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#chronically ill student
mortuarymorticia · 2 months
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─── ・ 。゚☆: *.☽ .* :☆゚. ───
02.29.2024.
first week of my spring classes are done!
[ 🧪 ] embalming chemistry.
[ 🧾 ] accounting essentials.
[ 🗣️ ] sociology of death.
i’m enjoying my classes a lot & i’ve got some really good study groups already in motion. it’s a big, big bucket load of work this term, but i’m gonna make it happen.
[ study affirmation of the week: ] i am succeeding in all my areas of study.
left to do:
✎... make quizlet for sociology.
✎... sociology paper.
✎... sociology discussion replies.
✎... embalming chemistry homework.
✎... notes for all three classes week 2.
🎧: beautiful things - benson boone.
📖: natural beauty - ling ling huang.
🌲: sitting outside on our patio.
─── ・ 。゚☆: *.☽ .* :☆゚. ───
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Being visibly disabled is such a weird and conflicting experience. But also, you get no room to have these emotions and opinions. Decisions are thrust upon you and you must decide what you want in time for you to advocate for it.
I've repeatedly told my school I don't want a teacher or SNA or anything pushing me around, I want it to be flexible. I want my friends to push me and me to decide when I'm pushed. But every time I say something like that its like this mist surrounds them and they ignore it. Even staff who have been amazing advocates for me, willingly to go along with what I say I need, even they do this. So now I'm stuck with a person who showed up without my knowledge this morning, turning up at the end of every class to follow me, and she doesn't even have the 'pushing training' that the school insisted whoever is pushing me should have! She's literally never pushed a wheelchair before me!
And she's a nice person and everything, it's just that physically disabled people get denied the ability to be involved in our care, to make our own decisions, and to be looped in with everything that's happening. Its frustrating and dehumanising. It makes you feel like you're five. Because you're just handed a decision with no chance to really weight it out in your mind first and no input into how it works. It effing sucks man, and it's kind of impossible go explain to an able-bodied person because its different to anything similar from their lives.
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13•12•22 // back to studying for my January exams (wish me luck, these are ideally the last 2 for this round of licensing). Truly been so busy with work, getting ready for Christmas and getting back into studying ✨📝 being chronically ill and in a period of high stress isn't always as easy as I'd like it to be but such is life ✨☕️
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my fatigue has gotten worse this year and i'm now sleeping 12 hours each night and not falling asleep until at least 3 am and school starts next week aaaaaaaa
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thecultofcupid · 7 months
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Elevators should be in working order and available for use. Period.
I am a Studio Art major meaning most of my work and supplies are in the campus art building. None of my classes are on the first floor, meaning that as a disabled student, I have to have full-time access to the elevator to both get to class and do work outside of class. So why is it that I find myself stuck on the first floor for the second day in a row with an elevator that won't respond with not even a notice saying it is/would be out of order and no clue when I'll be able to use it again?
Accessibility should be the standard. Not just an afterthought.
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puffyrice · 6 months
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100 Days of Productivity [11/100]
11.25.23 | I have my BLS CPR course tomorrow at 11:30, so I spent the afternoon completing the online portion. I also managed to take notes and make a Quizlet set for my nursing quiz on Wednesday. As long as I'm not too sick tomorrow, my goal is to finish my final research paper on women in politics, so that I can put all my focus on my two final presentations.
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bunnyhysteria · 10 days
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does anyone wanna talk about how the fandom has hyper projected onto shen yuan and went the mile with at least a leap of interruptation of one line yet turn a blind eye to the rest of canon?
specifically I'm talkin about the broke american college studentification of shen yuan coupled with the fanon that he's chronically ill. these are two beasts of their own and should be tackled differently so I will.
I personally and strongly disagree with how a lot of fanon portrays shen yuan with messy hair, a large hoodie, disgustin room, and general I guess losercore aesthetics lmao. and now I'm even wondering if he was explicitly a college student or if it was just fanon based on that he's at least 20 years old. I feel this is a mental image constructed not from canon, but the idea of what kind of person would be his age and show his behaviour online... from a western perspective.
I believe that he would be far more put together, especially as he is a rich pretty boy in modern china. the difference in acceptable levels of casual, especially for a son of a very wealthy family, are much different between america and china. honestly I do find it a bit sad I wear a slightly frilly button up shirt and a short skirt and suddenly I'm a model in my area but I digress. I definitely think that shen yuan would probably even be actively into street fashion, give how well he seems to take to shen qingqiu's own pretty boy life. I also have a hard time believin that such a low life style person would readily take to the upkeep and demands of life as an immortal master with specialty in the fine arts.
there's also something to say about his resemblance to shen qingqiu (re: mushroom body), as well as I've seen some people claim that shen yuan was tall due to his lack of reaction nor stumbling with his new towering height. while the two adaptions I know if depict him with short hair, I think he could have readily had longer hair as well, maybe shoulder or so length. if "not reacting" is grounds to stand on (which is also used for the chronically ill headcanon), one could reasonably point out he doesn't seem to have any trouble with his now waist length locks. even slowly growing out my hair I'm having shocks to what the life entails, so I can't imagine being fully chill with sudden long hair. however, with the it's modern china argument for fashion, it is most reasonable he'd have short hair.
and yet, despite all this evidence in favour of a distinguished shen yuan ignored, the fandom took his pretty boy waiting to die line and ran with it, hard. I have been told this was due to a fan translation note implying that it could have hinted to chronic illness, and it was instead warped as fact of what the line was trying to say. I've also seen the lack of reaction claim used on him supposedly adjusting very well to living with without a cure, often paralleled to some people's chronic illnesses. this is a fair headcanon and is not really a problem on it's own. I just want to speak my thoughts on it, especially in contrast to the other popular fanon arising from ignoring a fair bit of canon implications and then taking one that most likely was not even in that direction as gospel.
first and foremost, as a disabled person myself, I find a lot of fandom depiction of chronic illness to be very divorced from reality, used to play into the losercore vibe, often just thrown in there with feelin like the creator forgot they gave him a disability only to suddenly write a single sentence goin "look! he's disabled!", and worse of all as if it could be his only justification for wasting his life away on the internet.
I once read a fanfic that seemed to just list a bunch of things he had or did because of his disability in a very list-like way, but a believable combination enough to presume they at least knew someone disabled, only to leave his cane at home after establishing his unamed illness with 50 symptoms could suddenly k.o. him at any time. not only did nothing happen while he was out, I question why someone of his status yet so severely disabled would not have an ambulatory wheelchair.
I also question the lack of mental illness present in many fanfics. this is not only due to that chronic illness does not really exist independently of mental illness, but I feel that shen yuan is canonically very mentally ill. not only is he wasting his life away with no purpose, heavily implied to be neglected, but he immediately accepts and welcomes a foreign life with no consideration of going back. many people write fanfics of shen yuan pressed about his identity and wishing to be seen for him, but as I've noticed and have pointed out to me by others, that's just not the case. there is no canon reveal because there is no identity conflict. he may divorce himself from shen jiu adamantly, but he marries himself quite well to shen qingqiu, readily switchin how to refer to himself near instantly.
I also feel there's something to say about how he's not only welcoming a foreign world, but one with severe danger that he has to face. and what does he do? dissociates like hell. it takes him a couple books before he even sees those around him as people! I also feel that him not even recognizin that he was cryin from literally ripping a chunk of his own leg out until binghe pointed it out speaks volumes. he let binghe rawdog him in a craze with excruciatin pain that literally killed him and was like "yea this is fine ah what do you mean there's a chance binghe might be dead when I get back noo". could even make an argument that his ignorance to his harem is more than just comphet, but also believin that he wouldn't have value to others in that way. his value is his status: a status he didn't earn and has never earned.
I don't know. I feel there's a lot more to shen yuan than the fandom looks at or rather the fandom digs into things that aren't even there as if it's the penacle of his character. I wanna see more exploration of shen yuan as he is rather than what the fandom wants him to be. or at least to me, his pretty rich boy complex feels far more interestin than the hundredth "oh yea he's chronically ill" shoved in for little to no reason other than they can't comprehend his behaviour without it. as if to say "well if only he could physically do other things, he would. he's not like those losers who can't get a grip of themselves." completely ignorin the depths of mental illness they could explore. it feels both saneist and ableist, in different directions. he's only so pathetic because he's physically disabled. that he can't be any other way, otherwise he's just not likeable.
like give him a couple personality disorders to explore his behaviour with or something! show how he's actually so used to playing pretty composed rich boy in public and that's why he so easily slipped into his idea of shen qingqiu! something!! anything!!!
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However bad you think accessibility on college campuses is, it's worse.
Looked around today and basically wanted to give up just trying to figure out where to enter this one building and how the hell I am supposed to even park close when there are only special lots.
It makes me want to give up just because of that. I shouldn't have to panic about just getting to and from my classes.
We deserve better.
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sweaty-confetti · 8 months
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shoutout to the people that like learning, who love learning, who want to learn and understand and create things on their own terms, but can’t go to college/university. not for lack of money or access (although those are obviously valid and understandable), but because their disabilities prevent them from doing it. who don’t have enough spoons to take a university course and complete the amount of mental and physical work it entails. who are too anxious to leave home and don’t have the resources to combat that anxiety. who get burned out quickly and easily and can’t handle the amount of effort university takes. it’s not your fault and does not determine your worth - you are allowed to do what makes you comfortable. for those that mourn the loss of their college experience, i understand and your feelings are valid. whatever the reason may be, i see you.
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shittycollagen · 1 year
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every day I understand more and more why so many disabled students don’t finish university
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mortuarymorticia · 4 months
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─── ・ 。゚☆: *.☽ .* :☆゚. ───
01.03.24.
today has been shit. frankly, most of the new year has been shit this far. i’m really missing school, even tho im supposed to be enjoying my break.
i’ll post my resolutions soon. thx for being patient with me, new friends! 🖤🦇
─── ・ 。゚☆: *.☽ .* :☆゚. ───
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I used my wheelchair for the first time in school today and it's so strange how it becomes this open invitation for people to guess at or question your medical status. Like, the assumption that this is a permanent thing, or that I'm injured (I've never seen a bright green hospital chair but ok) or to ask me about how long this will be going on for etc. etc.
And, I don't really blame the people asking all that much. For them, it's a way to show that they care about my wellbeing. It's the society they've all grown up in that tells them that this question is ok to ask and fails to educate them about disability. That's what's created this. Trying to show care ends up becoming ableism and ignorance when the world chooses to ignore disabled people and our lives.
So, yeah.
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study-core-101 · 4 days
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time managment is so complicated when you are chronicly ill. some days its like it isnt there, others i feel dead, but i cant predict that. "oh, ill do it on thursday, i have the time then" wrong! its thursday and i feel like shit, cant do it.
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chaos-and-ink · 11 days
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STOP TELLING PEOPLE THEY DONT DESERVE ACCOMODATIONS.
In my junior year of high-school I took the ACT in the special ed room with time and a half. I scored a 29/36 (in that year it was close to Ivy League acceptable) and EVERYONE, including my best friends, kept saying it was so unfair and that I didn’t actually need accommodations and that I didn’t deserve the extra time because I’m a smart student and I do well in my classes. They kept saying I was cheating the system, etc.
What they didn’t see was me being so overstimulated in the testing room that I chewed my hand until it bled. I pulled my hair. I scratched my arms raw. I cried. The silence made me want to scream, my autism couldn’t handle the environment and stress. Not to mention I was in joint pain from EDS. I had brain fog. I was fatigued and anxious and dizzy and restless and unable to sit still with horrible stomach pain from POTS. And then the general anxiety of taking the ACT exacerbated by my GAD.
So stop telling people they don’t deserve the accommodations they get. I worked fucking HARD to get a diagnosis, an IEP, accomodations, etc. I wonder how much higher I could’ve scored if I wasn’t disabled in the first place.
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I recently started using a cane everyday and so my previously invisible disability is suddenly visible. I also started medschool. It's been a while since I was properly social so I have questions...
People don't walk next to me. And if they accidentally do, they leave to walk next to someone else even if that means squeezing in three people on the sidewalk. No one talks to me if it's not to ask me "what's wrong". I have really tried to make an effort and talk to people but I don't know what to do.
Can it have something to do with my disability and my cane? Like they're scared to say the wrong thing? Or maybe it's because they've sensed the autism?;)
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puffyrice · 5 months
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100 Days of Productivity [20/100]
12.15.23 | I have 2 quick online quizzes and one exam left (Chemistry) for the semester, which is on Tuesday. I finished all my presentations and other exams, and I’m so relieved they’re over. Everything went well I think, but we’ll see when the grades come in. I’ve been extremely ill, so I’m having a hard time finding the energy to do anything. I managed to write my last religions essay this morning, which actually ended up coming out well.
I can’t wait for this 3 week break, I am so exhausted.
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