#so take my feelings others spoonies | Explore Tumblr Posts and Blogs

ao3commentoftheday · 5 months

Note

Hey!

This is something that's been rolling around in my head for a while, and I'm wondering if you or any of your followers have experience with getting back into writing after illness.

I've been chronically ill for a long time. My symptoms vary a lot depending on external circumstances. From about 2019-2021 or so, I was updating an AU about once a month and having an absolute blast with it...then my health hit a stumbling block. Then it hit another, and another.

I'm now at a point where the stumbling blocks don't seem to be going away anytime soon. I'm starting to feel the mental health effects of not having the spoons to work writing into my day.

I spent the past couple years trying to let myself lie fallow and be kind with my brain when my body needs so much help. I'm at a point where even when I WANT to write, it feels like it's been so long I've almost forgotten how. I'm stalled on all my WIPs from that AU, but it doesn't feel like writer's block so much as it feels like writer's atrophy. I miss it terribly, but I'm having a lot of trouble getting back on my feet.

Thank you for everything you've given our community over the years! 💜💜

*hugs* that's a rough spot to be in, and I hope that we can offer you some ways to get out of it. I'll offer some suggestions from my own experience with a change in health status, but I'm really hopeful that the rest of the blog have some tips to share as well.

Don't hold yourself up to your previous standards. Your abilities have changed, and you should take that into account. If you used to be able to write for 2 hours and now you can only manage 10 minutes, don't see that as a failure. 10 minutes is now your success point. If you used to be able to manage 100K stories with intricate plots and now you find it a challenge to write a straightforward oneshot? Then finishing that oneshot is an accomplishment to be proud of.

If the way you used to do things doesn't work, don't keep trying to do them that way. If you used to type onto a laptop but now staring at the screen makes you feel exhausted? Try dictating into your phone and using speech to text to transcribe it. Then you can go through and edit what's already there. If you used to write at a desk but now sitting up for long periods wears you out? Try tapping it out on your phone in bed. You can't focus for long periods the way that you used to? Turn on the TV and write during commercial breaks.

Don't try to pick up right where you left off. You need to get yourself back in writing shape before you can take on a story that's already halfway written. Those WIPs will still be there, even if you start off with a ficlet or a missing moment or a post-episode coda etc. Start off small. Use ideas or plots that are easier for you to write. Get back into the swing of it before you try to tackle a big project again.

As you try to write something and you find yourself unable to, take a moment and try to identify what the hard part is. Are you having trouble finding words? Are you in an uncomfortable position? Is the device you're using annoying you or difficult to work with? For each problem you can identify, see if you can find an accommodation for it - and look to see if other people have had to accommodate the same issue before you. It's very likely that they have.

I'll stop here and let the spoonies share their thoughts in the notes. I look forward to picking up some advice for myself too ❤️

You can find this question and answer over on Dreamwidth as well, if you'd like to join the conversation over there.

#asks and answers

1K notes · View notes

istudythestars · 9 months

Text

tips for stem majors in math and science courses (spoonie + neurodivergent friendly)

hi y’all! my nameis lila and i’m a 28 year old physics and anthropology major who’s about 2 years through college (in the US)! as we’re coming up on the start of the fall ‘23 college semester, i thought i might share some really solid hacks for fellow STEM students taking science and/or math courses that i’ve basically built my college academic career on. and! these study tips are spoonie and adhd friendly! as a matter of fact, a lot of these are tips/methods that specifically work for me as a neurodivergent spoonie (i have pretty severe adhd, as well as POTS and ME/CFS), but that i think non-disabled/non-spoonie and/or neurotypical students could also benefit from using! so with out any further ado, here are my 7 tried and true study hacks for college math and science classes…

1) discover your learning style and tailor your studying towards leveraging it.

you’ve probably heard of visual, audio, and kinesthetic learning styles, but did you now there’s actually way more learning styles than just those three? i’m personally a “social learner,” meaning i learn best through discussion and socialization with 1+ other people to interact with. this could look like teaching other classmates concepts and methods that we’ve learned or discussing ideas with classmates and/or professors until i fully understand the concepts at play and how they connect and can reflect them in performing analysis and application, etc. honestly, figuring out my learning style was hands down one of the most helpful things i’ve done in college. it has allowed me to choose professors who i will mesh better with in terms of how they teach, as well as to adapt materials and methods to my style of learning in order to master them quicker and more effectively.

2) rewrite your notes after lecture, for the love of god.

this tip actually comes from my high school IB Math HL teacher, who told me to do this when i originally left high school for college. even if you think you’ve mastered the basics of the topic covered during the lecture, rewriting those notes after lecture helps really hammer in the knowledge that you’ve already established and also helps to get the wheels turning on pieces of information you might have less of a grasp on. try tp set aside at least 30 - 40 minutes after class to just rewrite your notes and try to really digest the information.

3) body doubling is one of the most beneficial things ever to be invented even if you’re not adhd, and i WILL die on that hill, thank you very much.

“body doubling” or “having an accountabilibuddy” are interchangeable terms in the adhd community that mean you have one or more consistent study buddy/buddies who you do all the homework and/or studying with in person on a regular basis, even if you’re just working next to each other in total silence. this does a couple of things. first off, it forces homework/assignments/studying to become a concrete social obligation you need to regularly show up for, rather than a nebulous obligation based on an invisible deadline. second off, it gives you 1+ partners to work out your problems concerning course topics with. third off, it allows you to build a network of peers where you feel comfortable helping each other with course material (this is especially great because it’s likely you and your classmates have different strengths regarding course content). tbh, body doubling is the other method that i, personally, have found most useful in college and i highly recommend trying it, even if you don’t have adhd.

4) teach others/your classmates the analysis and application methods you’ve learned, even if those methods aren’t 100% solidified for you (trust me on this).

the goal of stem courses is never memorization, but rather being able to understand a topic well enough to analyze a similar situation and apply the what you’ve learned creatively. this is where teaching others comes in. in order to teach others a concept and its related analysis and application well, you have to have at least a fraction of a decent understanding of these things yourself, and, further, often time in teaching these things you also learn to grasp the concepts/aanalysis/applications even better than you did before with each new teaching session. basically: teaching others is a creative way of also teaching yourself. you get the benefits of repetition, of thinking about a concept/technique/analysis and application in a new way, and of getting to apply the concept/technique/analysis and applicatioin to a new scenario each time. plus, you’ll typically make friends quickly in the process! there’s really no downside to this tip imo ;-)

5) utilize your college’s tutoring center/program(s), even when you don’t think you need to.

usually colleges have either set up a general “tutoring center,” on campus where you can find tutors for all different kinds of topics and courses available during regular hours for walk-in sessions and/or appointments free of charge or departments will hold regular weekly (or twice weekly) free on-campus tutoring sessions for specific courses. regardless of which of these options your college has, i highly recommend attending at least one tutoring session/appointment (ideally with the same tutor if/when you eventually find one you click with) every single week, even when you don’t feel like you’re struggling with the topic(s) covered in that week’s lecture. this will help you review topics and techniques covered in lecture, deepen your understanding of them, and, if nothing else, it’s an excuse to get homework out of the way while having someone else there who can help you if/when you get stuck. attending at least one session weekly also helps you get into a habit and routine of keeping up with your assignments, so you’re not left scrambling at the last minute before they’re due.

6) if you have accommodations, request access to record lectures. if you do not have accommodations, ask your professor if you are allowed to record lectures. IF YOU RECORD LECTURES, DO NOT FORGET TO REVIEW THEM!

okay, so first up for my fellow spoonies and neurodivergent peeps: when you apply for/renew your accommodations, make sure that “recordinng lectures” is on your MOA (memorandum of accommodations), because so long as it is, your professors legally cannot deny you permission to record lectures without risk of themself and the college being sued for an ADA violation. also, make friends with a classmate and ask them to record lectures and send them to you if/when you are absent (let the professor know that you’ve asked this classmate to record and send you the lecture if you are absent)

now, if you aren’t disabled, a spoonie, and/or neurodivergent, you aren’t guaranteed permission to record lectures. however. ask the professor if you can have their permission to audio record lectures (be sure to also let them know that such a recording would be for personal use only and that you don’t plan on distributing the recordings). i’ve found that many professors don’t mind you having an audio recording.

even if you aren’t an audible learner it can be really useful to have these recordings to review at a later point. oftentimes reviewing lecture recordings can be useful if you glazed over and missed a section of the lecture and/or if you can’t remember what a professor taught during a section of a lecture.

7) last but not least, on a related note, if you have accommodations, also request access to your professor’s lecture notes. if you don’t have accommodations, check if your professor posts their lecture notes for students to use.

having your professor’s notes can be extremely useful for review purposes, but they can also help you understand where your professor is going with course content and what they want to stress as important.

189 notes · View notes

ididit-allofit-foryou · 1 year

Text

Chronic Illness Products: Tried and Tested by a Fellow Spoonie

Hey! I’m Rain, and I have various chronic illnesses and disabilities, including: POTS, chronic migraine, chronic pain, and chronic fatigue. The following products are some that have helped me with my symptoms!

Migraine Ice Head Wrap

https://www.amazon.com/dp/B09BN7TV6N/?coliid=I2CB88I8424KRB&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

This is great because it can be either heated in the microwave or cooled in the freezer. It has gel in it and it is heavy so it puts a little pressure on your head. It also has velcro closure so it can be adjusted for head size and pressure. You don’t even have to put it in the freezer if you like it cold, because if you keep it at room temperature (my house is usually between 68-71 degrees F) it will get cold by itself and it can help for a while, about 10 minutes before it gets warmed by your body heat.

Monthly Pill Organizer

https://www.amazon.com/dp/B09V53JTM6/?coliid=I2IBUBXDTRNU36&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

I hated having to refill my pill box every week, so I got 2 monthly organizers and use one for morning and one for night, and I only have to fill it once a month! I like this band because it is easy to open and each week comes out by itself so if you travel you can take just one week with you. I also like that they are all in a case and it closes for safe keeping.

Bed Tent

https://www.amazon.com/dp/B07T4JV6ZT/?coliid=I33UE149JTQBTG&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

This is more expensive, but it is absolutely worth it if you have migraines. It has 6 zippers: one on each side, one on each end, and the top part of each end flap has a second zipper that opens a mesh area if you want air or light. You can close it entirely, and it makes it dark even in daylight, but it is still breathable and not stifling. There is also a pocket at one end that can hold a TON of stuff. I keep snacks and things in there for easy access. Finally, there is a little circle hook on the top where you can hang a camping fan or light if you want!

Cooling Neck and Head Towel

https://www.amazon.com/dp/B00JH4H5AS/?coliid=I3L6Z4MFFV2IK1&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

There’s a few different brands of these, and I couldn’t find the exact one I have, but any will work! My brother used this brand for when he played sports–I use mine to cool my neck when I’m nauseous lol. It stays cold for longer than just a regular rag and the water doesn't get everywhere.

Neck Pillow

https://www.amazon.com/dp/B09MQ416CR/?coliid=I34LO7QKQ5H4Z&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

Simple, yet effective. If you have POTS or any other condition that makes it hard to sit up for long periods of time, or a condition where you have neck weakness/pain, then this is for you. Riding in a car? Recline that seat a bit and put on a neck pillow. 10/10 much better car experience.

Cane With Seat

https://www.amazon.com/dp/B00DPOOCC0/?coliid=I133WRLIWPH40D&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

I have POTS, and I use a wheelchair for most places that require walking, but a lot of areas where I live are not wheelchair-accessible. So, I use this! If I feel dizzy, I can just open the seat and sit down for a bit until by body chills the fuck out.

Electric Toothbrush

https://www.amazon.com/dp/B08LJNZW3Y/?coliid=I189MT1VEIKUTZ&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

It doesn’t have to be this kind, but since I can’t stand long enough to brush my teeth very long (or at all some days), I use an electric toothbrush to get a better clean in a shorter amount of time. They cost a bit more, but less than a cavity filling.

Shower Chair

https://www.amazon.com/dp/B07NM77DJ2/?coliid=I1SRRBS7ISI3E1&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

If you feel dizzy in the shower, or can’t stand very long due to pain, or for whatever reason, and are considering getting a shower chair, this is your sign to do it!! It has helped me so much and makes showering SO much easier and way less daunting.

Bath Pillow

https://www.amazon.com/dp/B0B9WG925R/?coliid=I1C4T2MUPR33WU&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

I have chronic pain and laying in the bathtub in warm water can help with it, but it also hurt my neck to lay on the hard surface. Not anymore! I’ve also seen full-body bath pillows that would be GREAT but I don’t have anywhere to store it. For this one, I just keep it in the tub all the time.

That’s all I could think of at the moment, but I will reblog this with more items if I think of any! Feel free to add to this list yourselves!

382 notes · View notes

birdystars · 1 year

Text

Dsmp Headcanons: Being Chronically Ill

little headcanons for different dsmp characters and how they help you with your needs being Chronically Ill/A spoonie Characters: Ghostbur, Karl, Quackity, Eret, Sam, Foolish, Ranboo Most can be interpreted as platonic or romantic

A/n: I tried to make it general but of course mainly went off my own experience as a spoonie and I can’t cover anyone in the community as much as I wish I could. Might go in-depth with a Chronically Ill reader with one of the characters some other time if I get the inspo for it.

Ghostbur

-This guy would bring you so much blue

-Offers to let you cuddle friend if you’re having a bad day since he can’t hold you

-You can also have all of his big sweaters if you ask

Karl Jacobs

-All I can say is cuddles cuddles cuddles

-Flare up? cuddles, no spoons? cuddles

-Loves to take you traveling but if he knows you aren’t up for it he will force you to stay home

Quackity

-This man works a lot, but he always makes sure to check in on how you’re doing

-Flare up? I guess he can miss one day of work to take care of you

-If he cant miss work he would make sure you are stocked with anything you can think of, food, pain meds, heating pad etc.

Eret

-Will always check to make sure you drank water and took your meds

-If not he will watch and make sure you take them

-Will pamper you, he is the king after all

-But if you ever say its to much they will back off immediately, he doesn’t want you to think he is treating you any differently.

Awesamdude

-Brings you to the prison when you aren’t feeling well to care for you

-Never wants to leave your side in a flare up even if he has other duties

-Would make you any mobility aids you may need and would do research to make sure he make it perfectly

Foolish

-Probably doesn’t fully understand what you mean by chronically ill

-”What do you mean it doesn’t get better?”

-He means well I promise

-Will try to make you laugh whenever you aren’t feeling the best

Ranboo

-Will carry you anywhere

-Legs hurt? Lightheaded? forgot your mobility aid? He will carry you around as long as you need

-Always try to make sure you’re comfortable in every situation and will constantly check up on you even if you’re having a good day

And none of them would think lesser of you or care about you any less cause of something you can’t control. You are loved and valid!

#dsmp #dsmp x reader #dsmp ghostbur #dsmp karl #dsmp eret #dreamsmp #ghostbur #karl jacobs #karl jacobs x reader #quackity #quackity x reader #the eret #eret x reader #awesamdude #awesamedude x reader #foolish x reader #foolish gamers #ranboo #ranboo x reader

196 notes · View notes

esoteric-chaos · 3 months

Text

Impostor syndrome within the witchcraft community is something that needs to be spoken about more as a topic as a whole. Especially in a space where mental health is so vital as many of us struggle with it.

Not only amongst witchy creators but anyone who practices. Everyone’s voices matter, everyone has important information to teach and speak about.

Yeah maybe your altar isn’t as “pretty” as that Pinterest one but let’s be honest. Witchcraft is downright ugly looking sometimes. I know my spells aren’t aesthetically pleasing in the slightest. It gets the job done though!

Sure that one witchy creator might know a bunch but maybe you have a perspective they didn’t think about? Or maybe they aren’t as knowledgeable in your area that you focus on and that’s so cool! Something you can share with others and focus on (if you can share it).

Especially as a spoonie witch? Our crafts can look so different from those with higher energy or able bodies. Please don’t beat yourself up if you can’t do a daily practice. You’re still a practitioner no matter what.

There’s so many different perspectives to look at. You matter, your voice matters and so does your experiences. Please don’t feel dejected by what you see online. People love and appreciate what you put out there. What should matter is how important your craft is to you and that it’s so uniquely you. Nobody can take that from you.

#witchcraft #witch #electic witch #witchblr #paganism #spoonie witch #spoonie magic #mentally ill witch #witchy things #witchy post #witchy tip

21 notes · View notes

desertwaterwitch · 1 year

Text

I’ve done and made a fair bit in my craft. Well I say that as it’s a fair bit in my opinion. Probably nothing compared to others, but I’m a spoonie, sooo yeah.

I love water magick so much. And the salt water spray I made recently, it is so potent and works so well! I swear it’s the best thing I’ve ever “made” in three years. I keep it next to my bed and just spray it around my room whenever I feel I need it. I’ll have to make more soon because I’ve used a lot. Because of my depression, anxiety and illnesses, I will get a lot of negative energy around me. So the spray helps so much.

When I spray it I pretty much always say the same thing:

“I only want good energy and spirits in here, so if you’re negative in any way, get the hell out. I don’t want you here.”

I spray everywhere but I spray more in particular areas that I feel need it, on whatever day. A few hours ago before I got into bed, I did my black tourmaline ritual where I trace my door (don’t forget to trace your door handle and light switch) and window with it. Then I sprayed at my door, window, and even my open closet door which was interesting, but I’ve learned to trust my intuition. It doesn’t hurt to spray, so even if I was wrong, who cares? No risk.

Like I said, a lot of bad stuff has been going on and yesterday was just…gah. I even spritzed myself for some reason. But it did help as always!

I just use moon water (this one is full moon) and sea salt. Honestly I’d use table salt, but I have sea salt already for my diy piercing cleaner, so I go with that. It’s whatever I have. I cleanse the bottle using the night air (open my window), before putting anything into it. The air is such an amazing way to cleanse, and I did it for the first time a while ago because I was desperate. I have nothing lol. I just did it on a whim and thought, “hey, air!” It’s amazing for us spoonies 👋🏻 who just want to cleanse something and don’t have the damn energy. Also broom closet witches, and just any witch. It’s free and takes almost no effort.

I’ve learned that whatever water you feel is best, use it! I use sun water a lot and I love it. But when I was choosing what water to use, I felt strongly that I should use full moon water. I have a bunch of different waters in my mini fridge.

Some witches say you shouldn’t use plastic bottles, and for a long time I just said okay. But I didn’t have glass bottles. Glass is also more expensive. And me? No money. Spoonie, remember? So I will use plastic spray bottles unless I have glass on hand (when my mom decides to buy them because she likes the sprays I make in glass bottles) because it works for me and I have learned to trust what works. My advice is to not be paranoid about every little thing like I was and still am sometimes. It’s your craft and you can do whatever you want. And knowing that is really empowering to me.

#witchblr #witchcraft #witch community #beginner witch #baby witch #witches of tumblr #witches #broom closet witch #water witch #spoonie witch #witch tips #cleansing spells #protection spell #moon water #water magick #disabled witch #black tourmaline #crystals

89 notes · View notes

stellevatum · 16 days

Text

Please at least give it a read! Liking this post also means it’s more likely I will follow back, as I know you have RAU’d.

Updated 04/24/2024

ABOUT:

Kar/Karmun/Karthonic either-or. If you'd rather separate mun/muse you can use my middle name, Asher to refer to me.

They/Them is cool.

From New York, so the timezone is EST.

Birthday’s January 1990, so 30+

Spoonie with AuDHD

Artist, and educator, so I can get busy. I commute, so I'm on the train for a few hours a day,

You can reach me on here or on discord. Just ask.

Personal blog @karthonic.

On mobile most of the time.

I left the Tumblr RPC 4 years ago so forgive me as I catch up with the new etiquette, etc.

GENERAL:

Above all else: Be Excellent to each other and party on, dudes!

This sounds redundant to post this but: If you have no intention of RPing with me don’t follow. Lurking for a bit before reaching out is fine, but I would like genuinely interested folks. Optional, but I've made an interest checker to help organize things.

This incarnation Kar is for SCIENCE FICTION/SPACE OPERA like verse. Her Contemporary/Urban Fantasy/Paranorma;/Supernatural self can be found at @obscurushydrae

While she's Star Wars Based, don’t sweat it if you don’t know the other stuff. If your fandom/verse has a way in, I can finagle her into all sorts of place (she's literally an cosmic horror at heart).

That ‘selective’ part comes into play. I have every right to not follow someone, decline a roleplay, just as you do. Just be polite and respectful.

Crossover/AU/Multiverse/Self Insert friendly. Not your thing, then feel free to not follow.

There will be casual mentions of recreational drug use, more often than not mentions of alcohol than drugs, but will be tagged upon request. Other possible triggers are her fatalistic humor.

This is not a content resource blog. If you’re here for the pretty pictures, aesthetics, or memes, this is not the blog for you.

Communication is key. My muse might be intimidating, but I'm not-- just very busy and on mobile more often than not. Don’t know something, or want me to elaborate: ask! I forgot a reply or not feeling a thing anymore, lemme know. I'm good.

Godmoding is discouraged but I’m not going to stop it. I will likely try to out ridiculous you Bugs Bunny style. Even though she can’t die, you’re free to try and kill her, but let me know first (either way she’s gonna be pissed FYI).

Most art is mine but will be credited. If I reblog any art reposted without the original creator’s permission, let me know. I’ll remove it.

IN CHARACTER:

Compatible Fandoms (ie I am Familiar with): Star Wars, Mass Effect, Borderlands, Alien/Predator, Dune, The Outer Worlds, Subnautica, No Man's Sky, Galaktikon, RaM, H2G2, and more!

Kar for the most part, is literally the Force. In a body. Raised by mortals, so she thought she was. And spent most of her life just vaguely gesturing and just going with "humanoid." Force sensitive characters might be able to sense her, but she can mask it.

As for appearance, unless you’re really looking you might notice the fangs. And for the most part, assume she’s wearing her signature sunglasses covering her eyes since those rarely are taken off in public.

While not usually brought up, but Kar has attempted to end her life and self-harmed. Nowadays it’s usually just masked with fatalistic humor, recreational drug use, and lots of drinking.

SHIPPING:

Shipping is welcomed and willing to discuss the possibility, but I leave the rest to chemistry and just how we as writers write. Kar is into male muses, and will be polite about turning other people down, unless one doesn’t take the hint.

That being said, don’t ask to ship with me and just…drop off. I believe in mutual enthusiasm. If you're no longer interested, just communicate.

This blog is multiship, meaning each relationship is treated as its own separate place in the multiverse unless discussed and agreed upon.

Kar can be polifidelitous. She’s okay with having multiple partners and those partners having partners if your character is cool with it. But she can be selectively monogamous in your little bubble.

NSFW may be on here, or I might do it over discord. I'm playing it by vibes. As I don't really have any established romantic stuff since rebooting, I can't say with any certainty.

FOLLOWING/UNFOLLOWING:

Please don’t follow/interact if you’re under 21. If I follow anyone underage, it’s because I wasn’t able to access any about/ooc information, please don’t take it personally if I unfollow!

If I don’t follow you and you follow me, please just hit me up before doing something. Just because I don’t follow means I’m not interested, I just don’t think our characters mesh with the information given. If we chat about it, who knows!

If I follow you or like a post but not follow, it's likely because I want to check out your rules but can't find a mobile friendly/need time to look through things. If you follow back, I'll message as I don't want to overstep.

I don’t usually greet/interact with personal blogs, so side blogs off personals give me a heads up. Otherwise, I might miss you.

ASKS:

Askbox will only be open for IC interactions, save for when the meme specifies Mun. IMs are for OOC communication. Anon feature is for sideblogs, multimuses to interact ICly with me. Any Anon messages good or bad directed to the Mun (outside of memes) will be ignored.

No Magic Anons, please!

There’s no need to wait to send me a meme if you’ve followed me for 5 minutes or 5 months, send the thing.

Reblog Karma is going to be enforced on this blog. That is, if you reblog an ask meme off me, please send me one. Otherwise, reblog the meme from @karref

THREADS:

Jump on any open post, there’s no need to ask permission, they’re there for that reason!

I will be keeping my posts simple! I don't have the time/energy to make formatted posts, and I like to keep things as accessible as possible. I do try to keep track of the heavily plotted stuff, but the casual things might drop off. Feel free to remind me if it's been a bit!

Communicate! If you’re having trouble writing a reply, talk to me! If you don’t like or not feeling a thread, say so and drop the thread. That also doesn’t mean things are done for good. Come to me if you want to skip/do something else.

If you’d rather we move things to discord, just ask! I’ll set up a server just for us!

TAGGING/ HARD LIMITS:

Blood, Gore, Body Horror, Drugs, etc, will be tagged with (name); for instance drugs; . Special Tags on request.

Posts will be tagged upon request, just let me know!

If you read and understand this, I would appreciate if you'd leave a like the post, that way I know you have without forcing a password.

But if you'd like to message me, here's a DM icebreaker: What's your favorite extinct animal? (If you're lucky I may have cool fact about it.)

HOPE TO WRITE WITH YOU SOON! :D

#nav;

8 notes · View notes

ruinaimagines · 1 year

Note

Welcome back!! Fellow spoonie here, and I Know how it feels to lose steam due to chronic pain and fatigue (*gestures to the multiple art projects that have been left as works-in-progress for months thanks to unforgiving joint pain*). I'm slowly getting my energy back and I hope you feel better too!

For a warm-up, how about some headcanons for Punishing Bird befriending an employee? It's so friend-shaped when it's not trying to eat your agents and the thought of someone having a tiny murder tit sleeping on their shoulder as they work is too funny and adorable

Hello once more! Eheh a bit delayed but here it is at last. Limbus Company’s release has really injected me with inspiration so I’m hoping to release this alongside multiple others. Thank you for the well wishes and understanding cause man, medical problems are wacky, and hope you’re doing just as well!

Punishing Bird Befriending an Employee Headcanons:

Okay so befriending this bird is a wild experience. Perhaps it has taken a very special liking to you- whether a new or old employee it sees a sense of justice within you leading to it to act the way it does.

Often whenever it breaches and ventures throughout the facility it doesn’t really take breaks outside of being a nuisance and smacking its small beak against someone’s cranium.

No one really does anything or interacts with the bird, everyone’s too freaked out about it snapping open its jaws and eating them. A reasonable fear, but a passed up opportunity you seized.

It’s a bird.. So why not bring some bird seed? Sure it’s not really the most traditional version of the animal but hey.. It’s worth a try.

I think Punishing Bird would see it as a sort of offering of gratitude for the hard work it does (pecking people). This is something that stirs its affinity towards you. Most people duck and take cover, or just keep speeding up so it can eventually land on something else to harass. But an offering? Well..

The thing is so adorable picking at the seeds tossed on the ground in the hallway. As deadly as it is, it's just so cute.

That said the first time it lands on your shoulder? It’s horrifying. Now yes you’ve been having good experiences with the abnormality but no one really knows or has an idea of what is deemed as ‘aggressive behavior’. That’s why no one does anything.

It’s just hanging out there… like you’re a perch? Well given the new scenario you’re likely to be as still as one. But.. there is work to get to and your reports aren’t going to look great if you sit around doing nothing.

So I imagine you’d give a try at moving and.. Would you look at that you’re not immediately dead! Sure it’s going to take some testing on just what this little bird will permit you to do in its presence but progress is being made.

Generally befriending this abnormality would be super beneficial to you. Asides from it just being great emotional support when it nests on your head and cuddles up in its own feathers, it also encourages things not to mess with you whether that’s people or other abnos.

Something trying to hurt you? What a fool. Its beak snaps open and devours whatever it is whole. If your uniform isn’t already a mess from the work day than it is now, that’s the price to pay for protection.

Sadly you would not be able to bring it into the other containment rooms due to protocol. Management doesn’t want to run the risk of unintentionally finding a deadly combo of abnormalities.. And depending on the behavior of what you’re working with, Punishing Bird might try to pick a fight.

This little bird has a voracious appetite. It will flutter on by, sit on your shoulder and try to snag a bite of whatever you’re eating for lunch. Whether you want to or not you will be sharing your meal.

Being in the same room every day can be sort of boring and believe it or not Punishing Bird in a lot of aspects is just a regular bird. It needs just as much enrichment. Am I saying that you should bring little knick knacks and toys for it to play with? Yes.

It doesn’t really peck at you much anymore, that said it still will bite and try to pull at your hair every once in a while like it's gathering some kind of material. It hurts a little bit but it's the same as a dog or cat play-biting.

Don’t underestimate this bird’s grip. It has talons of steel and will absolutely lock down on whatever it is standing on and will not let go. It’s also pretty hard to stir awake from its sleep, so even if you’re running for your life you can rest assured knowing that it won’t fall face first on the floor.

Brings little trinkets back to you, most of which it’s stolen off of the other employees. Sometimes it makes for interesting interactions when your colleague notices you have their missing charm…

It doesn’t make much sound aside from the small beating of its wings which causes it to unintentionally be very sneaky when it isn’t midair. You might not even realize it until you feel a small pressure and realize that you are now no longer alone.

With how light it is sometimes you only realize when you start getting stared down by the other employees. Some of them are used to it, while the others are pretty concerned. You get treated with far more respect under the watching eyes of the Punishing Bird.

#Lobotomy corporation #lobotomy corp #lobcorp #punishing bird #platonic #lobotomy corporation headcanons #lobotomy corp headcanons #lobcorp headcanons #headcanons #hcs #lobotomy corporation hcs #lobotomy corp hcs #lobcorp hcs #lobotomy corporation punishing bird #lobotomy corp punishing bird #lobcorp punishing bird #project moon

79 notes · View notes

askrarity-dime · 2 months

Note

you know, you don't have to take that from anon. They need to shut up or talk to you directly so you're not forced to post their blathering.

My friend was pressured into giving up his Serial Killer Pipp Petals blog thanks to asshats like that. It was a good blog and I had mixed feelings about it, but it pissed me off that my friend gave her up because he was harassed.

Keep doing what you're doing.

I don't know if I will follow after the gore starts but I want to support your art and your having fun with this blog.

-Spoony Mod

OOC

Dw! I did not feel discouraged or pressured by that anon! They most likely didn't know about the post the original creator made! And plus, now people can see what he did post and now more could know, and there will be less harassment if others do what I'm doing!

Also I don't mind if you do not follow me anymore after I go to the gore stuff! I'm happy you support me!

7 notes · View notes

crimeronan · 10 months

Note

I feel like I would consider myself polyamory agnostic in a way, like I would maybe like for it to happen but I often fear that I don't have the ability to manage even one partnership, let alone multiple relationships, since I am often. So tired. I often find myself idealizing the "late" stage of a relationship when everyone already has settled into what to expect of each other and knows not to take it personally if someone falls asleep mid movie, for example. All this to say, how do you handle your relationship structure as a disabled/chronically ill person? Do you have any advice/thoughts on how it works for you? (I feel like perhaps you have posted about this before and I am just forgetting...)

oh this is a really good question! i'm not sure how relevant my life experience will be to you, particularly given that i started dating all three of my current partners before becoming disabled/crippled. but i am happy to share!

first off -- i 100% get romanticizing the late stage of relationships, sometimes you just need things to be chill and flexible. but i also don't think that this stage necessarily Needs to be reserved for Late Relationships?

like.... the older i get, the more upfront i've decided to be about my needs, especially with new people. granted, a lot of the people i meet these days are either disabled themselves or Get It -- my social circle is mostly queer spoonies in their 20s and 30s + much much older retirees that i hang out with at the local pool.

some people prefer not to be so open so quickly about their limitations, it is hard and scary to be visibly disabled, harder still to ask for help & admit that you might be inconvenient / a burden / take up extra space. this USED to be me until i said. eh. fuck it. after a certain point, wounded pride is just a mental construct

basically, like. when i'm online these days, you'll see me be clear about my limits with strangers - i'll say that if i stop replying to chats or asks, it's not bc i hate you, it's bc i'm tired or forgetful. that i can't guarantee responses to ppl, even people i'm already friendly with. that if my mood is bad or my pain levels are high, i won't engage in much social interaction at All. that my capabilities fluctuate wildly depending on the day and that i cannot be relied upon for consistent scheduling or posting or creative output

i'm similarly open with people irl. it helps that i'm often using mobility aids when i'm talking to people. the mobility aids sorta strip the possibility of pretending not to be disabled. it's kinda the elephant in the room. but it means that i can be like, "as you can see, i am very crippled. i may need flexibility with any plans that we make. due to being very crippled."

if people get upset by this or simply don't have the capacity to deal with it, that is fine! that's not either of our faults, no one's done anything wrong, we're just not in the right circumstances to mesh. i don't get hurt by that personally. i've honestly found that it saves SO much time and hassle and potential drama/heartache to set expectations right away. the only other option is to exhaust myself and end up failing to meet expectations regardless and losing the friendship after burning up a bunch of energy and social bridges. painful and bad!

so like... i can meet a new person, and if they're cool with My Whole Deal, then there's no waiting period before we're familiar enough for flaky behavior. i can be like, "i'm not sure i'll be able to walk tonight, is there a place to sit down at the event?" or "i'm flaring a little, is it okay for us to be kinda flexible about tomorrow's schedule?" or "hey, i'll get back to you as soon as possible i promise, i'm just fogged TO SHIT today [peace sign]" from day 1. it's great

i'm not saying that you Have to do this; i am aware that it breaches like seventeen laws of general social etiquette. i'm just saying that i have met many people who are totally chill about this! as long as you're chill and respectful of the other person as well, you can do whatever you want forever

that was not even relevant to the initial ask, so. AS FOR MY PARTNERS.

i actually don't find that my illness makes it harder to navigate my relationships at all. like i mentioned, i've been with all three partners for Many Many Years now. we know each other Extremely well, we're all extremely turbo autistic, we all have blunt communication down to a science. so saying "i'm not up for doing [x thing] tonight, can we take a rain check?" is super easy.

in fact, my partners can basically intuit a flare from just my physical movements and tone of voice, even before i say a single word. we are VERY familiar with each other.

.....and, alright. after fighting the urge to longpost i've decided to put the rest under a cut. YOU'RE WELCOME 4 THE RETURN OF YOUR DASHBOARDS. "why didnt you put it under a cut so much earlier" read my posts boy

anyway. click readmore to hear me expand upon just how fucking incredible and awesome and kind and generous and loving my People are

there ARE some ways that the illness has made it more difficult for ME to be the kind of partner that i want to be -- for example, i often lack the energy to provide proper emotional support during stressful situations, i have a shorter threshold for pain/irritation than i used to, i can't give 100% of my energy anymore and there have been times when that has resulted in hurt feelings in my partners.

(there have been far more times, though, when nobody's feelings are hurt and it's literally fine.)

in every case where feelings DID get hurt, we've talked stuff out and fixed it within like an hour. bc we all trust each other and know that we don't WANT to hurt each other's feelings. i never ever Ever say things with the intention of wounding my partners, and they know that. they never say things with the intention of wounding me, either, which is why our very blunt "hey, you need to change something you're doing" convos go so well. there's no need to tiptoe, it doesn't hurt me to know what they're thinking or feeling or needing.

sometimes things are just hard and shitty and we're all doing the best we can. this is just part of adulthood i think. especially adulthood in late stage capitalism, etc. the Biggest key to my polycule is that we are all much happier as a family than we would be without each other. the relationships are about as wholesome and healthy and non-toxic and openly communicative as they can get

the Other key aspect when dealing with my illness is that.... being polyamorous has actually been... SOOOOOO MUCH BETTER than being 1) alone, OR 2) in a monogamous relationship EVER WOULD BE?

it is Extremely Stressful for my family to deal with me being this sick. i am aware of that. but i haven't had to bear the brunt of it. not only do they support me, but they also all communicate with and support each other. so no one person is bearing the entire weight of the stress or pain or fear. and i don't have to comfort people over my own symptoms, which most disabled ppl i think would agree is.... exhausting

when i'm too fucked up to speak aloud, let alone support my partners the way i usually do, they ALWAYS have EACH OTHER as a safety net.

this safety net has been beyond vital for me personally, too. round-the-clock care from a single partner is insane and exhausting and leads to unraveling tempers. but when you live with two partners who can help cover your chores and cook and make sure you don't die of your Symptoms (TM)? that's much more doable.

it's HARD, bc literally everyone in the house is disabled to some degree, but it's doable. (it being hard is part of why my QPR is going to move in with us soon. extra hands!)

a few weeks ago, rafi (partner of 7ish years) went on a short vacation to visit family in california. and justice (QPR of 3ish years, best friend of 8ish years) booked an impromptu next-day plane ticket to come stay with me and vi (partner of 11ish years) while rafi was gone. because i was Very Sick. i was flaring horribly the whole time she was here, and she made meals and cleaned and ran errands and picked up medications and returned phone calls and lay in bed with me watching low-stakes tv shows and made sure i didn't stroke out without anyone there to help.

this meant that i basically got to stay in bed the whole time, which was very very Very needed. and vi -- who has a bad back -- wasn't unduly taxed with Literally All of the household upkeep in rafi's absence.

the same principle has applied when i've needed my partners to help cover my share of bills or my household chores or my errands or whatever. since there are three other people involved, the Immediate Support Net is much wider than in a monogamous relationship. especially bc all three of them have their own familial and friend support networks to reach out to!

having more people around is actually awesome for me. i don't feel like i'm expending a lot more energy than i would in a monogamous relationship, but i AM receiving a TON more support and care and love than would be possible in a monogamous relationship.

i guess the conclusion i'd make is: no man is an island, humans are hardwired to build large social support groups, and in a good relationship, you'll receive At Least as much as you give. right now i'm receiving a SHIT TON MORE than i give, and i do often feel pretty bad about it despite knowing it's not my fault.

but these people have chosen to be my family. and if they ever want to stop choosing me then they absolutely can. and if they need more from me or they need something Different from me, then they'll literally just tell me.

(i know they will literally just tell me because all three of them have literally just told me in the past. they're three people i can implicitly trust to say things like "hey, this thing you said made me sad / was unhelpful" and "hey, i'm really stressed out about [x thing], can we make a plan to deal with it?" and "hey, this situation is pretty serious and i know that you don't want to face it but i really need you to. i will take on whatever i can for you and support you the whole time")

so: yes it has been hard to some extent, managing three relationships while also being sick. but it is also a wonderful setup with a million unthought-of advantages & i am much better cared-for and much better AT caring because of it & i fucking Shudder to think how horrific being sick would be without them.

i love my family so much.

#long post #replies #polyamory #this barely scratches the surface bc it's just a few examples of how our dynamics work but hopefully it is clarifying #polyamory is an advantage that has saved my Entire Ass. my partners are wonderful.#all relationships do take work but my three relationships don't take So Much Work that there's no benefit you know #the work is really easy. it's just. you take care of me when i need it and you can. i take care of you when you need it and i can #that's literally it. it's not a hard symbiosis to maintain #autoimmune tag

24 notes · View notes

surven-snacks · 1 year

Note

To the other anon:

Stop asking Spoonie to post shit. They are in COLLEGE. Shit is hard as fuck.

To Spoonie: remember to eat and sleep at least 5 hours. Take walks in case you feel like the world hates you. Also the library is your best friend. Don’t cram. Take all the extra credit. Hope you do good and learn lots of good shit 💓💓💓💓💓💓💓💓💓

I'm actually going to cry 🥺🥺🥺

I sleep at least 5 hours and I got a free period where I hang around in the library to either revise, do homework, or sleep. I'm getting better at my bad subjects and I'm doing good. I'm just- there's a lot in my hands right now, and I want to get the comic done too! Even just two pages are fine, really. And don't fight lol 😂 to the previous anon, I get it, I've been spoiling you guys with the almost daily posts but I did post an announcement in the latest comic about me not posting consistently anymore and u anon rn thank you so much

Please be patient since there are not enough hours in the day for class, life shit, and this at the same time! Thank you <3

#admin spoon ask

60 notes · View notes

newhologram · 11 months

Text

Some say that everyone is "mentally 3 years younger" because of all the time we "lost" during the pandemic (which is still not actually over). I don't disagree; that can be a lot of arrested development for people who were teens in 2020 and adults now. I think of my nephew, who started kindergarten online. But also: millions of spoonies "lost" years way before covid, all around you. In isolation. While families, friends, and society abandoned them. While I do feel stunted in many ways because of "losing" 10 years to the intense onset of a higher level of disability (while already badly traumatized and mentally ill), I think maybe a redefinition of all of this is needed. Just because a spoonie's experience isn't the norm and they had a very different way of "growing up" doesn't mean there was only a loss. I feel disconnected to most (non-disabled, neurotypical) people I meet who are my age. We've had very different life paths and live so differently as adults. I often form close bonds with people who turn out to be near the age I was when my hourglass froze. I don't know, it's hard to be concise and precise when describing how I feel about it. I think I'll feel like I'm in my 20's forever, because I mostly spent it surviving some really bad stuff. Chronic illness, disability, grief, abuse, isolation almost killed me so many times. I feel like a living ghost, like I'm in the wrong timeline. Do I feel like I "lost" a decade? Do I still grieve, because I never got to have a "normal" life? Yes. Do I also feel grateful for what I gained and how I learned to survive? Do I also wonder fearfully who I would be today if I hadn't gone through this? Yes. It's the anger at having my youth taken from me competing with the gratitude that I was able to survive to become this version of me, who I actually like. Not perfect or pure, but also okay with not being so. Even though I still have a lot of health issues wearing me down, I feel a weird sense of like "okay, NOW I get to experience my 20's" but what does that even mean? If I break the hourglass, it's meaningless anyway. The sand just falls all over the place, there's no "gap" in time that was "lost" by being sick. It's all filled up with the same sand. I want to stick my hands in it even if the glass cuts me. I don't think it'll make me feel like an adult or even a person. But the sand is there. It wasn't wasted. My youth wasn't wasted just because I had to spend it surviving. My life isn't a waste just because I spend it mostly at home, taking care of my body. It's not wasted if I never get to see my dreams come to life. It's not wasted if I'm only able to carve out a simple kind of fulfillment. Sometimes it feels impossible to find the richness in that sand, when I can't access medical care, when I'm really sick, when I'm frustrated by trying to coordinate hang outs with able-bodied people who need constant reminders of my limitations. Other times the sand is warm and comforting. I feel like as long as I stay wrapped up, I'll be okay.

#disability #chronic illness #ableism #neurodivergent #mental illness #teku

24 notes · View notes

howtobeapersonwithfibro · 10 months

Note

Hi so I don’t know if you really take asks but I would like some assistance here. I am a teenager who was diagnosed with POTS a little under a year ago and I’m starting to think I may need a mobility aid. I have never fainted or actually fallen due to my disorder but some days I get worryingly close and I need to sit down quite often after short periods of time out of my bed.

I have brought up the idea of a cane or something along those lines to assist with balance when needed (I don’t leave the house often and when I do it tends to just be on days when I’m not having those walking issues), but my idea was turned down due to the possibility of my body not being able to build up strength and becoming reliant on the aid (mind you I’m already leaning on walls quite a bit and am terrified of going down the stairs without a death grip being had on the rail).

Any information you’d be willing to give would be helpful, especially around if my pots is at a point where mobility aids wouldn’t be a longtime detriment (obviously all in your opinion. I haven’t been able to talk to my doctor yet)

Greetings!

I'm glad to hear you've gotten a diagnosis so you can at least know why you're feeling so crappy, but I'm also sorry you have to deal with POTS. I know from firsthand experience how much it can interfere with your life, way more than people can see from the outside.

I am 100% on board with you getting a cane, especially since it sounds like you need and would really benefit from one. My POTS is the reason I use mine. It was really shocking at first how much using it reduced my fatigue and dizziness when walking, just by pawning some of the weight off on the cane.

I know how awkward it is to navigate the mobility aid talk with family, friends, and even doctors, especially if a doctor didn't recommend it necessarily. But you know your body best, you can do what's right for you, and ultimately (unless you need financial/practical help from parents to buy one) the choice is all up to you. It is uncomfortable socially at first but the benefit FAR outweighs the drawbacks in my opinion. I think a lot of people on POTS/chronic illness/spoonie tumblr (search those tags for more info!) would agree that mobility aids are a huge help in their lives, and I honestly haven't heard a lot of stories where doctors have been the one to bring it up.

The fear about you getting weaker is kinda bullshit tbh. You're already (probably) getting weaker from POTS; the worse you feel from it the more you have to sit/lie down and rest. If walking feels better because a cane helps, you're actually more likely to walk more.

(also, if you can see a cardiologist, mine have recommended salt either in diet or tablet form, a medicine called midodrine [didn't work for me personally], and a beta blocker [has made a huge difference for me personally. i've found no one else really knows much about dealing with POTS, doctor wise.)

You are doing a great job advocating for yourself and seeking out information, so keep doing that. I believe in you and I hope you feel better soon. Feel free to follow up and let me know if you get a cane how it goes!

<3 Jenna

(other potsies, feel free to add advice in the comments! multiple opinions are better than one!)

#my post #spoonie #chronic illness #disability #pots #postural orthostatic tachycardia syndrome #ask #answered asks #mobility aids #mobility aid user

18 notes · View notes

come1nalone · 11 months

Text

Adult children of neglect- this is how you should clean your bed.

This post is for adult people, who were not taught how to clean and maintain hygiene. This is only what I’ve learned and my personal experience so feel free to add things and correct any mistakes I’ve made.

When I was a teenager, I dealt with very bad mental health issues. I was very depressed, anxious, had eating disorders=low energy, abused substances and felt terrible all around. As a consequence, I would never clean my room. My parents scolded me a lot, but just closed the door to my room remarking it made them sad. I was forced to clean every now and then, but often I just slept in pretty bad conditions. I didn’t change the sheets for months on end, sometimes there was cat feces on the blankets and I just kinda flipped it to the other side. It was cold at night, my room was a fucking mess, and I just felt pretty bad in my bed. These are the things I learned as a semi-adult, that I believe are good information.

First and foremost; remove any objects that do not belong in the bed. Anything like food, notebooks, laptop, laundry, etc. you should have *only* your blankets, pillows, stuffed animals if you like them, things you need for your sleep. Really just take those things out. This is good, because some things might end up injuring you in your sleep, and secondly, it can distract you from noticing how clean your bed is. It could also prevent any Hygiene issues. I’m not sure why it’s good to do this, but I believe it’s good practice.

Secondly, you may want to clean things up. Anything that you’re uncertain of, Google. Google and YouTube are your best friends. Make sure you dust around the bed frame, clean the bed and the sheets of animal hair or your hairs before you put the dirty sheets in the laundry, because animal hair doesn’t come off in the laundry, you’ll just get more cat/dog hairs on other clothes that way. You can use tape or a special roller to clean those.

If you notice any stains- make sure you clean them up. Check the materials you have available, and purchase new ones if you need them. Things like period stains and whatnot, any organic-biological stains may need to be sanitized with special wipes. These are available for cheap at most supermarkets, so don’t worry. Just make sure things will be clean.

The sheets. Oh lord. I’ve learned that you must change sheets every 1-2 weeks. It’s hard keeping up, but it’s important to know the standard at the very least. So make sure you change those up.

Temperature. Are there enough blankets to keep you warm at night? You should have the bed be at a comfortable temperature. Alternatively, do you have too many blankets? You do not need to sleep wearing a coat at night. Even if you did as a kid. You deserve a warm comfortable bed, so add blankets, or remove some, if they make you uncomfortable.

If you sleep with fluffy pillows, or stuffed animals, I believe they need to be put in the laundry every now and then as well. Stuffed animals and fluffy pillows- I looked it up online and it said a month. As for actual pillows- twice a year, or every 3 month if you have pets. Remember that these are all assuming the pillow or stuffed animal did not get stained. In that case, you should wash it immediately. Check online on ways to clean things.

Remember to clean under the bed, remove any objects that do not belong under the bed, dust and then mop the floor with water every now and then.

This list isn’t exhaustive- but it’s what I know and I hope that can help you. If you’re a spoonie, there are way better posts out there that give you tips on how to do these things with greater ease.

Remember that it is ok to fuck up, and it’s ok to not know. Cleaning your bed will not make your life magically better. You will not wake up to be this new person who is delighted with joy. But it’s something you need to take care of.

For me personally, it was hard to understand why I need to “fix” bad living conditions if I’m doing “ok”. Because I’m still in survival mode, yk. But I think it’s a good habit to make sure you’re taking care of these things. You deserve a clean bed, and a warm bed, and to feel safe and comfortable, not just to have a bed. Not just to have a room. But for it to be clean and well, so you could enjoy it and be safe in it.

Wishing y’all the best in recovery and feel free to add your own prompts ❤️

#neglect #child neglect #survivor #child abuse #abuse #parental abuse #informatic #important #blogpost #neglectful parents #cleaning #cleaning tips

26 notes · View notes