientation and mobility training? Speech therapy? Do they have access to it, and why or why not?

What is your character's support system? Do they have a carer; if yes, then what do they help your character with and what kind of relationship do they have? Is your character happy about it or not at all?

How did their life change after becoming disabled? If your character goes from being an extreme athlete to suddenly being a full-time wheelchair user, it will have an effect - are they going to stop doing sports at all, are they going to just do extreme wheelchair sports now, or are they going to try out wheelchair table tennis instead? Do they know and respect their new limitations? Did they have to get a different job or had to make their house accessible? Do they have support in this transition, or are they on their own - do they wish they had that support?

What about *other* characters? Your character isn't going to be the only disabled person in existence. Do they know other disabled people? Do they have a community? If your character manages their disability with something that's only available to them, what about all the other people with the same disability?

What is the society that your character lives in like? Is the architecture accessible? How do they treat disabled people? Are abled characters knowledgeable about disabilities? How many people speak the local sign language(s)? Are accessible bathrooms common, or does your character have to go home every few hours? Is there access to prosthetists and ocularists, or what do they do when their prosthetic leg or eye requires the routine check-up?

Know the tropes. If a burn survivor character is an evil mask-wearer, if a powerchair user is a constantly rude and ungrateful to everyone villain, if an amputee is a genius mechanic who fixes their own prosthetics, you have A Trope. Not all tropes are made equal; some are actively harmful to real people, while others are just annoying or boring by the nature of having been done to death. During the character creation process, research what tropes might apply and just try to trace your logic. Does your blind character see the future because it's a common superpower in their world, or are you doing the ancient "Blind Seer" trope?

Remember, that not all of the above questions will come up in your writing, but to know which ones won't you need to know the answers to them first. Even if you don't decide to explicitly name your character's condition, you will be aware of what they might function like. You will be able to add more depth to your character if you decide that they have T6 spina bifida, rather than if you made them into an ambiguous wheelchair user with ambiguous symptoms and ambiguous needs. Embrace research as part of your process and your characters will be better representation, sure, but they will also make more sense and seem more like actual people; same with the world that they are a part of.

This post exists to help you establish the basics of your character's disability so that you can do research on your own and answer some of the most common ("what are symptoms of x?") questions by yourself. If you have these things already established, it will also be easier for us to answer any possible questions you might have - e.g. "what would a character with complete high-level paraplegia do in a world where the modern kind of wheelchair has not been invented yet?" is much more concise than just "how do I write a character with paralysis?" - I think it's more helpful for askers as well; a vague answer won't be much help, I think.

I hope that this post is helpful!

Mod Sasza

#mod sasza #writing reference #writing advice #writing resources #writeblr #writing disabled characters #writing resource #long post #writing tips #writing guide

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triumph-of-adaptation · 5 months

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Cripthegig for alt text/id

#Palestine #Gaza #cripple punk #cripthegig #protest #disability #disabled #chronic illness #accessibility #ableism #resource #Cordelia price #cripplepunk #crip #spoonie

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cy-cyborg · 8 months

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Writing and drawing amputee characters: Not every amputee wears prosthetics (and that's ok)

Not every amputee wears prosthetics, and not doing so is not a sign that they've "given up".

It's a bit of a trope that I've noticed that when an amputee, leg amputees in particular, don't wear prosthetics in media its often used as a sign that they've given up hope/stopped trying/ are depressed etc. If/when they start feeling better, they'll start wearing their prosthetics again, usually accompanied by triumphant or inspiring music (if it's a movie). The most famous example of this is in Forest Gump, Where Dan spends most of the movie after loosing his legs wishing he'd died instead. He does eventually come around, and him finally moving from his wheelchair to prosthetics is meant to highlight this.

The thing is, it's not that it's unrealistic - in fact my last major mental health spiral was started because one of my prosthetics was being a shit and wouldn't go on properly, despite fitting perfectly at the prosthetist's the day before. I'm not going to use my legs when I'm not in a good headspace, but the problem is, this is the only time non-prosthetic using amputees ever get representation: to show how sad they are. Even if that's not what the creator/writer necessarily intended, audiences will often make that assumption on their own unless you're very careful and intentional about how you frame it, because it's what existing media has taught them to expect.

But there are lots of reasons why someone might not use prosthetics:

they might not need them: this is more common in arm amputees because of how difficult it can be to use arm prosthetic, especially above-elbow prosthetics. Most folks learn how to get on without them pretty well. In fact, most of the arm amputees I know don't have prosthetics, or only have them for specific tasks (e.g. I knew a girl who had a prosthetic hand made specifically for rowing, but that's all she used it for).

Other mobility aids just work better for them: for me, I'm faster, more manoeuvrable and can be out for longer when I'm in my wheelchair than I ever could on my prosthetics. Youtube/tik tok creator Josh Sundquist has said the same thing about his crutches, he just feels better using them than his prosthetic. This isn't the case for everyone of course, but it is for some of us. Especially people with above-knee prosthetics, in my experience.

Other disabilities make them harder to use: Some people are unable to use prosthetics due to other disabilities, or even other amputations. Yeah, as it turns out, a lot of prosthetics are only really designed for single-limb amputees. While they're usable for multi-limb amps, they're much harder to use or they might not be able to access every feature. For example, the prosthetic knee I have has the ability to monitor the walk cycle of the other leg and match it as close as possible - but that only works if you have a full leg on the other side. Likewise, my nan didn't like using her prosthetic, as she had limited movement in her shoulders that meant she physically couldn't move her arms in the right way to get her leg on without help.

Prosthetics are expensive in some parts of the world: not everyone can afford a prosthetic. My left prosthetic costs around $5,000 Australian dollars, but my right one (the above knee) cost $125,000AUD. It's the most expensive thing I own that I only got because my country pays for medical equipment for disabled folks. Some places subsidise the cost, but paying 10% of $125,000 is still $12,500. Then in some places, if you don't have insurance, you have to pay for that all by yourself. Even with insurance you still have to pay some of it depending on your cover. Arm prosthetics are even more expensive. Sure, both arms and legs do have cheaper options available, but they're often extremely difficult to use. You get what you pay for.

they aren't suitable for every type of environment: Prosthetics can be finicky and modern ones can be kind of sensitive to the elements. My home town was in a coastal lowland - this means lots of beaches and lots of swamp filled with salty/brackish water. The metals used in prosthetics don't hold up well in those conditions, and so they would rust quicker, I needed to clean them more, I needed to empty sand out of my foot ALL THE TIME (there always seemed to be more. It was like a bag of holding but it was just sand). Some prosthetics can't get wet at all. There were a few amputees who moved to the area when I was older who just didn't bother lol. It wasn't worth the extra effort needed for the maintenance.

People have allergies to the prosthetic material: This is less of a problem in the modern day, but some people are allergic to the materials their prosthetics are made from. You can usually find an alternative but depending on the type of allergy, some people are allergic to the replacements too.

Some people just don't like them.

There's nothing wrong with choosing to go without a prosthetic. There's nothing wrong with deciding they aren't for you. It doesn't make you a failure or sad or anything else. Using or not using prosthetics is a completely morally neutral thing.

Please, if you're writing amputees, consider if a prosthetic really is the best mobility aid for your character and consider having your characters go without, or at least mix it up a bit.

For example, Xari, one of the main characters in my comic, uses prosthetics unsupported and with crutches, and uses a wheelchair. They alternate between them throughout the story.

#disability #disabled #id in alt text #writing #writing disability #disability representation #authors of tumblr #write #writeblr #writers on tumblr #writerscommunity #writer #creative writing #writing tips #writing resources #writing help #writing advice #writing disability with cy cyborg

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azuremist · 8 months

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A guide to all accessibility-related needs on the indie web!

I've been sharing this site around in all sorts of places, but I wanted to post it here, too - the Accessible Net Directory!

The indie web has a problem with accessibility. Namely, it seems like very few creators care to implement it. Which I get! It seems daunting to tackle at first. But also, it makes the indie web really, really difficult to traverse for disabled folks.

The Accessible Net Directory is two-fold in its uses.

1) It provides disabled people a list of safe indie sites

In order for a site to be featured on the directory, it needs to meet basic accessibility guidelines. This includes (but isn't limited to) no autoplay, unlabeled flashing images, low contrast, small / hard-to-read fonts, keyboard inaccessibility or non-described images.

Additional, non-required accessibility options for the directory are encouraged, and listed in a site's description on the directory. (Such as zoom-friendliness and different font options.)

2) It provides webmasters a ton of resources for implementing accessibility

It not only provides a list of steps one can take to make their site more accessible, but also provides the "why" of each step.

For example - one listed guideline for the directory is to use rem/em instead of px units for font sizes. Why? Well, the directory explains, "Users with low vision may need to increase the size of the text in order to be able to read and see better. Therefore it is important to always use scalable units for text."

Then, it goes on to list RESOURCES for changing px to rem/em!!

This site is an absolute treasure trove of resources for making your site accessible, and doing so with ease! I've used the resources listed to make my own site more accessible, and it's made the process seem so much more manageable!

So! If you run a personal site, then give the site a look, learn about accessibility practices, and apply them to your site! An inaccessible web is not a free web!

#neocities #indie web #web revival #old web #webcore #old internet #html #website #resource #guide #directory #accessibility #disability advocacy #azure does a thing

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graphics-cafe · 1 month

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New disability & love/pride blinkies by @radiotrophicfungi, customizable at blinkies.cafe!!

#blinkies #blinkies.cafe #webcore #custom blinkies #blinkie templates #disability #flashing #eyestrain #y2kcore #neocities #carrd resources

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disabled-dragoon · 1 year

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Hey Curio!

Not sure where this goes, I don't know if you have a post about accessibility aids that I can't find, but something not a lot of people think of that is super helpful is extendable shower heads. There are ones that can reach pretty far so that you can sit on the floor or on a shower chair, most are pretty easy to install and don't permanently change anything (meaning you can put them up and take them down, replacing them with the original showerhead without your landlord knowing if need be), and can be pretty cheap but high quality. They also mean that you can stick your head over the shower and just wash your hair if you need to, for example.

Just thought I'd send this in case there was a good place for it.

Thank you so much for all the amazing work you do! Truly, your page is amazing.

Have a wonderful day/night!

I don't actually have a specific post about showerheads/bathing aids, but yes you're right! Not a lot of people think about this so thank you for reminding me!

It's actually reminded me that we used to have a cheap little portable one that would attach to the sink taps for the days I physically could not get in the sink, so I will add a link to that below.

And here are a few others I've dug up. I know some of these go for well over £500, so I tried to find some cheaper options:

HealthandCare: This isn't a showerhead, but it is a showerhead holder, and it is adjustable. It's about £66, so not great, I know, but I've seen worse. This is UK based, and unfortunately does not offer shipping outside of that at the moment, but they can deliver across mainland UK, and to offshore UK islands. Deliveries to the Scottish Highlands, Northern Ireland and offshore UK islands may have additional charges, but they will contact you about it.

HealthSmart International: I don't actually know if this company delivers outside of the US, so anyone interested will probably have to contact them. This a handheld body showerhead, with a 6ft long hose that "fits standard 1/2 inch threaded shower pipes", which I assume means it can be attached. It also has a little hinge thing that looks like it can be nailed into the wall to hold it up. At the moment of writing it is priced at $34.56.

Essential Aids: This is another shower head holder and adjuster rather than a simple showerhead. It has a "lockable suction cup attached to a showerhead holder" and can be attached to the wall at whatever height you wish. It essentially means you can lower the shower hose to your preferred height, which is particularly handy if you're sitting or cant reach very high to begin with. Unfortunatley, this is priced quite steeply at £116.23 (£139.48 inc VAT), and I'm not entirely sure if they deliver outside of the UK, but there are contact details on their site to check.

Showerhead HQ: This is a US company that deals in everything shower. Showerheads, pipes, extensions etc. etc. I can't find anything on the site to say they deliver outside of the US, but they do have an Amazon shop! Just type in the shop name and hopefully something should come up.

Portable Shower Head: This isn't the exact one that I had but it's pretty damn close. Essentially, you attach it to bath taps or sink taps and then use it like that. This one has two nozzles so would probably be better if you have separate hot and cold taps, but you can easily get ones that need only a single tap. They can be a bit fiddly so I recommend a holder of some kind when you're not using it. But, from experience, they're quite decent, and they're portable as well! This one is about £16.

That's all I've got at the moment, but I'll be sure to keep an eye out for more.

Thank you for bringing it my attention! This has made me realise just how difficult getting a good shower is; I'm genuinely shocked that most of the links of my aids list didn't have showerhead aids. So I hope this helps somebody!

#I was honestly expecting some distributors to have more shower options but no #One had a walk in bath but nothing showerhead related #ridiculous!#I will keep an eye out!#ask me anything #ask box #disability #disability resources #hygiene #healthcare #showering #shower aids #disability aids #bath aids #disability resource #disabled community #take care of yourselves!#links #long post

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theygender · 2 years

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August 24, 2022

There's a new recall that I would like to spread awareness of: Great Value Shredded Hashbrowns have been recalled for possible contamination with listeria. Listeria can cause food poisoning and flu-like symptoms in healthy adults, but it more commonly affects infants, pregnant people, senior citizens, and the immunocompromised. In these groups it can also lead to more severe infections including sepsis, meningitis, and encephalitis, and symptoms of listeriosis can appear up to 2 months after a contaminated food item has been consumed. This recall currently only includes 64 oz bags with the following date codes and UPC, but if you're seeing this on any date other than the one listed above please make sure to check if the recall has been expanded:

Description: Great Value 64 oz Frozen Shredded Hashbrowns

UPC: 7874215557

Dates: 7/25/2023, 7/26/2023, 9/14/2023

This recall hasn't yet been reported by the FDA and at the moment this information is only being communicated by email to people that Walmart has records of having ordered Great Value Frozen Hashbrowns within the past 6 months, so if people wouldn't mind reblogging to spread awareness (especially among disability and parenting circles) I would greatly appreciate it. The current direction from the company is to discard affected bags and request a refund from the store, but I would caution against accepting any compensatory gift cards from the store in addition to your refund because they may try to claim it as a settlement if you need to sue for medical bills or damages later on

#recall #food recalls #actually disabled #momblr #parenting tips #cripplepunk #cripple punk #parenting #disability resources #actuallydisabled #tagging with disability and parenting tags bc these are the demographics most likely to be affected #let me know if ive missed any #senior citizens #rambling #psa

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bfpnola · 1 year

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While this information may technically be new, government infiltration is not. As mentioned in the video, COINTELPRO is a perfect historical example of the insidious downfall of so many leftist grassroots organizations, and guess what? We've made posts about COINTELPRO in the past!

This information isn't made to scare you though, but to empower us all to come together even stronger, even smarter, even more diligently. We owe it to ourselves, to our communities, and to our predecessors to do at least that much. As working class citizens, we must protect one another. Do not get distracted by the divisions those in power wish to ensue.

Confused on where to start? Even if you don't apply as a volunteer, @bfpnola is a safe space for all youth activists to ask questions and receive free resources! Here’s what you need to get started:

#reaux speaks #resources #black lives matter #history #cointelpro #indigenous #anti capitalism #bipoc #abolition #queer #protest #intersectional feminism #disability justice #anarchism

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hellyeahscarleteen · 10 months

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Sex and Disability

This Disability Pride Month, check out our series on Sex and Disability! This isn't meant to be a be-all-end-all guide to sex and disability because a) it's not, and b) there just can't ever be such a thing with any guide to sex. This series, much like your entire sexual life, is a work in progress and an endless, ongoing conversation. We hope this can be a good place for you to get started, and something that starts you on the path of good feelings about sex and your disability. Read the introduction above, or skip to one of the sections below:

Taking Your Body for a Ride: Masturbation and Disability

Disabled Sex: Sex for Two (or More)

Consent Is Sexy: Sexual Autonomy and Disability

Sex on the Brain: Sex and Autism, Mental Illness, and Other Cognitive Diversity

Your Body is Not a Sex Object: Devotees and Disability

Wheelchair, Bound? Kink and Disability

I Beg Your Pardon? Dealing with Rude Nondisableds

(Check out the rest of our disability-focused content here)

#disability #consent #sex ed #autism #mental health #mental illness #neurodivergent #disability pride month #resources

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cripplecharacters · 7 months

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Media Representation and Writing Characters with Facial Differences

[Large Text: Media Representation and Writing Characters with Facial Differences]

A writing (?) guide (?) consisting of an explanation of what facial differences are, some basics about the community of people with facial differences, a terminology guide that is extremely subjective, a very long explanation of the real-life effects of misrepresentation of facial differences, a subjective guide on why most tropes surrounding facial differences are awful and unoriginal, and the part that people actually want to see (I hope at least) AKA "types of characters I do actually want to see". As always, this post is meant for people who have no experience with the subject, and not in any way an attempt to tell writers with facial differences on what to do in their own writing.

What Does "Facial Difference" Mean?

[Large Text: What Does "Facial Difference" Mean?]

"Facial Difference" (FD for short) is an umbrella term for any kind of scar, mark, or condition that makes your face visibly different. This encompasses anything from not having parts of the face or having less of them (e.g. anophthalmia, anotia, hemifacial microsomia), having "more" to the face (e.g. tumors, neurofibromatosis), conditions affecting how the face moves (e.g. facial paralysis, ptosis, cranial nerve diseases), ocular differences (e.g. hypertelorism, nystagmus, strabismus), conditions affecting the colors of the face (e.g. rosacea, vitiligo, pigmentation conditions in general), a "look" that signals a specific disability (e.g. Down Syndrome) and approximately a million more things - scars, burn marks, craniofacial conditions, ichthyosis, cancers, and a lot more.

Despite popular opinion (popular ignorance would be more accurate because no one knows about it in the first place but opinion sounds better-) people with Facial Differences have both a movement (Face Equality) and a specific word for the oppression we experience (Disfiguremisia). There is even the Face Equality Week that happens every year in May! This is a real thing that has been happening, and we are generally going unnoticed, even in the "representation matters" circles, the body positivity movement, disability spaces, and so on. There is an alliance of organizations dedicated to this called Face Equality International, who can help you learn about the real-world community and movement! They even have sections specifically about media representation, which is foreshadowing for how important this topic is to the community and for how long the "explaining the issues of representation" part of this post is.

And of course, if you have a facial difference/disfigurement, you can do whatever the hell you want when writing! Call your characters how you call yourself, subvert the tropes you want. I don't want to preach to people who already know all of this firsthand. This post is meant to explain some things to people who don't have experience with having FD.

Terminology

[Large Text: Terminology]

There is a lot of words to describe people with FD. Some of them are alright, most of them are awful.

Please keep in mind that all of these terms (maybe except for the... last one...) are used by real life people. This isn't me saying "you can't say that about yourself" (more power to you!) but rather to educate able-bodied people that some words they refer to use with aren't as neutral as they think (at least not to everyone).

"[person] with a facial difference" - generally the most polite and widely accepted way to refer to us. That's what is generally used in the Face Equality movement, sometimes alongside the next term which is...

"[person] who has a disfigurement" - an alright term that is sometimes used interchangeably with the one above. However, most things that involves the term "disfigurement" to me sound kinda medicalized and/or like lawyer speech. It's not offensive, but just generally used in more official ways etc. Has the potential to make you sound like a medical report or a legislature sometimes. lol.

"A disfigured [person]" - starting to steer into the "uhh" territory. Describing a whole person as disfigured is, to me, just plain weird. I get that some communities push for the identity first language, but this just isn't it most of the time. Could be way worse, could be slightly better.

"[person] who has a deformity" - "deformity" is such a negatively charged word that I don't understand how people (without FD) still use it thinking it's neutral. This sounds awkwardly medicalized in a "case study from the 80s" way which is definitely not a good thing.

"A deformed [person]" - pretty much the jackpot of bad terminology, the term deformed, the calling of an entire person by it, it has everything I hate about writers describing people like me. The only one that I think is even more awful is...

"Horribly/gnarly/nasty/monstrous deformity/scar/[name of the specific condition]" - again, I'm impressed by what some people think is neutral wording. If you're searching a thesaurus for synonyms of "scary" to describe your character, I think it's time to just stop writing them. This is about using ableist terminology, sure, but I just can't imagine that someone calling their character that actually will represent FD well. It shows the negative bias and attitude of the writer.

However, there is also one pretty awesome and simple way to describe them!

Say what they have specifically. Really. Assuming you know what condition your character has (which... you should) it should be very easy. "She has Treacher-Collins Syndrome." "Xyr forehead has a port wine stain on it." "They can't fully open one of their eyes." It's clear and lets your readers know what you mean. You don't always have to throw around euphemisms to describe someone not having a nose.

Tropes and Current State of Representation

[Large Text: Tropes and Current State of Representation]

If you have read basically any of my previous posts about FD then you probably know what I'm about to say in this section. Still worth a read though? I hope. Warning that this is long, but you probably expected that already.

One thing I will note at the start is that I'm aware that a lot of writers were already turned off from this post just because of the terminology section. I know that artists love describing people like me as ugly deformed monsters! It's literally a tale as old as antiquity, and that's how overdone and stale it is. Visibly disabled = ugly. I get it, I heard it a thousand times before, I hear it majority of the time someone is excited to tell me about how horrible and gross their OC's scar is. But now some guy (me) from that group is telling you to like, maybe stop calling your disgustingly deformed character that!

I want to make it very clear that FD representation in media is not treated like a real thing that's worth anyone's time, even by the most "representation is so important!" writers. I guess it's too inconvenient to unpack the amount of baggage and uncomfortable implications this would cause. It's too good of a device in writing; everyone knows that if a guy with a scar shows up that it means he's evil, the easiest way to make a villain visually interesting is to make them a burn survivor, and if you need a tragic backstory for a serial killer just give them a congenital disability that caused literally everyone in the world to treat them horribly, so of course they started killing people. It's such a good moral signifier that literally every book and tale has done - pretty is good, ugly is bad. Dichotomy is so helpful. What is less helpful in the real world is that what is considered "ugly" is generally very tightly bound to what visibly disabled people look like. Ugly Laws weren't just like, coincidentally including disabled people and disability activists aren't still forced to speak out against being put in those "Ugliest People" lists by accident. This is all to say that facial differences are considered to be "ugly" completely uncontested, and you probably have this bias too, as the vast majority of people do. The whole "the character is ugly, then they become evil, if they're evil, they become ugly"... you need to be conscious to not do that. Don't make them evil if they're visibly disabled because it will always end up being the same old trope, no matter how many weird excuses and in-universe explanations you give. I want to put it in people's heads that you are writing about a community of people who are technically visible in real life, but have no large voices that the general public would listen to when it comes to how we are seen. The general public relies on media to tell them that.

Putting people with FD in your books or your art seems to suddenly be intimidating for a lot of artists when they realize that not only is facial difference a real thing, but people who have it can see what you write or draw (and your other readers will take some things out of what you write, subconsciously). When an author is faced with the fact that maybe they are doing harm with their writing, they either: suddenly don't want to do that anymore at all, or say: "I don't care! I'm going to be very innovative and make my very evil OC be deformed!" which is kinda funny to me that people actually seem to think it's edgy and cool to repeat the most tired Hollywood tropes but that's the best we can get I guess lol...

The attitudes that people have around the topic of facial difference and the whole "media impacts reality" are very interesting to me in general. On one hand, when I tell someone that I was bullied or ostracized because of my disabilities, no one is ever surprised. On the other hand, everyone is for some reason uncomfortable when I say that this doesn't just... appear out of thin air. People are taught from childhood that facial differences and the people who have them are scary, untrustworthy, or literal monsters. Media is a major factor in that. Like, looking back at it, it makes sense that my parents told me not to stare at other kids because they would get scared. After all, I looked like a kindergarten version of the bad guy from some kid's book. Other kids were able-bodied and looked like the good guy, I was visibly disabled and looked like the bad guy. That's the lesson kids get from media on how people with visible disabilities are: evil, scary, not to be interacted with. So they avoided me because of that while I had adults telling me to not even look in their direction. Dichotomy is so helpful, right?

And this doesn't magically stop at children. When I post a self-portrait or a selfie, I usually deal with multiple grown people comparing me to sometimes an animal, usually a specific character from a movie, sometimes even making my face into a meme right away. But if people don't generally see people with facial differences on the daily, then how are there so many specific reactions and so many similar problems that we go through? If it's so rare, then how are people so quick to tell me the character I remind them the most of- Yeah, media. It's always media. It's almost funny how everything circles back to one thing.

I want you, the author, to understand the impact of misrepresentation of facial difference. If you feel uncomfortable because you have done these tropes before, good! That's a sign of growth. If you want to help instead of harm, you need to get over your (subconscious) biases for a minute and think about how a person with the same condition as your character would feel like reading about them. Maybe you are even currently realizing that that one OC with scars is just five harmful tropes glued together. Maybe you are going to reblog this and tell me in the tags that somehow your character decided to be like that, as if they have free will instead of being written by a biased human being. Or, as I said earlier, a lot of people will be annoyed by this post and keep doing their thing. Which is like... whatever, I guess ?? There are a dozen huge movies and TV shows every year that do this. It's so basic and normalized that whatever reach this post will have will change very little. I have been signaled "we don't care what you think about how we portray people like you" my entire life, I'm frankly more surprised when people do actually claim to care. You can, practically speaking, do whatever because the FD community is fully ignored by uh, everyone, and even if I'm disappointed or annoyed I'm just one man and I know (from experience) that most people won't have my back on this topic. It's too ingrained in our culture at this point to challenge it, I suppose. I mean, there have been multiple media campaigns telling writers to treat us as people, and they had practically zero impact on the writing community. But even with my absurdly pessimistic view on this subject, I still decided to write all this. Sure, there are no signs of the industry changing and the writing community doesn't seem to care much, but I still naively hope that maybe the right person will read this and at some point in the future I will be watching or reading about a character that looks like me and actually have a good time, and even more naively that maybe people will gain some amount of awareness of the damage that has been and still is happening to people with FD through media, so that the next time they see that the villain has facial scars for no reason they will think "damn, this sucks" the same way I do. And very, very naively, I hope that people who read this will start seeing us as people. Not villains, not plot devices, not monsters.

Sad part over(?), now the fun(?) part. AKA the tropes! Yay.

"Dramatic Reveal of The Deformity".

Use of the word "deformity" very much on purpose here. This is arguably the most common trope when it comes to FD, and it's always awful. At the very best it links FD with trauma and talks in a Very Sad Voice about how having a FD is the worst thing imaginable, I guess (think a "X did this to me... now I'm Deformed For Life..." type of scene) and at worst it does the classic revealing that the main villain actually was a burn survivor under his mask, because of course he was. In media, people with FD are evil. If they're not, then it's because someone very evil did it to them (the most evil thing of all - causing someone to have a facial difference. the horror!). It can't be a thing unrelated to someone's morality, there's gotta be evil somewhere around it. There is literally nothing good about this trope. Showing FD as something to hide? Check. Dramatizing FD? Check. Placing the way someone's face looks as the worst thing possible? Check. General treating FD as some kind of circus attraction to stare at with your mouth open? Check!

"Wearing a Mask*."

I made a whole post about this one actually, that's how much it annoys me. Putting your character with FD in a mask is so overdone, lazy, and boring I'm not even offended as much as I thought I would. It's like... really? Again? For the millionth time, the character with FD is forced to hide their disability? Is the author scared..? What is the point of giving your character a visible difference if all you're doing is hiding it? And yes, I know that your character chose to do that for reasons that you as a writer somehow can't control. It's always so strange how it's the character that's in control and the writer is in the passenger seat when it comes to annoying tropes.

Found yourself already waist-deep into this trope? Take a look at this post I made.

*"mask" here refers to anything that covers the character's facial difference (e.g. eye covering, surgical mask, whatever. It's about hiding it and not a technical definition of "what is a mask").

"Good Guy has the Tiniest Scar You Can Imagine, but Don't Worry! The Villain is Deformed As Hell."

A genre on its own. In the rare instance that a positive character has a facial difference, they have a curiously limited choice - you can have:

the thinnest, definitely-very-realistic straight line going through the eye (the eye is always either perfectly okay or milky for reasons the author couldn't tell you),

the same exact line but going horizontally across the nose,

and if you're feeling spicy you can put it around the mouth,

regardless of location, just make sure it doesn't look like an actual scar (certainly not a keloid or hypertrophic one) and is instead a straight line done with a red or white crayon. Interestingly, villains have unlocked more options which stem from scars, craniofacial conditions, burn marks, cleft lips, ptosis, colobomas, anisocoria, tumors, facial paralysis, to pretty much everything that's not infantilized, like Down Syndrome. These are always either realistic or extremely bloody. I sound like a broken record by now, but no, your morality has nothing to do with your physical appearance and being evil doesn't make a visible disability get more visible. Shocker. And don't get me started on...

"The Villain turned Evil Because They Have Scars."

Ah, how nice. Disabled people are evil because they're disabled, truly a timeless classic for able-bodied writers whose worst fear in life is being disabled. In case that needs to be said, having a facial difference doesn't turn you evil, doesn't make you become a serial killer, doesn't make you violent, doesn't turn you into an assassin with a tragic backstory seeking revenge for ruining their life. If anything, having a FD makes it more likely for other people to be violent towards you. Speaking from experience.

"The Villain Just Has Scars."

An impressive attempt at cutting out the middleman of "clumsily and definitely not ableist-icly explaining why getting a scar made them evil" and not even bothering with a tragic backstory or anything. They are evil, so of course they have a facial difference. What were you thinking?

"Facial Difference is a Plot Point."

As anyone who's read like A Book will tell you, the only way to get a facial difference is to be in a very dramatic fight or an extremely tragic accident who will become a plot point and thus the facial difference is now Heavily Emotionally Charged and a symbol of The Event/The Tragedy. If you look at media, congenital FD isn't a thing, illness-related FD doesn't exist and boring domestic accident or a fall causing FD has never been seen. It has to be dramatic and tragic or else there's no point in them having it. A true "why are they [minority]" moment, if you will.

"Character gets a FD but then Gets Magically Cured Because They're Good."

Truly one of the tropes that make me want to rip my hair out. Curing your character with FD sucks just as much as curing a disabled or neurodivergent character. Who is this even for? That's not how real life works. This is some actual Bible shit, that's how old this trope is. The only thing you're doing here is making people think that those who do have FD just aren't "good enough". Every time I see it, I wonder what the author would think of the congenital disorder I have. According to this kind of in-universe rules, was I born evil and just never got good? or ??

"Character with FD has Self-Esteem Issues and Hates Their Face."

I admittedly mocked all the previous tropes because they're absurd, ridiculous, offensive, boring, all of the above, and have zero basis in reality. This one however... ouch, right in my own tragic backstory. This is unfortunately a very real experience that a lot of people with FD go through. I even have a hunch there wouldn't be as many if the general public didn't think of us as monsters, but I digress. Yes, a lot of us have or had self-esteem problems, and a lot of us wished that we wouldn't have to go through all the BS we were put through because of it. Thankfully for you, you don't have to write about it! Seriously. You don't need to. As one million people have said before me, "maybe don't write about things you haven't experienced" and I agree here. I have yet to see an able-bodied author get anything about this right. Instead of the deeply personal, complex experience that involves both you, everything around you and the very perception of what others think of you that this is, somehow writers keep giving the tired "character crying and sobbing because they're "ugly" now", because the author thinks we're ugly. Or maybe they're sad because all the other characters with facial differences are evil, and they didn't have the time to prepare their evil monologue for when they inevitably become evil in the sequel? Who knows.

"The Author Doesn't Know."

I'm not sure if a trope can be the lack of something like this, but the author not knowing what their character actually has going on medically is common to a ridiculous extent - this applies to all kinds of disabled characters as well. You don't need to name-drop the Latin term for whatever your character has, but you need know what it is behind the scenes. You need to know the symptoms. You need to know the onset and the treatment or lack of it. Please do your medical research.

Things I Want to See More of in Characters with Facial Differences

[Large Text: Things I Want to See More of in Characters with Facial Differences]

The thing you might have noticed is that I want Facial Differences and People with Facial Differences to be presented as normal. Not killers, not SCP anomaly whatever, not monsters. I'm aware that the term is tired, but I absolutely want Facial Differences normalized as much as possible.

I want to see more characters with facial differences...

who have friends that don't bully or make fun of them because of their appearance.

who have support from their family.

who know other people with facial differences - even if they're just background characters, or mentioned in passing. Marginalized people tend to gravitate towards each other, people with FD aren't an exception to this.

who are queer.

who aren't only skinny white cis dudes in general.

who are disabled in other ways! A lot of us are Blind, Deaf, both, unable to speak, intellectually disabled, having issues with mobility, and a million other comorbidities.

who are fantastical in some way - preferably not the "secretly a monster" way. But a mermaid with CdLS or an elf with neurofibromatosis? That's cool as hell.

who are allowed to be cute or fashionable.

who have jobs that aren't "stereotypical bad evil guy jobs". Give me a retail worker with a cleft lip or a chef with Down Syndrome!

who are reoccurring characters that just happen to have a FD.

who are those stock/generic characters that aren't typically associated with FD. Hero's mom has septicemia scars? Cool! The popular cheerleader at school has alopecia? Awesome! The bartender of the place the heroes secretly meet up at has Möbius Syndrome? Goes hard! The kid that the MC used to hang out with before they moved somewhere else has Crouzon Syndrome? Great!

who have their FD be visible.

who aren't ashamed of their FD.

who are feeling very neutral about their face.

who are proud of how they look.

who got their FD in a very boring way or were just born with it (and maybe make up very silly, obviously not real ways of how it happened when annoying people ask them. Think "oh, I was fighting a shark").

who have facial differences other than small scars.

who's angst is fully unrelated to their FD. I love me an angsty teen character! Even more if they are angsty about their crush, or basically anything that's not their disability.

who have a significant other who doesn't do the whole "I love you despite your looks" thing. It just kinda sucks. Sorry. I would hate if someone said this to me.

who are children and aren't implied to be "cursed" or "demonic".

in genres that aren't just horror or thriller. RomCom or slice of life, anyone?

who aren't evil.

I want to see stories with multiple characters with facial differences. I have nerve damage and facial asymmetry, and I am friends or mutuals with people with Williams Syndrome, Bell's palsy, Down Syndrome, neurofibromatosis, facial atrophy, ptosis... and a lot of other things. Your character would have (or, would probably want) some connection to their community. We aren't rare!

And, I want stories with the whole spectrum of facial differences shown. Of course you can't represent the whole spectrum, but you can still aim for at least a few. Don't give every single character with FD the same scar-through-eye + eyepatch combo. It's not unrealistic to have a range in your writing. Here is a list of facial differences you might want to check out for inspiration. Don't be scared to give them something rare - no matter how uncommon, people still have it. My specific condition is allegedly extremely rare - I still want representation!

Closing Remarks

[Large Text: Closing Remarks]

Facial difference and the media is a topic that plagued me for the past almost two decades and won't stop ever, I think. It's a very unique relationship of a group of people who just aren't allowed to get into the industry and an industry that clearly hates them, loves to use their image, and defines how people see them all at once. There's this almost overrepresentation that is consistently awful and damaging to an absurd degree. Most people know more villains with FD than actual people. Certainly doesn't feel great to be one of the aforementioned actual peoples. But I hope that this will change - the negative portrayals that are plaguing the FD community will slowly fade out and a newer wave of portrayals will come in, hopefully this time realizing that we are real people and care about us a bit more.

The thing with facial difference is that it's pretty much impossible to make a specific guide of what it's like and what to do in context of writing because it's an incredible vast category that includes conditions that are very different from each other. That's why this post was more focused on "why you should care in the first place" (sorry for the clickbait) rather than being a straightforward guide that would still be very lacking even if 20 different people were collaborating on it. I really, really encourage everyone who got through this rather long post to do their research on what they plan to write about, be conscious of their own biases, don't pull inspiration from movies because they're all hellholes full of tropes and just sit down for a minute, think of the real-world people with facial differences, and read what we have to say. I know that drawing a guy with a line across his eye is more fun than realizing you're low-key scared of or uncomfortable around the real-world equivalent, but sometimes you have to get over yourself and try to be a better person. Caring about the people you write about is, dare I say, essential. That will certainly make your writing of us better :-) (smiley face with a nose)

If you have any specific questions, feel free to send an ask

Mod Sasza

#mod sasza #face difference #writing advice #writing ref #writeblr #writing disabled characters #long post #writing reference #writing resources #writing guide #writing resource #writing tips #writing help #burn survivor representation

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