#sleep disorder

[crippledpunks]

my heart goes out to you if you're a disabled person who has a complicated or negative relationship with sleep. if you need to sleep a lot but can't due to life circumstances, or sleeping extra causing other symptoms to flare up. if you can't sleep enough due to pain, or nightmares, or psychosis, or bipolar, or depression. if you sleep way too much and find it hard to stay awake. if you can't fall or stay asleep. if you need medication in order to be able to sleep. if you don't feel rested from sleep. if you wake up a lot in the night. if you have bladder or bowel accidents while asleep. if you twitch or convulse or move too or get injured in your sleep. if you can't control your sleep schedule no matter what. if you can't sleep during "normal" sleeping hours. if you can't sleep for 8+ hours straight but can sleep for shorter amounts of time. if sleep is what you need but for one reason or another you just can't or refuse to do it.

i care about you. your disabilities deserve to be seen and acknowledged

#actually disabled #chronic pain #cripple punk #fibromyalgia #crip punk #insomnia #troubled sleep #trouble sleeping' #sleep disturbances #sleep disorder #sleep disorders #narcolepsy #depression #bipolary #psychosis #schizophrenia #autism #adhd #ptsd #did #dissociative identity disorder #osdd #mental illness #disability #madpunk #]our writing #cpunk #disability culture #cripplepunk #c punk

[cadaverkeys]

SLEEPSOMNIA!

A short comic about comorbidity rates between autism and various sleep disorders, from autistic people's own reports and accounts of their experiences.

I originally made this for #asdcomictakeover 2023, but my schedule was woeful and I didn't get it finished until many months after autistic acceptance month. But I figured I should have it somewhere on the internet before 2024 rolls around. Thanks for reading! Please understand that I'm just one person and I'm by no means a medical authority. This is not a diagnostic tool, but it does highlight the reality that many autistic people face with chronically disordered sleep patterns. I hope it can help for autistic people to seek help and feel understood if they fall into these comorbidities.

#autism #actually autistic #actuallyautistic #autism comic #asdcomictakeover #autisticcomictakeover #comic #sleep disorder #seerdoesart #i feel like the colours are muted enough to not need an eye strain warning but if its bothering u lemme kno #image description in alt #plz tell me u love the little moon/sun guy

[adhdandcomics]

wait something is just now clicking. if my delayed sleep disorder makes me naturally wake up around 11:30 (being generous here) and i am scheduled to work at 8:30, and the average US adult wakes up at 7:30, that is the equivalent of asking a normal-sleeping adult to come in at 4:30am. which is BATSHIT! no fucking wonder i feel like garbage !!!

#anyway having a normal one #—> guy trying to convince himself to not feel bad about his awful insomnia #or whatever’s wrong idk #text #delayed sleep phase disorder #sleep disorder #at least i think that’s what i have who knows it could be a cocktail #local man who gets 2 really bad sleep nights contemplates destroying his life #like please this isn’t your heart. you just need a nap girl

[tmgstudios]

[long post, sorry, theres a tldr at the end but i really recommend reading the full thing if you can]

i really wish there was more like. narcolepsy awareness stuff in the world. that teaches people the actual symptoms and not just the stereotype. the amount of people i have talked to both online and in person about my experiences with narcolepsy who have been shocked at how much they related to my experiences is staggering. 

narcolepsy is so under-diagnosed and also very often misdiagnosed as something else because so many people, even within the medical field, don’t know the actual symptoms of narcolepsy (i am not pulling this out of my ass, my sleep specialist has told me this several times. its a real issue that sleep specialists continue to battle to this day). up until relatively recently, the past 5-10 years or so, narcolepsy and other similar sleep disorders weren’t even considered real by a lot of the medical field!!

narcolepsy is not “falls asleep at random” disorder. narcolepsy is a disorder of sleep cycles, causing the brain to enter rem sleep much quicker and more frequently then it should. 

this causes things like excessive daytime tiredness/chronic fatigue, extremely vivid dreams, sleep paralysis, hallucinations while waking up/falling asleep, and in the case of those with narcolepsy type-1, cataplexy (aka, while feeling intense emotions the brain will enter rem sleep while awake, causing muscles to lock up. this is where the “falls asleep at random” stereotype comes from, but the person experiencing it is not actually asleep, just unable to move their muscles. i can’t really speak more on this specific part of narcolepsy, since i have type-2, aka narcolepsy without cataplexy, this is just the basics i was told by my sleep doctors. EDIT: someone who experiences cataplexy has added their experiences in a reblog, if youd like to learn more please go take a look!!) [note: these are not the only symptoms of narcolepsy. not all people with narcolepsy will experience all of these symptoms, and everyone will experience them at different frequencies. for example, i only get sleep paralysis once every month or so, and my hallucinations tend to be limited to auditory] according to my sleep doctor, narcolepsy also has links to both adhd and chronic strep throat as a child (i have no idea how that last one works. but. thats what my doctor said and hey. she was right. i had chronic strep throat as a child and look at me now.) EDIT because i forgot to add: narcolepsy can not only co-exist with insomnia, but cause insomnia as well! excessive daytime tiredness --> more naps during the day --> harder time falling asleep at night

so yeah. i guess this is me doing awareness. if you relate to any of these symptoms, please talk to a sleep specialist if you’re able to. it might not be narcolepsy, but chances are it’s something, since none of these things are normal (to repeat, excessive daytime tiredness is not normal. that means there is something wrong). theres nothing wrong with asking a sleep specialist about narcolepsy and getting tested for it, even if you come back negative. 

my dms and askbox are open anytime for any kind of questions about narcolepsy, the diagnostic process, treatments, etc. while i am not a doctor, i have learned a lot through my own experiences, talking with my sleep specialist, and also my own research, since i’m currently studying to hopefully make narcolepsy research my career! whether you are questioning having narcolepsy or not, you are not bothering me with questions, i promise, you asking will probably make my day

TLDR; narcolepsy is a very misunderstood and underdiagnosed sleep disorder, and i highly recommend everyone learn about what it actually is and what the symptoms actually are, and if you relate to any of them, talk to a sleep specialist

[other narcoleptics feel free to add on to this post with your own experiences(and also to message me i always want to talk to other narcoleptics ASJDKHJ), and non-narcoleptics please please feel free to reblog! i really want to start spreading awareness for this disorder, since again, severally under/misdiagnosed and most of the world is still under the impression that the narcolepsy stereotype is true]

#GIRL HELP I KEEP FINDING TYPOS/GRAMMER ERRORS AFTER IT ALREADY HAS SO MANY REBLOGS #narcolepsy #narcoleptic #sleep disorder #chronic fatigue #disabilty awareness #narcolepsy awareness #disability #disabled #please reblog. i really dont want this to flop lol i am So Passionate about this stuff

[wishkhh]

chronically eepy and that's ok

#narcolepsy #chronic disability #idiopathic hypersomnia #invisible disability #disabled #disability #i'm diagnosed with narcolepsy! #invisible illness #neisvoid #sleep deprivation #sleep #sleepy #sleep disorder

[hellbrainspeaks]

I really hate that I have to refer to my sleep cycle as a disorder. If I can sleep with no other difficulties besides when my natural circadian rhythm decides it’s time to wake up and fall asleep, why am I considered the problem. Humans socially engineered the 9-5 schedule, that’s an artificial barrier we constructed for ourselves, and is a very recent development in history. Why is that the norm and me the problem. Evolution didn’t design us with jobs and schedules and money in mind

#hellbrain dump #mental health support #sleep disorder #circadian rhythm disorder #DSPD

[thisthat-ortheother]

#sleep poll #sleepy #so sleepy #nap time #exhausted #eepy #so eepy #sleep deprived af #sleep disorder #poll blog #random polls #silly polls #stupid polls #polls #silly poll #tumblr polls #poll #mentally drained #emotionally drained #i am weary #i am dead #language #words #vocab #winter poll #cozycore #sleep deprivation

[starlight-nocte]

when i think of sleeping,

i think of dying.

i think of oblivion,

of drowning in the Nile

after baking brown in the 

desert sun…

when i think of sleeping,

i am afraid

because sleep has been 

such a part of me,

has taken too much–

more than its due.

i have lost centuries to this thing,

this disease of

shut-eyed nothingness. 

in truth,

i don’t think it’s possible to be 

safe from sleep.

because this kind of sleep

sticks to your bones,

mouths at the ridges of your throat.

this kind of sleep

eats you alive.

 - Safe From Sleep, after Iman Mersal

#poetry #poem #poems #sleep #sleep disorder #excessive daytime sleepiness #sleepy bitch disease #idiopathic hypersomnia #narcolepsy #spilled ink #spilled words #spilled poetry #spilled poem #spilled writing #iman mersal

[lunarresin]

Lots of new disability pride/awareness bracelets in my Etsy! (With more coming soon!)

#my art #disabled #disability #disability pride month #disability positivity #neurodivergent #actually autistic #autistic artist #queer artist #potsie #narcolepsy #disability pride flag #spoonie #cripple punk #disabled artist #mental health #system #chronic illness #chronic fatigue #sleep disorder #idiopathic hypersomnia

[maraudersdreamer]

narcoleptic! regulus black hc :)

-you can find him sleeping in the weirdest places at all times of day

-Sirius always holding him up if he has a sleep attack even if they’re arguing

-walburga and orion would get pissed if he slept for more than 12 hours so he was perpetually being woken up on breaks

-taking naps in the room of requirement

-eating dinner and regulus almost falls asleep into his plate. barty just holds him up and continues his conversation with evan

-him being constantly tired and drained

-emotional when he doesn’t sleep as much as usual

-him having the worst memory

-during a Slytherin vs. Gryffindor match anytime reg looks sleepy James flies over and makes sure he’s up

-reg having sleep paralysis demons and seeing his mom

-sleeping with James helps :)

-reg steals remus’ sweaters cause they’re like a big blanket

-the professors never take away points for him sleeping in weird places

-him sleeping for 20+ hours and then going to the kitchens to get snacks from the house elves

-Pandora thinks it’s the nargles

-marauders always make sure hes comfy or has a blanket if they see he fell asleep

-he sleeps like the dead

-one time he came to a Gryffindor party and fell asleep on the couch and slept through the entire thing

-half the time he’s in pajamas (James clothes) and wearing fluffy slippers

-cuddles with Padfoot <3

#regulus black #harry potter #marauders #hc #headcanon #jegulus #sleep disorder #narcolepsy

[disabilityflags]

My take on an insomnia flag

I looked around for one but couldn't find any besides a homestuck one and a flag that was very harsh to look at, this flag is not to replace either of them but to offer an alternative.

These are just darker colors that I associate with insomnia.

#sleep disorder #sleep disorder flags #insomnia #disability flags

[rosesandthorns44]

Saw my sleep specialist yesterday. He's a dapper older French man who loves dogs and whispers sweet nothings into my service dog's ear in French. Which I absolutely allow because it's adorable.

He sat down right next to me and *gently* chastised me for waiting until things got this bad again to make an appointment.

"This is no quality of life for you. There are more things we can try. I cannot help you if you do not come see me" *said in French accent*

Fair point doc.

I guess I am just so accustomed to feeling like crap all the time that I stubbornly muscle through things when I really shouldn't. I tell myself, "It's not bad enough to ask for help yet," until it's so bad that I want to lay down on the floor and stay there forever.

Also, I was scared of getting put on the really heavy-duty medication for idiopathic hypersomnia that has a metric fuckton of potential side effects. That's not what's happening, though. I'm getting put on Sunosi, assuming my insurance covers it. Until that comes in, he's maxing out my dose of Modafinil.

TLDR: Rosie is a stubborn idiot who needs to start asking for help BEFORE things hit a crisis point!

#idiopathic hypersomnia #IH #sleep disorder #narcolepsy #sleepy bitch disease #chronic illness #super sleepy #ehlers danlos syndrome #dysautonomia

[beautifullychaoticworld-blog]

OMG why do I want to sleep all the time... I was super tired by the end of the work week and fell asleep at like 19.00 last night...

#sleep disorder #sleepiness #tired #i been working

[yellowyarn]

disability isn't a "social construct". my disabilities are real and will always exist even in some perfect world.

#tw ableism #disability #nuero punk #autism #mental disabilities #autipunk #auti punk #nueropunk #asd #level 2 autism #level 3 autism #delayed sleep phase disorder #sleep disorder #phobia #anxiety #high support needs #medium support needs #level 1 autistic people need to quit acting like they are the default when it comes to autism #and if you have no right to make statements about a disability you dont have without properly facr checking it and talking to people with #said disability #fuck ableism #if you dont think disability would exist in a perfect world thats eugenics

[eveningdawn222]

something really stupid about representation is that the first time i saw an ad for narcolepsy medication on tv i almost cried. this was me, 14-15, having had to describe this condition to people every time it comes up, having my own sister not realize the severity of my condition, seeing a kid fall asleep on a school bus and miss his stop with that stupid "have you or a loved one" voice overtop, and i literally stopped in the middle of a sentence, shell shocked and on the verge of tears because that was the first time i had ever heard my disorder be on tv. it was a legit "look mom, that's me" moment. i legitimately called my mom in an said "look, i'm on tv!" over a fucking ad. for like. idk concerta or something.

#narcolepsy #representation #chronically ill #chronic fatigue #sleep disorder #disability #disabilties #disabled

[xxhypersomnia]

Today and everyday, I am representing those with the rare disorder - Idiopathic Hypersomnia.

IH causes one to be very sleepy during the day regardless of the amount of sleep received. Unfortunately, we have yet to figure out what causes IH or how to treat it. I have participated in numerous medical trials, taken trial medications in every form imaginable, and I have even been injured by medical tests gone wrong (induced sleep paralysis = broken toe). I have spent countless weekends in a hospital bed, forced to stay awake for 25+ hours in order to conduct testing so perhaps others can find relief.

How does it affect my life?

I’m exhausted all the time. I honestly don’t know what “being refreshed” feels like. I haven’t felt that since I was a child. I sometimes sleep whole days away and it affects my relationships. I can’t drink with friends because the alcohol will make me fall asleep at the bar. I have been bruised from too much time in my bed or couch. It makes it extremely hard to stay motivated at the gym. I have fallen asleep on a treadmill and while recieving tattoos. Worst of all, it affects my memory (along with another neurological disorder). Sleep is so important to our brains, it’s a time for it to recover. And my particular version of IH causes my brain to float in light sleep, hardly ever reaching REM. So my brain is never healing. I forget things, I get anxious that I’m forgetting things, and I have a hard time formulating words that I want. It hurts to know I’m smart but can’t always present myself that way.

I could go on and on about the affects it has on me, but honestly the hardest part is people who don’t think you have a disorder. “I’m tired a lot too!”

I will always and forever support invisible disabilities. It is a backwards way of thinking to think disability means wheelchair, or some other physical ailment. Just because you can’t see a disorder, doesn’t mean it’s any less real. “You’re too young to be forgetting things..” that’s one I hear A LOT. Yea, thanks for the reminder than I’m on my way to early memory loss way before my time. I can’t even remember vacations with my family. Memories that I know I love but can’t reach.

Be kind, be cautious with your words, be supportive even if you don’t know the whole story, don’t deny someone else’s reality just because it’s different than your own.

To all my loves with narcolepsy or any other invisible disability, I see you ♥️

#worldnarcolepsyday #narcoleptic #narcolepsy #idiopathic hypersomnia #idiopathic hypersomnolence #no sleep #sleep disorder #livingwithIh #no rest for the wicked #invisible disease #invisible disability #awareness