That's okay for now💕
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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Please, if you can, take a moment to read and share this because I feel like I'm screaming underwater.
NPD (Narcissistic Personality Disorder) stigma is rampant right now, and seems to be getting progressively worse. Everyone is using it as a buzzword in the worst ways possible, spreading misinformation and hatred against a real disorder.
I could go on a long time about how this happened, why it's factually incorrect (and what the disorder actually IS), why it's harmful, and the changes I'd like to see. But to keep this concise, I'll simply link to a few posts under the cut for further reading.
The point of this post is a plea. Please help stop the spread of stigma. Even in mental health communities, even around others with personality disorders, in neurodivergent "safe" spaces, other communities I thought people would be supportive in (e.g. trans support groups, progressive spaces in general), it keeps coming up. So I'm willing to bet that a lot of people on this site need to see this.
Because it's so hard to exist in this world.
My disorder already makes me feel as if I'm worthless and unlovable, like there's something inherently wrong and damaged about me. And it's so much harder to fight that and heal when my daily life consists of:
Laughing and spending time with my friends, doing my utmost best to connect and stay present and focused on them, trying to let my guards down and be real and believe I'm lovable- when suddenly they throw out the word "narcissist" to describe horrible people or someone they hate, or the conversation turns to how evil "people with narcissistic personality disorder" are. (Seriously, you don't know which of your friends might have NPD and feels like shit when you say those things & now knows that you'd hate them if you knew.)
Trying to look up "mental health positivity for people with npd", "mental health positivity cluster bs", only to find a) none of that, and b) more of the same old vile shit that makes me feel terrible about myself.
Having a hard time (which is constant at this point) and trying to look up resources for myself, only to again, find the same stigma. And no resources.
Not having any clue how to help myself, because even the mental health field is spitting so much vitriol at people with DISORDERS (who they're supposed to be helping!) that there's no solid research or therapy programs for people like me.
Losing close friends when they find out, despite us having had a good relationship before, and them KNOWING me and knowing that I'm not like the trending image of pwNPD. Because now they only see me through the lens of stigma and misinformation.
Hearing the same stigma come up literally wherever I go. Clubs. Meetings. Any online space. At the bus stop. At the mall. At a restaurant. At work. Buzzword of the year that everyone loooves loudly throwing around with their friends or over the phone. Feels awesome for me, makes my day so much better/s
I could go on for a long time, but I'm scared no one will read/rb this if it gets too much longer.
So please. Stop using the word "narcissist" as a synonym for "abusive".
Stop bringing up people you hate who you believe to have NPD because of a stigmatizing article full of misinformation whenever someone with actual NPD opens their mouth. (Imagine if people did that with any other disorder! "Hey, I'm autistic." "Oh... my old roommate screamed at me whenever I made noise around him, and didn't understand my needs, which seems like sensory overload and difficulty with social cues. He was definitely autistic. But as long as you're self-aware and always restraining your innate desire to be an abusive asshole, you're okay I guess, maybe." ...See how offensive and ignorant that is?)
Stop preventing healthcare for people with a disorder just because it's trendy to use us as a scapegoat.
If you got this far, thank you for reading, and please share this if you can. Further reading is under the cut.
NPD Criteria, re-written by someone who actually has NPD
Stigma in the DSM
Common perception of the DSM criteria vs how someone may actually experience them (Keep in mind that this is the way I personally experience these symptoms, and that presentation can vary a lot between individuals)
"Idk, the stigma is right though, because I've known a lot of people with NPD who are jerks, so I'm going to continue to support the blockage of treatment for this condition."
(All of these were written by me, because I didn't want to link to other folks' posts without permission, but if you want to add your own links in reblogs or replies please feel free <3)
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suicidal people deserve a space to talk about their suicidal feelings without risking hospitalization/institutionalization or being accused of being manipulative or attention seeking
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People don’t realize just the sheer mental toll it has on you to see abled and allistic people doing things that you can’t do.
Oh nice, you have a new job? I haven’t worked for years due to my disability and maybe never will.
Oh nice, you’re moving into a new apartment independently? Sounds fun, I probably never will be able to live on my own.
The utter strain all of this puts on someone’s mental health is HARD. Being higher support needs isn’t all sunshine and rainbows folks. It isn’t fun to not be independent, to rely on others just to fucking do simple things. It’s hard, it hurts. It isn’t fun to have every aspect of your life controlled by others. It isn’t fun to be doing things that your 14 year old sister has already excelled at. It isn’t fun.
I will never ever understand people who think that being higher support needs is easy and all rainbows because we usually don’t work and “get everything handed to us” like please. Just listen to us once and awhile.
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this year my challenge for everyone is to unlearn the association between love and morality. love is not something that is inherently morally good, and the absence of love is not something that is inherently bad. sex without love isn't morally bankrupt, it's just an action. people without love aren't less kind or less good, they're just people. when we can get past this false (and often unnoticed) dichotomy of good love/evil lovelessness then i think we are going to be able to take leaps and bounds in sex positivity, aro advocacy, certain discussions of mental health...
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you were raised in comparison.
it wasn't always obvious (well. except for the times that it was), but you internalized it young. you had to eat what you didn't like, other people are going hungry, and you should be grateful. you had to suck it up and walk on the twisted ankle, it wasn't broken, you were just being a baby. you were never actually suffering, people obviously had it worse than you did.
you had a roof over your head - imagine! with the way you behaved, with how you talked back to your parents? you're lucky they didn't kick you out on your ass. they had friends who had to deal with that. hell, you have friends who had to deal with that. and how dare you imply your father isn't there for you - just because he doesn't ever actually talk to you and just because he's completely emotionally checked out of your life doesn't mean you're not fucking lucky. think about your cousins, who don't even get to speak to their dad. so what if yours has a mean streak; is aggressive and rude. at least you have a father to be rude to you.
you really think you're hurting? you were raised in a home! you had access to clean water! you never so much as came close to experiencing a real problem. sure, okay. you have this "mental illness" thing, but teenagers are always depressed, right. it's a phase, you'll move on with your life.
what do you mean you feel burnt out at work. what do you mean you mean you never "formed healthy coping mechanisms?" we raised you better than that. you were supposed to just shoulder through things. to hold yourself to high expectations. "burning out" is for people with real jobs and real stress. burnout is for people who have sick kids and people who have high-paying jobs and people who are actually experiencing something difficult. recently you almost cried because you couldn't find your fucking car keys. you just have lost your sense of gratitude, and honestly, we're kind of hurt. we tell you we love you, isn't that enough? if you want us to stick around, you need to be better about proving it. you need to shut up about how your mental health is ruined.
it could be worse! what if you were actually experiencing executive dysfunction. if you were really actually sick, would you even be able to look at things on the internet about it? you just spend too much time on webMD. you just like to freak yourself out and feel like you belong to something. you just like playing the victim. this is always how you have been - you've always been so fucking dramatic. you have no idea how good you have it - you're too fucking sensitive.
you were like, maybe too good of a kid. unwilling to make a real fuss. and the whole time - the little points, the little validations - they went unnoticed. it isn't that you were looking for love, specifically - more like you'd just wanted any one person to actually listen. that was all you'd really need. you just needed to be witnessed. it wasn't that you couldn't withstand the burden, but you did want to know that anyone was watching. these days, you are so accustomed to the idea of comparison - you don't even think you belong in your own communities. someone always fits better than you do. you're always the outlier. they made these places safe, and then you go in, and you are just not... quite the same way that would actually-fit.
you watch the little white ocean of your numbness lap at your ankles. the tide has been coming in for a while, you need to do something about it. what you want to do is take a nap. what you want to do is develop some kind of time machine - it's not like you want your life to stop, not completely, but it would really nice if you could just get everything to freeze, just for a little while, just until you're finished resting. but at least you're not the worst you've been. at least you have anything. you're so fucking lucky. do you have any concept of the amount of global suffering?
a little ant dies at the side of your kitchen sink. you look at its strange chitinous body and think - if you could just somehow convince yourself it is enough, it will finally be enough and you can be happy. no changes will have to be made. you just need to remember what you could lose. what is still precious to you.
you can't stop staring at the ant. you could be an ant instead of a person, that is how lucky you are. it's just - you didn't know the name of the ant, did you. it's just - ants spend their whole life working, and never complain. never pull the car over to weep.
it's just - when it died, it curled up into a tight little ball.
something kind of uncomfortable: you do that when you sleep.
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Bring back the Mac that made fun of Dennis when he got addicted to crack, had sex with his mom, and left him in an alley to get stabbed
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if you shit on people for being drug addicts then just know that i hate you.
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I hate that I'm considered "high functioning". I barely qualify for any "level" of disability in my country and I will never get a disability income. Yes. I'm able to go to work. But I will not be able to hold it for more than a few months before getting burned out and having daily meltdowns. No, having 10 minutes extra work break won't help me. Neither will wearing headphones or carrying fidgets. I'm literally not able to work 40h a week without severe negative consequences... How do i fucking exist in this society!
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very exhausting to explain that my autism is not your fault.
overstimulated is not your fault.
meltdown not your fault.
stim not your fault.
disability is not your fault!!! and i am not sympathetic about this anymore!! stop getting upset when show disability!!! stop centering yourself in my disability!!
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We're in this together💕🫂
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I've talked before about how the way people treat suicide can be unintentionally devastating to the suicidal person, but I don't think I really ever said how to avoid that.
Speaking about suicide in how selfish it "is" ("think about how you'll transfer your pain to your loved ones!") might seem like a way to put logical sense into the suicidal person, but, honestly? It runs the risk of massively increasing their shame and guilt about being suicidal. Suicide is not inherently a revenge fantasy or a way to "get back" at someone's loved ones, so when the suicidal person is treated like a criminal of a "crime" they haven't even committed yet, you can imagine how unhelpful that can become.
Instead, if you want to point out how cherished your person is, frame their relationships as something they can keep fostering.
"Your cat will miss you :(!!!!" becomes "you and your cat seem close, right? I'm sure it's beautiful having a close friend like that!" and maybe include ways that they and their cat are close and meaningful to each other, tailored to that relationship.
That's only one example, but when you shift the focus away from why that person should repent and feel guilty for being suicidal, you can instead focus on why they would live for that reason. See how you can frame that as a positive? Whatever is keeping that person tethered should never be used as a bludgeon, I think, because then you're taking away why they're living, the positivity of why they are here. Whatever they are here for should be remembered often and honoured.
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🪻
you're enough...
...even when you're at your lowest.
nobody needs you to be their superhero the entire time. those who really love you, just need your presence in their lives.
so, just be. however you feel today, someone, somewhere is grateful that you exist ✨
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Shinsou: I hate all those things that were like, “they used to be so strong and funny…. ThEn [insert trauma here], now they are a shell of what they once were”
Shinsou: I can be traumatized and still be strong and funny. I’m the funniest fucker I know
Tsuyu: yesterday you said that you wanted to enter a coma so you didn’t have to deal with an authority figure being mad at you again
Shinsou: both can be true, am I not allowed to have duality, tsuyu??
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A lot of people don’t know this because I don’t really talk about it, but I’m talking about it today!
I’ve been to three psychiatric hospitals in my life. Three. That’s quite a lot. I went from ages 12 to about 15 maybe younger, and was in for months at a time. People don’t realize how utterly terrifying and traumatizing psych wards are and it shows. If you even dare to say “psych wards aren’t that bad” then get the fuck out cause we had two different experiences.
It’s constant fighting, screaming, violence, sedation, med trials, seeing people getting restrained and getting restrained yourself. I’ve never personally been restrained or had more than a voluntary pill sedative, but still. Seeing those things, witnessing those things, is traumatizing. Seeing constant violence, being in constant fight or flight mode is not fun.
I would never go back, nor do I think I can ever go back due to my current support needs and the fact I need access to constant AAC which a lot of places deny.
I have severe psychiatric issues, and I think it was a good choice that I went when I did, however I will never be the same because of the experiences I went through while there. Yes, I had some good experiences, yes I had some bad experiences.
I’m tired of the constant romanization of psychiatric hospitals. I’m tired of the quirky “grippy sock vacation” shit because like, what the actual fuck? Do you know what psychiatric wards are like? Do you know how traumatizing they can be? Do you know that you can’t show an ounce of misbehavior or you will get in trouble. I couldn’t meltdown, I couldn’t shutdown, I couldn’t show anger, hurt, anything without getting in trouble! That sucks!
Please stop glamorizing it. Stop trying to make it silly and fun because it isn’t and you’re causing real harm. Instead, educate about psychiatric hospitals, tell the truth. Tell your experiences.
This post is not at all to deter people from getting help. If you need help then get help! If you think it’s the best option for you then go for it! Psych hospitals are great for getting stable on medication. That’s what they’re made for. To get you semi stable so they can do outpatient care or residential care.
I’ll speak more on this later but yeah. This was just my current thoughts.
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